KISSFAN1
Thank you so much. I don't expect to find a doctor who knows anything about this condition since it is rare although I hope to one day find a doctor who is willing to find out more about it and help us at least with some of the day to day living aspects that are affected. 2108 days ago
KISSFAN1
Thanks every one; I had no idea until I saw the posts on my page that I had been motivator for a day! Wow, I'm humbled. Thanks so much for the posts! 2524 days ago