It Has A Name

Thursday, June 17, 2010

Finally - a name for what has been causing me so much grief for the past year & more. I only have the name, but not the full picture yet - that is, what the treatment will be & so on... I have myelodysplasia syndrome (MDS). It's - as I understood my preliminary info from the doctor- a sort of "pre-leukemia." What variation I have - variation being something I'm not yet clear about - will determine what sort of treatment I will need & what my probable outcome will be. Not even sure I can call it cancer yet so no need to panic. Even if it is cancer it's apparently a curable sort except for one type or maybe it's got something to do with how long you had it before treatment started. Not sure. All questions to ask the doctor.

Meanwhile my tomato seedlings died. emoticon I wanted to garden this year so badly. But NEXT year. My fish are still alive but I don't know how - the water quality must be SO bad. I really have a lot of work to do when I am finally reasonably well. At least some danged energy! It will really be so nice to get all those little chores done that I've had on the back-burner for all these months.

My diet-meaning my daily meal choices, has changed quite a bit. The prednisone I've been taking for 3 weeks now as part of controlling my weird blood disorder has transitioned into diabetes. I'm lucky in that my blood sugar numbers have always been low & reasonable. I'm able to control the problem, thus far, through diet. I mean, I have sometimes required insulin shots, but only 1 unit. A TEEENY amount. The highest reading I've had was around 150. I mean, sure - a good reading is a normal one, but I'm happy that i haven't shot up into the 300s like happened to a friend of mine.

I may even get out of the hospital in time for my birthday- Hooray! And I want to get my eyes checked-I'm sure I need a new prescription. Well, all in time, right?

So that's the big news here. Heading out to the main Spark pages to start reading your blogs & catching up with you! I miss reading about your lives, seeing your great pics, & cheering your successes. Happy to be back with you all emoticon
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  • MUSIC66
    I am glad you found out what is wrong with you i must be a sort of releaf. i found out on tuesday what the weird acid taste is or the course of it. it was the mobic it intitated my stomach linning so my arthritis doc took me off the medication he put me on omeprezol and he could not change the arthritis med because i have to much damage done in my joints he only totd me to take osteo pandol.
    3506 days ago
    I am glad you have a name for your malady! It is so much better knowing and hopefully getting treatment.. I too hope you get out of the hospital in time for your birthday..

    We have not planted our tomatoes yet so we need to go buy plants at the auction where we always go.. nothing better than fresh tomatoes!
    3506 days ago
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