PSYCHRN1

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Finally a Diagnosis for Mom

Thursday, October 16, 2008

Well, after more than 3 weeks of doubt, fear, & lots of Prayers, we finally have a diagnosis for what my Mom has been dealing with.
The illness is called High-Grade Myelodysplastic Syndrome, which is a big bunch of words for pre-leukemia. Without treatment it will quickly be true Leukemia, according to her Hematologist. The suggested treatment is Decidapine, a chemo type drug but not such a harsh drug like the chemo many people endure...very low incidence of side effects, no hair loss etc. She will have a Mediport surgically inserted in a week or so, then begin treatment which will be Mon. thru Fri. once a month....She is less weak than before, still very tired, etc. Apparently, as she is a breast cancer survivor, the chemo & radiation she had in 2002 til Jan. 2003 put her at high risk of later developing the MDS....there are several classic symptoms of MDS, & she has many of them.
Although we in the family are glad to have a name for what she has been dealing with, there are still unanswered questions.
We will keep praying, hoping, & praying more, that she will be alright.
I'll keep the news coming as I have any.
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  • no profile photo FLORIDAMARIE
    I'm glad there are finally some answers and your mom can start some treatment. I know she continues to need prayers and strength and optimism to begin fighting this, but it's good that "it" has a name now. I'm rooting for her with everything I've got!

    4309 days ago
  • SHERI1969
    PSYCHRN1, I will pray for you, your family and your mom. My mom just came through major surgery where they removed an ovarian cyst 12 inches by 14 inches. She lost more than 20 pounds in the process and "can see her toes now." lol It is scary when parents are sick. My mom is my best friend and I was distraught like never before in my life. I will say a prayer every time I think about you. Should you need some support through this, write me and let me know. I'll do what I can to support you through this ordeal. God bless and look up to where your help comes from.
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    4310 days ago
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