Group photo
Author:
SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (342,648)
Fitness Minutes: (45,429)
Posts: 32,498
8/5/16 8:49 P

Community Team Member

My SparkPage
Send Private Message
Reply
Below is a link to Celiac.com:
www.celiac.com/

This is for low fibre foods for when on a bland diet:
www.uhs.nhs.uk/Media/Controlleddocum
en
ts/Patientinformation/DigestionandurR>inaryhealth/Lowfibrefactsheet-patien
ti
nformation.pdf


This is to Orgran which is an international company and specializes in gluten free foods, along with a number of other allergies. My G/son used these products heaps for his dairy/nut/egg allergies, and my s-in-law for his Celiac Disease.
www.orgran.com/gluten-free

My hubby had a card like a credit card, that his specialist gave him. it had that he had a medical condition which required urgent use of a bathroom. This was to be shown to shop staff if he was in there and got caught short, because a lot of businesses won't let the public use their facilities.

Kris

Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


 current weight: 154.0 
213
198.25
183.5
168.75
154
SIMPLELIFE4REAL's Photo SIMPLELIFE4REAL Posts: 9,712
8/5/16 7:21 P

My SparkPage
Send Private Message
Reply
Hi Kris,
Thanks for all your suggestions. On the other thread, I mentioned that I had found an app designed for IBD patients. It actually uses the Bristol stool ranking system for the BMs. I had never seen those classifications until this morning. I think they need to add one more....pudding like consistancy!

I'm sorry to hear about your husband's passing. Thank you for being active on this team even though you don't apparently have Crohn's. It sounds like you learned a lot from caring for your husband with it over the years. I agree about the need for being consistent if trying a true elemination diet. I plan on waiting until I talk to the nutritionist and GI doc to see if they think it's something I should pursue. In the meantime, I know that most refined foods particularly those with sugar really cause me to get diarrhea and gas. Foods that I know work for me are eggs, chicken and rice, Vietnamese spring rolls and sushi. Boiled, steamed and roasted veggies like zuchinni, summer squash, peas and green beans seem to be pretty tolerable at this point too. Since I can only eat gluten-free products, I don't tend to eat much bread, but Udi's GF bread seems to be tolerable. Smooth peanut butter also is a good thing for me on toast....the jelly gives me too much gas at this point. Boiled and baked potatoes are also something I can tolerate.


I'm really lucky to have a husband that is wonderfully patient with all my bathroom needs as well as my other physical ups and downs. We have been married 10 years so he didn't know me when my colitis was so bad 30 years ago, but he has been with me through thick and thin with breast cancer, celiac and Crohn's. I bet your husband was very grateful to have you at his side during his illnesses.

Thanks again for your suggestions!

Edited by: SIMPLELIFE4REAL at: 8/5/2016 (19:23)
Kay from Tennessee



 July Minutes: 119
0
62.5
125
187.5
250
SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (342,648)
Fitness Minutes: (45,429)
Posts: 32,498
8/3/16 7:59 P

Community Team Member

My SparkPage
Send Private Message
Reply
Hi, and welcome aboard. It's great to have you here, altho' the circumstances aren't so great.

Elimination diets need to be done under strict conditions. It can take weeks and even months, to find culprit foods, so you NEED to be constant and methodical, including with your diarizing.

I would be inclined to weigh all of your food (for increased accuracy) and enter it into the Nutrition Tracker. Also make good use of the Daily Notes function attached to the tracker. Note any discomfort/pain/signs/symptoms, and the time in relation to having eaten and/or what you were doing.

When you go to your Registered Dietitian appointment, take printouts from "Today's Full Report" because this will be invaluable for the Dietitian. FAR better than trying to rely on memory, which is actually notoriously inaccurate, so can give a skewed overview.

My son-in-law (lives with me) has Celiac Disease, and my late husband had very bad Crohn's, being hospitalized for it many times, and finally had a bowel resection 8 months prior to his death (from a 4th heart attack.)

Seeing a Psychologist is an excellent move, and something that I wish a lot more Specialists would refer to for those with chronic conditions.

As far as your Stools are concerned, below is a link to The British Stool Chart. I would suggest printing it off and using it, because it can also be a very helpful tool.
static1.1.sqspcdn.com/static/f/14515
32
/22180508/1363249562587/bristol_stooR>l_chart.pdf


You have certainly been through the grinder ..... Ulcerative Colitis; Crohn's; Celiac Disease; Breast Cancer ..... none of them a minor ailments.

Kris

Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


 current weight: 154.0 
213
198.25
183.5
168.75
154
SIMPLELIFE4REAL's Photo SIMPLELIFE4REAL Posts: 9,712
8/3/16 7:45 A

My SparkPage
Send Private Message
Reply
Hi Crohnies,

I am 63 years old and had severe ulcerative colitis in my late 20's. I had my colon removed and replaced with a "j-pouch" when I was 29. Over the years, I've had about 6 complete small bowel obstructions from the adhesions from the surgery and I've had issues with what I thought was "pouchitis". About a two years ago, I was diagnosed with Crohn's much to my dismay. It is only in one spot and the doc thinks it might actually be a small amount of colon tissue that remains. I have been using Mesalamine enemas nightly since then and it helps.

I've been having a really rough time the past month with abdominal pain and I can tell something is not right. Unfortunately, my GI doc left the practice and it will be another month before I will see the new GI doc. The have also set up appointments for me with a nutritionist and a psychologist as part of their IBD clinic protocol. I find that funny since I've been dealing with this crap in one way or another for about 35 years now and this is the first time to be seeing a psychologist. Don't get me wrong, I think it's nice.....just a little late.

I was also diagnosed with Celiac disease from the biopsies of my upper and lower GI. That diagnosis was made right around the same time as the Crohn's diagnosis. I've been on a strict gluten-free diet since then. I've seen what I think is gradual improvement in terms of pain and frequency of bowel movements so that has been helpful, but I'm wondering if there are other foods that I may be reacting to. I've tried elimination diets, but I haven't really stuck to it completely enough figure out if I have other problem foods.

My thinking is that I might as well take full advantage of the appointments so I'm keeping a food/pain and bathroom log between now and my appointments. In the meantime, I thought I'd join this team for support. I've been a Spark member since 2009.

Well, that about sums up my GI history. I also am a breast cancer survivor. I had triple negative breast cancer three years ago. Treatment was tough, but I'm doing okay. One thing about having so many hospitilizations from colitis is that it made chemo, surgery and radiation seem all very doable. Those of us that have lived with chronic diseases for years learn how to cope...one way or another!

Thank you for letting me be part of this team.

Edited by: SIMPLELIFE4REAL at: 8/3/2016 (08:00)
Kay from Tennessee



 July Minutes: 119
0
62.5
125
187.5
250
Page: 1 of (1)  

Report Innappropriate Post

Other Crohn's Can't Stop Me Introduce Yourself to Team Forum Posts

Topics:
Last Post:



Thread URL: https://sparkrecipes.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x17464x64894311

Review our Community Guidelines