The never ending challenges continue

Thursday, September 22, 2011

Well I have tried to enter blogs for the last couple of months but every time I did , I wasn't allowed to. So I will make a synopsis. I went on Vacation this summer to New England in August for the first ever! Visited my friend Sue on Cape Cod and her family for a week, then visited my friend Lisa in RI for 3 days and then visited my friend Tony in CT for 4 days. I had a wonderful time, I flew on a plane for the first time in 9 years and for the first time since my spine injury almost 19 years ago I did not have to use a wheel chair when I flew in the airport. I carried my bags and I walked through the airports easily on my own steam, I didn't have seizures, I didn't have any dystonia the entire time I was gone It was HEAVEN! I fell in love with New England in the summer . It is so beautiful! I would love to go there again next summer and explore it more and visit more friends who live up there including my friend Roz! who lives in New Hampshire. When I got home from New England I was scheduled to have a procedure on my heart for an ablation for SVT ( supra ventricular tachycardia ) down in West Palm Beach county on Sept 8. I was excited and hopeful that this would 'fix' the issues with my heart. Well sadly that didn't happen. I had the procedure but they did not trigger me into the SVT, so the ablation was not performed. 2 days later I woke up about 5 am to go to the bathroom and stepped out of bed on my right leg and had so much pain in the front of my calf it felt like ' fish hooks ' were there but only in the morning and then it stopped. As the week went on each morning as I got out of bed that sensation grew worse and worse and my weight climbed higher and higher by Wednesday morning the 14th of September my weight had gone from 176 the week before to 186! The sensation in the front of my calf was intense sharp ' fish hook pain ' I made an appointment to see the new internal medicine doc at the practice where all my doctors are. He said he thought it was inflammation, I had been having chest pain since before the heart procedure so he wanted me to see the cardiologist to I made an appointment to see him the next day. The cardiologist wanted me to have a stress test to check out the chest pain, and have my leg ultra sound to check for a clot but he too thought it wasn't related to the procedure . So I couldn't get my leg ultrasound until the next day, so I made another trip on my bike mind you to the practice which is over 10 miles from my apartment ( I don't drive ) the next day for the ultra sound and had my leg checked out. The tech told me to go back to the cardiologist's office because he saw a clot! I spent the next 5 days in the hospital having anti coagulant therapy injections and oral medication because medicare doesn't cover medication at home ( the injections ) and I had to be in the hospital and wait and apply for the drug assistance program and get accepted and then have them deliver the medication to my doctor's office , they finally did that Wednesday ( yesterday ) so my friend picked me up and brought me home and picked up my medication on the way home.
I am now giving myself the injections at home and taking the pills as well. Home health will be here tomorrow and will draw blood levels PT ( prothrombin time to see if my clotting time is to 2 minutes yet ) if it is I can stop the injections and stay on the pills alone ) coumadin . if not I will continue on both until the PT is to 2 . I can not exercise until my PT is to 2.
I am so glad I got my Vacation in!
My weight is back down to 174 as of this morning. It was all swelling and fluid!
I continue to meet my challenges!
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Member Comments About This Blog Post
  • PJOY17
    Thank you!
    3490 days ago
    Wow it sounds like you have been going through a lot. I will definitely keep you in my thoughts and prayers! It is a good thing you were able to go on vacation before all of those procedures. I have recently taken an interest in the New England area and would like to vacation there in the next couple of years. Well keep your head up and hang in there buddy. emoticon
    3490 days ago
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