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1/11/11 9:40 P

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Wow some of that sounds like us. William is also has a provisional mood disorder diagnosis, we suspect he is also bipolar. We just started meds this summer because he was way to aggressive and after a few med changes he is the most calm and responsive he has ever been. Earlier this school year he became quite aggressive at school(caused by add meds). He went to a shorted school day and was given a full time aide after we took him off all stimulants he has done much better. He just went back to school for the full day last week. At one point he was only in school for 3 hours a day. This is why we will be transitioning to a autism class soon(just waiting for the paperwork because we will be changing agencies). The good thing that came out of this is that they changed his educational diagnosis to autism from other health impaired(long story) so he is a bit more legally protected. We have had to fight the school district quite a bit in he last year.

KLUVSTFORMERS's Photo KLUVSTFORMERS Posts: 1,661
1/11/11 8:36 A

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my son is 15 and aspie, it took us 6 years from the first signs to get it diagnosed by this time i had learned alot, now i help at his physc. clinic because in some retrospects i know more than the docters, the one thing you need to know about tony atwood is that he DOESNT recomend medications all of his healing is done by either alternative medication or simple therapy..i met him in 2009 and hes british lives in bristal england i believe, he did have luke with him also )freaks geeks and asbergers syndome). the convention i met him at was awsome, very informative, i was leaked on to this by one of old british chat friends who knew of my intres. my son still has those massive meltdown, we are having one today in fact, over havisng to go back to school, his cshool day got increased by 20 minutes BEVAUSE the state wanted it, this is NOT going over to well lol hoping the next week will be better, i love this site, and getting so much good feeback from so many mothers like myself, A is also bi-polar, and i just turned 43 and have always had ADD but they now think i have the aspie tendiencies myself, i guess your never to opd to have it, i hope you enjoy this site, and welcome.

IT IS WHAT IT IS!!!!

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The body never lies. ~Martha Graham



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1/10/11 11:18 A

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Hi, I'm Susie. I started at the bottom of the list and started posting before introducing myself and my family. I was first diagnosed as PDD by USAF, no less in the early 1990's. Later it was changed to Asperger's Syndrome by a private shrink. My oldest (27) was diagnosed as ADD (but we all think she has Aspie traits). My son is in denial (22)but he is definately Aspie. My youngest, 17, is definately Aspie!! She used to have the autistic style meltdowns, of course in public. We had Children's Services called on us several times until her diagnosis was nailed down. I used to have to wrap my arms and legs around her to keep her from hurting herself or us. My husband's solution was to go TDY and never be home. Now the good news. Beth, my oldest, is a practicing Doula (birthing assistant). My son is struggling the most because he developed RA (Arthritus) at 21 and injured his back. His depression is pretty bad most of the time. My success story is my youngest. her therapist knew very little about Asperger's so we learned together. She is able to babysit other children (not her niece and nephew though, sibling rivalry stuff). She participates in 4-H winning 20 ribbons, 2 trophies and went to state the last two years running. She does beautifully in our petting zoo and public demonstrations. She still screams to win her point and is as bullheaded as they come.

There was very little info out in the public when this all started for me. So, we researched. Asperger's Syndrome was first noticed and documented in the 1940's in Germany by, you guessed it,Dr. Asperger. While he saw many cases of it, he decided that it was not life interfering enough to bother to treat. So it stayed off the books until the mid-1990, around 1993. Aspies were classified as kids that simply didn't fit in the norm but could cope well enough, so many of us suffered through the torments of school. There does seem to be a genetic component to the Spectrum (Autism and up). Those with Asperger's tended to gravitate to colleges as professors, scientists, NASA, and Silicon Valley. Aspies oftem marry Aspies and in the early 1990's there was an epidemic of autism in the California schools. Well, then they had to deal with the situation. For the most part, medication is ineffective for symptoms of Asperger's except for the depression that comes with knowing you are obviously not like other people. (What an understatement!) Aspies, and many in the Autism range, are often quite intellegent though it is usually focused in one or more area only. As clumbsiness is a common trait, the fine motor skill of handwriting can be very difficult. Sometimes there is a gap between head and hand. My son, Jon, can dictate better than write. Typing seems to activate a different portion of the brain and many Aspies, me included, prefer to type. It's faster and easier to correct (and read).

Your first and best resource for understanding Asperger's is books by Tony Attwood, an Australian expert. He was studying Asperger's 20 years ago when we got started. A word of encouragement. Note who I said were Aspies; scientist, professors, etc. It is believed the Edison was Aspie (the school called him retarded and his mother taught him at home). Also Einstein and Newton. Good company, in my mind!
BTW: I am one of the original group of Aspie parents who believe that vaccines do affect Autism/Asperger's even though that is not now politically correct. I'd be willing to discuss that subject in private mail. In case you havent noticed, my aspie obsession is research.

You are your child's best advocate and you know them best! Don't ever give up hope!

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CD8059241 Posts: 370
1/10/11 10:45 A

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Hello - my name is Karin and I am the mother of 2 young children (2-1/2 and 1-1/2). They are only 13 months apart - eek!

My 1-1/2 year old is having developmental difficulties but the doctors have not given him any diagnosis other than GDD, sensory issues and said they could not 'take autism off the table'. Seems like I just keep going back to see specialists over and over again and they ask me to come back in a few months.

It is very frustrating. They said they could most likely give me a diagnosis when he is 3 or 4 years old. BUT, I don't want to feel helpless for the next 2 to 3 years while they figure it out.

In the meantime, I was thinking about trying to remove gluten and casein from his diet. Shouldn't I test him to see if this is an issue first? I tried an allergy test for these and it came back OK. Any suggestions would be lovely. I'm just so confused.

DARBOYMOM's Photo DARBOYMOM Posts: 1,144
1/9/11 10:30 P

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Welcome to the team, MYANEZ93309!! Our sons are just a year apart, mine are 9 & 6. My 9-yr-old is diagnosed PDD-NOS, but we are pursuing further testing as we think it cold be Asperger's. My 6-yr-old is "normal" (whatever that means!).

I'm glad you found Spark People, and this team. I'm finding them both to be very helpful!

Marcia
Co-Leader, "Dealing with Aspergers"


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1/9/11 9:46 P

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Hi, I'm Melissa. I'm the mom to 2 boys, 8 and 6. Both are diagnosed with pdd-nos. Th oldest was diagnosed at 4 an the little one was diagnosed the next year at 3 from the suggestion of our ped. The oldest has been in special day classes full time since he was 3.5. He has learning issues also. He had a lot of problems the beginning of this year and now he will be transitioning to a class for kids with high functioning autism. The youngest started 1st grade this year and i fought to get him on an iep. We just got done with that right before winter break. He is very bright and has been reading since he was 3. He is the best reader in his class but has trouble in all other subjects. He is also has a lot of social issues. I'm sure his correct diagnosis is Asperger's but we are not worried about pursuing it at the moment. They also both have in home social skills training.

I went on weight watchers when Parker was almost 1 but quit when my milk supply went down. Since then I have been through the diagnosis of both my kids and the breakup of my marriage. I lost 10lbs this summer just eating whole foods and quitting soda. This holiday season I started to gain a little back and decided to do something about it. I still have about 40lbs to lose.

DARBOYMOM's Photo DARBOYMOM Posts: 1,144
1/1/11 7:21 P

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Hi Jenn.
I also have 2 boys. Matthew is 9 and was originally diagnosed ADHD, but his chart now reads PDD-NOS. We are pursuing further testing for possible Asperger's. Nathan is 7 and "normal" (whatever THAT is!).

I lost more than 100 pounds 3 years ago. I also let the stress of having a special needs child send me off track a bit, and gained about 30 pounds back last year. I joined Spark in June, and have yo-yo'd a bit, but hopefully will reach my goal by the end of January. Then, its MAINTAIN!!!!

I'm happy to help you in whatever way I can. You can do this!!!
-Marcia

Marcia
Co-Leader, "Dealing with Aspergers"


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JENNGINEER Posts: 8
1/1/11 3:33 P

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HI all,

I'm Jenn, a single mom to two special kids. Nick, 12, is autistic (low verbal, low-functioning but schoolable), and Ben, 8, who is ADHD/Aspergers. They are a lovable challenge, but I'm struggling with so much in the last three years since my divorce.

I've been a Spark member for a while, but fell off the program when I divorced. Now my depression is starting to lift and I'm hoping to keep it away by changing poor/bad habits. You know the ones of rewarding yourself for getting through the day by popping a sweet or two in your mouth, or being so busy that you forget to eat and try to make it up over the rest of the day...

I'm hoping to jumpstart with the Jumpstart 28 day challenge for January, but I need something more long term, for after... or if I forget. (I'm ADD myself, but the inattentive type.)

One question: I could use a single person or two to be accountable to - how can I find/arrange this?

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FOODIEMOMMY101's Photo FOODIEMOMMY101 SparkPoints: (0)
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12/31/10 1:56 A

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Thank you, Marcia! I'm looking forward to getting involved.



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DARBOYMOM's Photo DARBOYMOM Posts: 1,144
12/30/10 11:19 A

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Hi Ashley. Sorry to take a couple days to reply -- with the holidays I'm not on Spark as much as I should be. I just wanted to say that from reading your introduction, it sure looks like Holden and Sophia are lucky to have you! And you are right, they are 2 very good reasons to take care of yourself.
Welcome back!!
-Marcia

Marcia
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12/28/10 11:08 P

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Hi everyone! My name is Ashley. I've been an on-again-off-again Spark member for the last 4 years. After realizing that I was 20 pounds heavier than I thought I was, I decided it was time to be on again!

I'm 28 and a new step-mom to two beautiful children. Holden is 6 and has Autism, but is being re-evaluated because we think it may be Aspergers. Sophia is 4 (just turned today!). I've been taking my new role in motherhood very serious. I attend once a month meetings for parents of children with Autism. I'm in support groups, and next month will be starting a class on Love and Logic.

With all I have going on, it's hard for me to focus on myself, but this time around I HAVE to do it. Because now I have two extra reasons. Those reasons tell me they love me every day and hug me every night.



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DARBOYMOM's Photo DARBOYMOM Posts: 1,144
12/26/10 11:14 A

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Hi Ari.
Sounds like we have a lot in common. I have a 9-year-old son in the 4th grade. He's very bright intellectually, but has struggled from little on socially and has always had a lot of anxieties and "quirks." He received an ADHD diagnosis 2 years ago, but we have determined that to be an inaccurate diagnosis. We are waiting for an appointment in January to begin the process of testing for ASD. I'm pretty sure from all my research that his does have mild Asperger's. The first time I read a list of the "symptoms," I said "yep" to all but one or 2 for Matthew. He does have an IEP which was originally written to address the ADHD diagnosis, but it's been updated for his most recent PDD-NOS status. We'll get to the right diagnosis eventually, but it's been a real eye-opener. I cannot believe how many people I've come across whose kids (mostly boys) get an ADD or ADHD diagnosis that turns out to be either inaccurate, or they missed that it is co-existing.

I also have a 7-year-old son, who is "normal" (whatever that means!)

Sorry to take a few days to respond to your post -- Christmas is crazy at my house. Looking forward to getting to know you!
-Marcia

Marcia
Co-Leader, "Dealing with Aspergers"


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ARIANERA's Photo ARIANERA Posts: 1,081
12/23/10 11:25 P

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Heya everybody –

I'm Ari. I joined a few days ago, but have been so busy at work trying to get enough done that I can turn off the laptop and enjoy my vacation that I haven’t had time to introduce myself. Our story is pretty typical.

My older son, who is 8, has been struggling at school for a few years. We went through the school’s special ed. evaluation last year in 2nd grade, and he was deemed ineligible for an IEP as he is a bright kid and his areas of deficit were deemed insufficient to qualify him for anything except for Speech/Language articulation services (don’t get me started about meaninglessly large “normal” ranges).

The school did suggest that we place him in their co-teaching classroom for this year and we thought it was a great idea. 2 teachers, one of whom is Special Ed. trained. Approximately 1/3 – ½ the class has IEPs or 504s, but they teach the normal 3rd grade curriculum with in-class differentiation. They try to keep the class smaller – this year they only have 14 kids while the other 3rd grades are 18 -20 kids. But he is there “unofficially” and there is no guarantee of support for next year as he doesn’t have an IEP.

Over the summer, we made it through the 6+ month waiting list to see the developmental pediatrician. We walked out of that appointment with an ADD – inattentive diagnosis as the low hanging fruit, with the recommendation for additional evaluation. Finally got a slot for ADOS testing last month, and results 10 days ago when his doctor got back from maternity leave. New diagnosis – mild Asperger’s. We’re still processing the diagnosis and not sure yet if that is the whole story, as we suspect he may also have one of the writing LDs (he can READ fine – in fact he reads obsessively – but ask him to write….that’s a totally different story). So we are collecting data including getting his teachers to document how much they are needing to prompt him and plan to go back to the school district in late January to ask that they re-evaluate whether he is eligible for special ed. in hopes of getting something more solid for the future.

I’m still convinced that my son will grow to be an independent and productive adult; it’s just going to be a bit more of a struggle to get him there.

My younger son, who is 6, is also a handful. While he doesn’t appear to have the handwriting/writing/motor issues of his brother – he is also emotionally immature and still prone to overreacting to situations - not to mention the obsession of the month (his interests change regularly, but he sure does get fixated on his current topic).

So I’m glad to make your acquaintance and I look forward to getting to know you better.

Happy Holidays.

Ari


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PRAPPLE's Photo PRAPPLE SparkPoints: (0)
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12/13/10 9:11 A

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Hi!
I'm Sheila...mom to one girl, 16, two boys, 14 and 12 (soon to be 13!). My youngest has PDD, and yes, it is pervasive!!!
Happy to be here!
Sheila

TINA2016's Photo TINA2016 Posts: 988
12/8/10 9:34 P

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Hi Dani. As a wife of a man with Aspergers I can sympathise how life becomes stressful at times. And as a mum with four on the autism spectrum I can really see how you can lose your mind. Come and join us over at the Comfort Cafe for December. It is a great place where we can all unload after a hard day or rejoice after a good day.
Hugs, tina

80kg or 176lbs by January 2016.
My 30th wedding anniversary


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DCOREY33's Photo DCOREY33 Posts: 502
12/8/10 2:35 P

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Hi,
Well I am not so new really but then again I am. I joined the group over a year ago but then shortly there after I stopped logging in. I am a mom to 2 girls a 15 (almost 16) who has ADHD (inattentive type) and a 3yr old who is PDD-NOS with SPD and serious food aversions (she prefers to drink her food). My husband is also ADHD. Some days I feel like I will lose my mind LOL... I am still learning how to manage all of this my daughter and husband were diagnosed in past month and little one a year ago. I am still trying to learn the ins&outs of this stuff and I make many mistakes and get frustrated daily LOL...So I came here to get ideas on how to handle some of this.
Thank you for your patients LOL
dani

dani

This is my website. I am using this as motivation for myself to remember how far I got before I gave up again. Anyway here is the url froggiescorner.webs.com/

Don't ask me to relax...It's my tension that is holding me together....


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TINA2016's Photo TINA2016 Posts: 988
11/20/10 7:03 A

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Hi Deanna, Slimindown2010, Becca and Darboyman and welcome.
I am a mum of six kids, three with autism, all going through puberty at the same time.
This is a great team to be involved in as I have had many challenging days and there is someone there at the other end of my keyboard. So welcome and join us at the Comfort Cafe. Pull up a chair, have a coffee and a chat with some amazing people.
hugs, tina

80kg or 176lbs by January 2016.
My 30th wedding anniversary


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MKPRINCESS007's Photo MKPRINCESS007 Posts: 1,586
11/18/10 7:34 P

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So glad you are here, Marcia!

Please stop by the Comfort Cafe thread for November. It is very active, with a bunch of members posting daily to check in.

I love these teammates! :) So glad you could join us!

Believe in yourself,you were meant for greatness!

One in 70 boys are diagnosed with Autism today.


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DARBOYMOM's Photo DARBOYMOM Posts: 1,144
11/18/10 12:08 P

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Hi everyone! A friend on the "Dealing with Asperger's" team recommended I join this team. My son Matthew is 9 years old. He was diagnosed 2 years ago with ADHD & ODD. It didn't take long to figure out that there is much more going on with him. His medical record now reads "PDD-NOS," but I highly suspect Asperger's. I finally made an appt for late January at the Waisman Center at UW-Madison. I'm hoping a definitive diagnosis will help us plan better for his future and get him whatever services he can use moving forward. Looking forward to sharing and learning much from team members!

Marcia
Co-Leader, "Dealing with Aspergers"


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BECCAJEAN17 Posts: 104
11/15/10 10:53 P

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Hi all! My name is Becca and I have 3 boys. The oldest Dayton was diagnosed with autism 9 years ago but 3 years ago the diagnosis was changed to Asperger's. Josh is the middle son and he was diagnosed with Autism 8 years ago. I also have a step-son who is the youngest and has a diagnosis of ADHD combined type. Yes our household is always interesting! I'm currently enrolled at the University of Missouri and taking courses towards my Master's in Special Education with a focus in Autism. I've been happily married now for almost 3 years (hubby #2) and other than a few daily struggles we have,life couldn't be any better!

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MKPRINCESS007's Photo MKPRINCESS007 Posts: 1,586
11/15/10 9:53 P

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Hi Deanna and SLIMINDOWN2010.......so glad you both could join us here. This team has a fabulous group of supportive folks.......please come to November's Comfort Cafe here on the forum.......we hang out there most of the time. Look forward to seeing you....

Believe in yourself,you were meant for greatness!

One in 70 boys are diagnosed with Autism today.


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HOT4FITNESS's Photo HOT4FITNESS Posts: 2,747
11/15/10 5:10 P

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Hello all,
i am new to the team. My name is Deanna and I actually have a son with Tourette syndrome, who I just blogged about a couple of days ago. He is awesome. I also work as the head nurse every summer at Joshua camp, which is a camp in Kansas City for kids with TS, Aspergers, and high functioning autism. I have worked there for the past 10 years and love it!! These kids are addicting, once you serve one year they have you for life!!

Hot4fitness


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SLIMINDOWN2010's Photo SLIMINDOWN2010 Posts: 5
11/15/10 9:28 A

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Hi I am new to this group and I have a soon to be 11yr old daughter just diagnosed with Aspergers. I also have a 3yr old daughter. Both of them are the most amazing girls ever! While trying to figure out how to accept and handle my daughters AS, i feel not much has changed. I know that it has helped the teachers at school be able to help her more and hopefully give her the structure and strengths she needs to succeed. I am glad to find a group of other parents support is very important.Feel free to holler any time for a chat. Have a great day=)

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AMANDADAY63's Photo AMANDADAY63 Posts: 1,579
10/17/10 11:19 A

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Hi lynn..welcome aboard..we are always happy to expand our circle of friends..we are truly like a big ol' family here, and we talk often...whether its good news, bad news, happy, sad; whether we are frustrated or celebrating, needing info or support, whatever the reason, we tend to hang out at the Comfort Cafe over on our main group page ...hope to see you soon...
Amanda

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SLIKOLYNN's Photo SLIKOLYNN SparkPoints: (61,795)
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10/17/10 9:27 A

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Hello everyone. I have been on Spark for 3 years. My 4 yr old grand daughter classifies as a "spectrum" child in the records. In the flesh, she is the joy of my life- May I join you on this journey?

LET EVERY BREATH AND HEARTBEAT BE GOOD.


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AMANDADAY63's Photo AMANDADAY63 Posts: 1,579
10/14/10 9:43 A

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Hi Julianne...congrats to you and your son on his succeeding so well...its a testament to both of you that he is settling into college and growing up into a successful young adult!! Those days when things just dont go well will always occur, but if you can try and keep a sense of humor (and straitjacket!!)handy you will make it through minimally scathed....we are here for you if you need to vent, celebrate, chat, share...join us over at the Comfort Cafe (you can find it on our main page) anytime, there is always someone around....
again, welcome aboard..

Edited by: AMANDADAY63 at: 10/14/2010 (09:43)
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MOMMYJULIANNE's Photo MOMMYJULIANNE Posts: 114
10/7/10 3:49 P

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Hi All,

I'm a mom of a very high functioning Autistic 18 year old son. He is a wonderful young man. Graduated H.S. and is now a freshman in college.

He is adjusting to his new life so much better than we thought he would....

However, like all...he has his moments.....

Today is one of them.......

Remember "impossible" is NOT a word, it's just a reason for someone not to TRY.

"I can do all things through Christ who strengthens me" Phil 4:13


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AMANDADAY63's Photo AMANDADAY63 Posts: 1,579
9/28/10 7:38 P

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Hi Frank, welcome aboard....
please come on over to the Comfort cafe whenever you feel like meeting us all...that's our place to hang out, celebrate, complain, cry, laugh...you get the picture, right?
Again, welcome
Amanda


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MKPRINCESS007's Photo MKPRINCESS007 Posts: 1,586
9/28/10 4:39 P

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Welcome Frank! It is great to have a guy on the team...we get so few! :) I love the idea of having a man's perspective about Autism here, so I hope you post lots and provide balance to us!

So exciting to hear all your son is involved in. I just posted on the after school activity thread about this very thing, and how I am struggling at the moment to keep my son from getting immersed in his passions.

So glad you are here! Don't be a stranger!

Believe in yourself,you were meant for greatness!

One in 70 boys are diagnosed with Autism today.


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9/28/10 3:56 P

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Good afternoon. My name is Frank and I am the dad of a wonderful 15 year old with PDD-NOS. I am extremely fortunate. To meet my son you wouldn't even know that there is anything different about him. He has texture and other sensory issues with some personality and shyness issues. That hasn't stopped him from being on the tennis team, class treasurer and Senior Patrol Leader in Boy Scouts. I've been on Spark since April. I took up running in March. I now run three times a week and have lost 30 pounds since January. Pleased to be here.

Frank
Orchard Park, NY


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AMANDADAY63's Photo AMANDADAY63 Posts: 1,579
9/21/10 2:03 P

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Hello and welcome Myra....we are glad to have you as part of our diverse/eclectic group that consists of parents and relatives of those with disabilities, spouses, friends, and also those who are challenged or disabled (or differently-abled) themselves...lots of ages, different nationalities and countries too so we truly embrace everyone in the truest sense of the word....please do come visit the Comfort Cafe (over on the main page for our group), as that is where we hang out most of the time...its a wonderful place to veg, complain, celebrate, ask for (or give) help/advice/support etc....again, welcome aboard, its certainly a little less lonesome working on our health challenges when others share the journey with us......
Amanda

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9/21/10 10:16 A

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Hello, I am a sparkpeople newbie! I am looking for a community that understands the special challenges of life with kids that are disabled.

I am 40, I work full time, I have a wonderful husband and an even more wonderful autistic teenager. Life is very mundane these days and I have the waist to prove it! I have to find a way to include my family in my weightloss program because if I don't, I am not going to make it. My kid is one of those tactile sensitive autistics that won't eat much of anything I cook - especially not fruit or veggies!

I am looking forward to getting to know the group because I have been isolated for too long now and am ready to meet people to encourage myself and them. emoticon

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MYRANDIS SparkPoints: (0)
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9/21/10 10:16 A

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Hello, I am a sparkpeople newbie! I am looking for a community that understands the special challenges of life with kids that are disabled.

I am 40, I work full time, I have a wonderful husband and an even more wonderful autistic teenager. Life is very mundane these days and I have the waist to prove it! I have to find a way to include my family in my weightloss program because if I don't, I am not going to make it. My kid is one of those tactile sensitive autistics that won't eat much of anything I cook - especially not fruit or veggies!

I am looking forward to getting to know the group because I have been isolated for too long now and am ready to meet people to encourage myself and them. emoticon

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AMANDADAY63's Photo AMANDADAY63 Posts: 1,579
9/9/10 12:33 A

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hello and a huge welcome to everyone who has joined us recently....we are a very mixed group, with some of us having some level of autism ourselves (or other challenges), some of us have children with these challenges (or grandchildren, or other relatives), and some of us have spouses or significant others who are facing the daily challenge of these disorders...so, everyone is so very welcome here and we hope you stay around for a while and get to know us as we get to know you...
If you wish to meet us and hang out we spend most of our time in our virtual "Comfort Cafe", its located on our main page, we talk about EVERYTHING, its a great place to share good and bad, ask questions, laugh, cry, offer help...pretty much whatever works for you...please consider this your personal invitation, we would love to see you all there any time....and again, welcome aboard!!!

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LAURIEBOTT's Photo LAURIEBOTT SparkPoints: (0)
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8/31/10 8:56 A

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Hi I'm Laurie and this is my 3rd week on SparkPeople. My husband has aspergers. Unfortunately, he wasn't diagnosed until he was 27 (he's now 31) and we have been struggling with it ever since. He also suffers from Depression, ADHD, OCD and IED (intermediate explosive anger)

I guess the hardest part for me is that even though he is on his meds, he makes no effort to help himself. It is very stressful and I believe that most of my post marriage weight gain is from this stress. Of course having 3 beautiful children didn't help either LOL
I am also concerned because my two sons who are currently diagnosed with ADHD are showing traits of aspergers.

I joined this team for support to and from others whose loved ones are affected by aspergers.


Edited by: LAURIEBOTT at: 8/31/2010 (08:57)
¢¾ Laurie¢¾


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PUPPYSTEVE's Photo PUPPYSTEVE Posts: 15
8/28/10 6:44 A

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Hello,

I am a 33 year old mother of 2. My son was diagnosed with Asperger's when he was 5. He is now 7 and starting 2nd grade in a about a week. My daughter is 7 months now and boy did it turn my son's world upside down when she arrived. I decided to quit my job when she was born to focus more on my family and my son needs. It has been a great summer with the two of them. He really has bonded with her, as best he can, and he has really become more independent. I, on the other hand, have had my own realization. I used to think that work and stress were the reason I was so overweight. Work is gone and with it the stress that comes with a sales job, but the weight is still here. It is time for a change.

"Don't wait until everything is just right. It will never be perfect. There will always be challenges, obstacles and less than perfect conditions. So what. Get started now. With each step you take, you will grow stronger and stronger, more and more skilled, more and more self-confident and more and more successful.”
Mark Victor Hansen


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MGWOLF13's Photo MGWOLF13 Posts: 66
8/12/10 5:10 P

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Re-introducing myself. I have a son who will turn 6 in November who lives with autism. We a little girl who turns 3 next month who does not let autism stand in her way of having a big brother.

He was diagnosed in Dec. 2008. After another round of evaluations in late 2009/ early 2010 he started medication for ADHD (he is not ADHD but lacks the ability to focus). Wow Night & Day on his focusing ability and he started making great strides.

This summer he went to a Day Camp/ School for kids living w/ autism and has blossomed. We have non-prompted conversations,playing and so much laughter. We even have a few WH questions being answered!

My Motto is:
My son lives with autism - every day is a challenge; every day is a Triumph!

It is going to take guts.

"Most people run a race to see who is fastest. I run a race to see who has the most guts." - Steve Prefontaine


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JANE-0's Photo JANE-0 Posts: 695
8/7/10 7:22 P

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emoticon Hello All,
I joined Spark People March 1st, 2010.
I have lost 20lbs and have gained stamina, confidence, motivation & more.

Now I find that SP has a team devoted to parents for Autism, Aspergers ~ wow! If I was not impressed before I REALLY am now.

I just joined seconds ago and so I'm sure that I'll be meeting some of you later.

My only child age eleven has Aspergers Syndrome & is on his way to Middle School this year.

My son has been asking me questions about himself why he's different, why he perseverates on things and stems (I gave him this language). He is inordinately bright but has odd behaviours, OCD things that passed by most in Elementary School but Middle School kids will pick on him. He makes friends and already likes girls it's time he is more aware of himself & I'm in search for tools to help him become more socially aware of himself and others.

For the neuro-typical child it is a difficult enough challenge.

I recently have ordered from Borders Marketplace the book:

'Asperger Syndrome in Adolescence: Living with the Ups,Down and Things in Between'

*see book review staff.lib.msu.edu/corby/reviews/post
ed
/willey.htm


Will be looking for anyone else who has had experiences to share in reference to this.

So Appreciate!
What a Great Find I had today in finding you all.

'"Be who you are and say what you feel, because those who mind don't matter and those who matter don't mind." ~ Dr. Seuss


















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MOOMOO40's Photo MOOMOO40 Posts: 444
8/4/10 2:59 P

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Hello,My name is Teresa and I am a 40 year old Mom of two boys ages 13 and 6. My 13 year old has Aspergers/ADHD.My life can be very stressful with both of the boys and I was excited to find this group.

Edited by: MOOMOO40 at: 8/4/2010 (15:00)
Teresa
Central Time
Missouri
------------------------------
I have not failed. I've just found 10,000 ways that won't work.
Thomas A. Edison


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SONGIE's Photo SONGIE Posts: 244
7/30/10 11:39 A

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Hi, I am new to the group. I am a 42 year old mommie to two beautiful boys, ages 3 and 2. My 3 year old son has been showing some traits of being autistic, so my husband and I are in the process of learning about the autism spectrum in order to meet any needs he may have. I have been very big all my life, but never let that stop me from living to the fullest. I am finding that as I get older, though, the old body is needing some relief from the burdon of carrying 500+ pounds around everyday. Not to mention, these growing boys need a mommy who can be active and physically keep up with them, LOL!

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CD7898252 SparkPoints: (0)
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7/18/10 7:59 P

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Hi everyone - I'm Aspergers. It's always a little weird for me to see people getting support for dealing with an Aspie. I was kinda hoping to find a group of just Aspies supporting each other dealing with neuro-typicals. :D

I wish I had a guide for "this is what this means". When I have to work with women, egads, that's the worst. Men will work in a team to be the best team. Women want to be the best and show the rest of the team. I notice these sort of things all the time. People really don't appreciate it when I point it out. :-P

I'm in a really low spot in life wondering - who am I? I had a great albeit soul sucking job, that really wasn't the best but it was societally not just acceptable but GREAT. I guess that was my identity a bit. I lost my job due to my health. We ended up moving quite recently to be near better doctors who just found cancer and diabetes. Not a good combo. I'm 35. (I'm still going through tests so have little info)

So I'm here trying to lose enough weight to not be diabetic anymore and I hope if I work out a lot I'll have more energy, strength and vigor to fight the cancer stuff. Sugar feeds cancer so I can't afford this high blood sugar.

My daughter is Aspie/Autistic as well and is 13. Her and I both have a lot of hurdles but they're not the same ones. Both of my kids are exceptionally eccentric and fun to live with as is my hubby. Our lives are full of Science Fiction and Legos - cooking meals together and going to long walks in the nature park where we live now.

I've been watching the Osprey and Herons outside wondering if I have anything left to give to society. Maybe the Universe has decided to purge my program because I am no longer contributing the way I should be. So I want to find ways I can contribute again and interact with people. I just have to get out and live before its too late. I have to make the changes right now. There is no more "maybe tomorrow I'll do it, maybe I won't feel all this fatigue."

I don't have any answers on how to accomplish my "living" goal -- so you know what -- I'm just going for broke here. Just going to join some teams, maybe find a highly competitive, honest and brutal fitness buddy that will call me a wus and challenge me to some runs or something -- I don't know. I know I need help but I don't know from who or what. I know I'm scared to use a telephone and I don't talk to people ordinarily, especially about anything other than computers, science and graphic design. I am probably a hard person to "deal with" being an Aspie.

Anywho - maybe i can find something I'm looking for here. Maybe I'll make this my first blog post.

Thanks everyone for listening to my spiel.






NURSEMOMMYCAN Posts: 10
7/16/10 6:57 P

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Hi, I'm Tiffany and I have an 8 year old son with autism. I also have a 2 y/o and a 1 y/o, both boys. I am an RN on a cardiac floor, and going to work is the only break I get from my son. I weigh 178 lbs and am 5'2 so I really need to get in shape to keep up with my boys. Life is incredibly stressful as my son is violent and getting through each day without someone getting hurt is a challenge. We do have a great therapist who is working with us at home so hopefully we will see some changes in his behavior. And starting next week we will finally have respite 4 days a month. I can't wait to spend quality time with my other kids without having to drop everything to try to manage outbursts from my other son. Wish me luck!

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CHERRYFLIPFLOPS's Photo CHERRYFLIPFLOPS Posts: 2
7/11/10 2:23 P

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Hi,
I'm a mom with two of my children on the spectrum and my husband is an Aspie. Need I say more?
I was always a big swimmer and bike rider in my early years. Then I married, and shortly thereafter had some kids. My husband was diagnosed as an Aspie after a couple of our kids were.....it really explained a lot. During this stressful time in my life......I ate. Ate. Ate.
I am a candy-maker by trade (gasp) and this does not help. It kind of sucks because I'm an emotional eater come to find out....so when my kids are stressing me and my Aspie hubby is being his normal non-supportive, rigid self.....I just go into the kitchen and whip me up some faves......only problem is, my faves pack a whallop of calories. SIGH. This has been going on for many many many years. I woke up one morning, tried on a swimsuit prior to a family trip (which i never took) and cried myself sick. Despite being more or less proportionate despite my weight gain over the years....it finally caught up with me. All those years of non-support and necessary isolation due to the behaviors of my younger children and the struggle to deal with my Aspie hubby.....it took its toll.
Well....no more. It may very well wreck my marriage, but I am done. I just can't do it anymore and for the first time in 17 years I am putting myself first.....no matter how guilty I feel. I will not become this person.....this blob that I am now.
I'm not saying it's all my special needs family's fault.....after all, I made all those goodies I stuffed myself with....and chose to eat them....but I was hoping that in this group at least, that some of you might understand a little about what has happened to me. There must be someone else out there who has had similar experiences??? Who knows what it's like to always try and make life work for others and in the process.....got lost in the woods?
LOL....ok....enough of that...got carried away.
Would love to have some buddies though if anyone might want one? This is my first go at weight loss and I'm a bit overwhelmed. I'm going to try and do a low carb, high protein diet....given that I deal with insulin resistance....yet another piece of new news from my doc.......
Anyway...wish you all well in your efforts.

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CD6579904 Posts: 250
7/6/10 9:41 P

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Hi: I'm a mom to an 18 yr old with Asperger's. She was diagnosed when she was 15. Would have been nice if we had known this a lot earlier in her life, but that's ok, we have survived...:-)

I am also the administrator for a similar group called "Dealing With Asperger's". Check out my page and click on the group, we would love to have you join us.

Ladybug emoticon

WRITEITOUT's Photo WRITEITOUT Posts: 87
7/2/10 1:14 A

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Hello,
I am the grandmother of seven beautiful grandchildren. Three of my grandchildren have a diagnosis of autism, two boys and a girl. I am very involved in my grandchildrens' lives. I am also their respite provider. I also work in special education.



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BETTYBOOP103 Posts: 27
6/13/10 8:07 P

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Hi
i have a 9 yo gfcf..as am i. he is autisticish. (depends on how you want to define it.) i now weigh more than i did when he was born :( and i'm tired of it... and i know a lot of friends who do sparkpeople successfully..so here i am. i have a blog (or two.) the one where i post gfcf stuff is
http://settingofsilver.blogspot.com


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LADYLIGHT's Photo LADYLIGHT Posts: 2,289
6/10/10 11:45 A

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emoticon Cynni, My son was diagnosed with PDD-NOS Also.

Ladylight (aka) Jenny

I have lost myself, I have gone to find myself, should I return before I get back, Please have me wait!



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UNIFLAME's Photo UNIFLAME Posts: 1,671
6/9/10 8:50 A

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Hello,

My name is Cynni and I have autism. It is called PDD-NOS in Dutch but I am not sure how that form is called in English. I also have aspects of borderline and chronic fatigue. I am 28, live together with my boyfriend who has Aspergers. We have 4 cats and 2 rabbits.

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LADYLIGHT's Photo LADYLIGHT Posts: 2,289
6/3/10 5:03 P

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Hello, My name is Jenny, I have 3 children My oldest just left out of the house to start her own life on campus for the summer and this coming fall. My husband has charges of Sexual misconduct pending against him. Needless to say, We left. I have a 10 year old named Maggie Mae and my son is Autistic he is 14 and today was his last day at school. He attends the state school here in Missouri.

You can guess the stress the change of living situation we have going on. Surprisingly, He did not take it bad. Neither did my 10 yr old. The home life was very stressing and Cannon (that's his name) was always throwing fits hitting the wall throwing things screaming biting himself ect. I could go on. But things have settled down now and there are not as many fits now.

We are going to the park most days and he rides his bike and Mae plays on the playground and I walk the trail. I am starting to get off the couch. I feel better when I do.

More changes are around the corner and We will be in for it I am sure. Good to know there is others out there with the same struggles with children that are put first and are trying to take care of themselves now.

Ladylight (aka) Jenny

I have lost myself, I have gone to find myself, should I return before I get back, Please have me wait!



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NIKKILOSES's Photo NIKKILOSES Posts: 145
5/30/10 2:51 A

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Hi everyone,
My name is Nikki and I have a 4 year old son who is autistic. He is also has other developmental disabilities and is at the cognitive and speech level of a 6 month old. He walks and is getting very big and strong. We lost our health insurance a few months ago and also had to pull him out of his developmental preschool due to the school not having enough staff to tend to his basic safety and hygiene needs.
So needless to say I am stressed out beyond all belief. I am trying to get him into another school district for next year and buying private insurance.
I have found that in the last few years I have really strayed away from any social life and am looking into programs and support groups for parents in similar situations.
I am working on losing weight because I need to be healthy to take care of my family. I just joined the YMCA and try to workout when I can. I live in Washington state and am ready for the rain to end!!
I look forward to being a part of this team.


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