Saturday, March 21, 2020
I know it has been a few weeks since I was here. Since we are quarantined in the house I hope to make it here more often. Brad posted a blog that got me to thinking how much harder this virus is going to affect others. Below is his latest blog. I can hear the fear and anger in his blog. I so wish I could take it all away from him.
For the most part, I’ve handled being locked down this past week and working from home for the indefinite future pretty well. It’s not ideal, but when you have Stage IV cancer you get use to dealing with inconveniences in life.
Today has been a hard day though. For chemo Monday at Saint Luke’s, I’m on my own, no visitors allowed. That is fine and at least I know my treatment here, for the time being, is set and does not appear to be at risk of being cancelled. The same is not true for my monthly visits to NYC, with the next being 4/5 for a scan followed by 4/6 for treatment. Today MSKCC changed their policy to no visitors and as anyone following the news knows, NYC is a mess with the coronavirus. For some patients, they are doing what they can to get them treatment locally and avoid coming to NYC. I need the FUDR treatments in my HAI pump to knock this cancer out, and as of this morning in a message back to us, they plan to do my treatment there on 4/6 which includes the FUDR in my pump. Unfortunately, the thought of going to NYC right now for treatment is frightening to me and that is made so much worse with the no visitors policy. I’m thankful Saint Luke’s can do the maintenance on my HAI pump. With the state of NYC and how detrimental it would be for me to get the coronavirus, we are going to advocate hard for the FUDR to be done here locally if possible or at the Siteman Cancer Center (Wash U) in STL (which actually does FUDR in the pump). With telehealth and so many virtual options available, it would shock my mind if they were unwilling to make one of those options work. I’m stressed about it all, but that does not even compare to some cancer patients who are having their treatments that are needed cancelled because of the coronavirus.
All this is to say, it’s been discouraging to see so many people out and about when I go out just to grab a coffee before going back into quarantine. This needs to be taken seriously as my life and the lives of so many others is becoming dependent on slowing this virus down so that we can get the treatment and procedures that we need done. 🙁 It’s a minor inconvenience in the grand scheme of things for anyone that is healthy and has their whole life ahead of them right now, especially from a cancer patient who has been fighting for his life for 17 months now and has come so far only to be facing another obstacle in this battle. The video below is just sad (the individual in it is a member in one of the cancer FB groups that I’m in).
The link he refers to I wasn't able to put in correctly but you might be able to cut and paste the link to watch the video.
I have finally gotten another orthopedic surgeon who agrees how badly I need to have my knees replaced. However, knee replacements are considered elective surgery. I had a dentist and a doctor's appointment this week and both were cancelled as they were not deemed as essential. Margaret has spent her week this week cancelling appointments for her doctor and when not doing this she is taking temperatures as people come in the door of the doctor's building and screening them. Makes me feel less that happy that she is exposed. She wears a facemask but I am not convinced that is so safe. Made the mistake of going grocery shopping with her this morning and met so many ignorant folks. Saw a person grab a package out of the hands of a woman in one of the carts. And you know me, I can't keep my mouth shut, I took the package out of his cart and gave him a bit of my mind. Margaret was worried I would get beat up or something, but I can't stand people be rude to others. Our Walmart had a display of toilet paper and had a store employee passing one package of toilet paper per person. What has our world turned into. And not being able to go to Mass will make tonight feel very strange. Never thought I would live to see some of this stuff. I pray it doesn't last as long as some predict. If Brad's treatment gets halted I am afraid that it will put him back to where he was. Will be praying hard for him. Hope your world isn't rocked too hard. Well, I didn't want to babble so much but most times I only have the dogs to talk to and they don't reply much! At least iti is spring and the sun is out!