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Saturday, March 21, 2020

Hello Sparkfirends;

I know it has been a few weeks since I was here. Since we are quarantined in the house I hope to make it here more often. Brad posted a blog that got me to thinking how much harder this virus is going to affect others. Below is his latest blog. I can hear the fear and anger in his blog. I so wish I could take it all away from him.

For the most part, I’ve handled being locked down this past week and working from home for the indefinite future pretty well. It’s not ideal, but when you have Stage IV cancer you get use to dealing with inconveniences in life.

Today has been a hard day though. For chemo Monday at Saint Luke’s, I’m on my own, no visitors allowed. That is fine and at least I know my treatment here, for the time being, is set and does not appear to be at risk of being cancelled. The same is not true for my monthly visits to NYC, with the next being 4/5 for a scan followed by 4/6 for treatment. Today MSKCC changed their policy to no visitors and as anyone following the news knows, NYC is a mess with the coronavirus. For some patients, they are doing what they can to get them treatment locally and avoid coming to NYC. I need the FUDR treatments in my HAI pump to knock this cancer out, and as of this morning in a message back to us, they plan to do my treatment there on 4/6 which includes the FUDR in my pump. Unfortunately, the thought of going to NYC right now for treatment is frightening to me and that is made so much worse with the no visitors policy. I’m thankful Saint Luke’s can do the maintenance on my HAI pump. With the state of NYC and how detrimental it would be for me to get the coronavirus, we are going to advocate hard for the FUDR to be done here locally if possible or at the Siteman Cancer Center (Wash U) in STL (which actually does FUDR in the pump). With telehealth and so many virtual options available, it would shock my mind if they were unwilling to make one of those options work. I’m stressed about it all, but that does not even compare to some cancer patients who are having their treatments that are needed cancelled because of the coronavirus.

All this is to say, it’s been discouraging to see so many people out and about when I go out just to grab a coffee before going back into quarantine. This needs to be taken seriously as my life and the lives of so many others is becoming dependent on slowing this virus down so that we can get the treatment and procedures that we need done. 🙁 It’s a minor inconvenience in the grand scheme of things for anyone that is healthy and has their whole life ahead of them right now, especially from a cancer patient who has been fighting for his life for 17 months now and has come so far only to be facing another obstacle in this battle. The video below is just sad (the individual in it is a member in one of the cancer FB groups that I’m in).

The link he refers to I wasn't able to put in correctly but you might be able to cut and paste the link to watch the video.


I have finally gotten another orthopedic surgeon who agrees how badly I need to have my knees replaced. However, knee replacements are considered elective surgery. I had a dentist and a doctor's appointment this week and both were cancelled as they were not deemed as essential. Margaret has spent her week this week cancelling appointments for her doctor and when not doing this she is taking temperatures as people come in the door of the doctor's building and screening them. Makes me feel less that happy that she is exposed. She wears a facemask but I am not convinced that is so safe. Made the mistake of going grocery shopping with her this morning and met so many ignorant folks. Saw a person grab a package out of the hands of a woman in one of the carts. And you know me, I can't keep my mouth shut, I took the package out of his cart and gave him a bit of my mind. Margaret was worried I would get beat up or something, but I can't stand people be rude to others. Our Walmart had a display of toilet paper and had a store employee passing one package of toilet paper per person. What has our world turned into. And not being able to go to Mass will make tonight feel very strange. Never thought I would live to see some of this stuff. I pray it doesn't last as long as some predict. If Brad's treatment gets halted I am afraid that it will put him back to where he was. Will be praying hard for him. Hope your world isn't rocked too hard. Well, I didn't want to babble so much but most times I only have the dogs to talk to and they don't reply much! At least iti is spring and the sun is out!
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Member Comments About This Blog Post
    66 days ago
  • JIBBIE49
    Like you, I've been a Sparker since '07 so I know we have been through a lot. My son, Nathan, 35 has been a Testicular Cancer survivor for 10 yrs. I know what that stress is like. I wish you well on your treatment.
    67 days ago
  • PICKIE98
    Praying for all of you. God provides all of our needs, we need to step back and think about what they are.
    It is so scary right now.
    71 days ago
    Bob, All we can do is pray. I just don't know what else to do, but to pray for my fellow men and women. I have never seen anybody be nasty in the grocery store, but I must say, that I am proud to know somebody who acted the way that you did when you saw what you did. Are people really this scared and desperate over things that we Americans take for granted, but are luxuries in third world countries? I find it inconceivable. Also, reading Brad's blog was an eyeopener.
    72 days ago
    Praying for your family and extra for Brad. I was disappointed I couldn’t finish my cardio rehab but that is nothing compared to what Brad is going through. ((HUGS))
    72 days ago
    72 days ago
    Prayers deepen and continue for Brad and your family. emoticon emoticon
    72 days ago
    72 days ago
    Keeping you and yours in my prayers!
    72 days ago
  • RAMONA1954
    I'm praying for you, Brad and your whole family. I'm reeling from my brother's death on March 12th. The Hook family is reeling. He died of an apparent heart attack after almost 6 months from his last one. I was his caregiver and am at his house
    72 days ago
  • BJAEGER307
    It sure does make me wonder what kind of society we live in. I'm glad that so far your family is ok, but with Brad I also wish there was something to make this go away for him. I shall continue to keep all your family in my prayers. God is sure awful busy but I know he hears us all.

    Please add a dear friend of ours to your prayers, her son in the mist of all this chaos was rushed to the hospital is a 2cm x 2.5 cm tumor right in the middle of his brain. We are awaiting word to find out if it is benign or not. His wife of 12 years could not even be with him as they were not letting in any visitors. He grew up with my son and they were thick as thieves as youngsters.

    I'm praying that this will be over soon for everyone's sake.
    72 days ago
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