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still waiting for the results of aymans test.

Saturday, March 20, 2010

phoned the hospital for the results of aymans cystic fibrousis test on thursday.the person on the phone said they have just got the test results but she couldn´t give it out to me.i have to phone back on monday to speak to professer von meutius as she has to speak to me.now there where two thoughts running through my head when she said this.the first,anger that the test results are there and they wont tell me.don´t they realise what we as mother go through when waiting for something that is this important,that to know one way or the other would be a relief and that until we know it is like our whole life is on hold and we are living on bated breath.obvious not.how i still remained polite to her and said ok i will wait till monday like a meek lamb i don´t know.then the thought that maybe he does have it and that is why professer von meutius wants to speak to me personally.if it was good newes surly the person on the phone could have told me.either way i am torn one way or the other over the day.one i am thinking on the positive side as i always try to do it is what keeps me going most of the time.the next it like what if it is,at least we would then know,we would know how to treast it but how could i live with the death sentance i see it would be for my child as the life expectancy though better than years ago is still not that high.granted i don´t know that much over it but what i have heard scares me if i am honest.i have perposely not looked it up on the computer as i don´t want to put the cart before the horse so to speak and i admit it i am really scared as i know they test the most likeliest first before testing the least likely so as this is the first test they are doing(as before they put all the symtoms down to asthma)this is the mostly likely the professer must think.i am slowly going mad here i tell you i am doing my best not to think about it but can´t seem to think about anything else.it is not helping my journey to loose weight as i am emotional eater.there i have admitted it .i am trying to control it and doing more exercise to counter act the effect.in fact exercise is helping me an the most.i can let vent in the exercise which i can´t do in real life as i don´t want any off the kids to know how i am feeling.i don´t want them to be scared or uncertain like i am.a question.do you thing i am going mad?it feels like it to me.anyway i hope this blog makes sense and thanks for letting me write it.will let you know on monday what the professer say´s after all there is nothing i can do till then to change things,except more exercise maybe.
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Member Comments About This Blog Post
  • JUDITH1654
    I'm not excusing it because as a mother, of course you are anxious to know, but having worked in a law firm for years, I can tell you that the reason only the doctor/professor can give you the results all has to do with legalities. In a nut shell, they don't want to get sued. It also has something to do with the medical profession - only the primary doctor can give out information - nurses and assistants are NEVER allowed to do that.

    That doesn't make it any easier on you but unfortunately, that is the policy.

    Will definitely be keeping you in my prayers, Girl. You are amazing!!!
    3555 days ago
    Subhana Allah, I didn't know you were dealing with all that. I am teary-eyed after reading this--it must be so painfully hard to be patient during everything you are going through.....La hawla wa la quwatta illa billah. I will continue make loads of dua for you and your dear Ayman and family. emoticon

    3555 days ago
  • ENAS38
    I promise I'll pray tonight for you and your family and remember alhadeeth "cure your patients with alms"
    I wish you all the good luck! emoticon
    3555 days ago
    thanks everyone.you are all great and don´t let anyone tell you any differant.knowing you are there to lift me up means alot you know.i can´t really talk about it with my husband .his attitude is it is maktoub,we can´t do anything about it so why worry about it.idon´t think he really knows what it would mean tfor ayman or for us as a fami9ly re treatments etc if he does has it.i am the oppersite and try to foresee the next step.a case of as i am the one who has to deal with it the most i like to be prepared so i can organise my life ropund it if that makes sense.anyway thanks alot for your support everyone you are all diamonds.if i had the money and your address´s i would send you all a diamond as well.
    3555 days ago
    Karen keep positive thoughts! My prayers are with you this week end. Hope you hear good news on Monday!
    3555 days ago
    Keeping you and your family in my thoughts and prayers! emoticon
    3555 days ago
    emoticon emoticon Thinking of you and saying a prayer for peaceful thoughts in this stressful time! I am with you...waiting for results is HARD! ((((hugs))))
    3556 days ago
    Karen, Please try to stay positive love .. It is shocking that these professional People don't realise what we mothers go through . I am so sorry this is happening!.
    I understand what you are saying, and what you fear! My heart goes out to you and your Family I will pray for you all.
    Try to relax if you can, do your exercise it will help you vent!. Much Love Susie emoticon emoticon
    3556 days ago
  • D710DANCE
    Praying for your peace while we wait for the results. I'm proud of you for exercising and for sharing this blog...know that we're here to support you 1,000%!

    emoticon emoticon emoticon
    3556 days ago
    Good job on the exercising. I think that it's a good way for you to relieve your stress. I hope that you hear good news on monday.
    3556 days ago
    I am so proud of you for getting all of these out. Perhaps, the person who answered the phone is merely a receptionist. Perhaps she is not allowed to give results over the phone. I know when my Tookie bird (my youngest) was in the ICU and the docs thought she had Swine Flu I was a wreck! A whole week I waited and still they were treating her with precautions (masks, gloves, robes) and not telling me a thing. Ya go crazy for sure. Stay busy. And accept that this issue is bigger than you. You can't control it. No matter how much you eat on it! You can do this! And perhaps you could try crushed ice. No calories and it helps with the stress eating. Good luck my friend. I will keep you in my thoughts. And I am here if you need to talk.
    3556 days ago
  • MUSIC66
    so sorry you have not got the results of your sons test yet , hope things will be ok it is so annoying waiting for the resultsjust try and hang in there i will be there for you . emoticon
    3556 days ago
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