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PORTIA70's Photo PORTIA70 SparkPoints: (5,936)
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12/10/19 9:29 P

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I get sores in my nose but they are from the dang MRSA that constantly invades my life.

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PITTURA's Photo PITTURA SparkPoints: (0)
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2/11/09 11:11 A

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I figure I had lupus for about 15 years before it was diagnosed. i kept doing the research myself trying to connect the dots. Itching and hives was one of my first symptoms. I was told when the immune system acts up, it sparks the mast cells which cause the inflammatory hive response. I never thought the sores in my mouth or nose were anything other than canker sores or pimples (nose). My hair was falling out and breaking off. I thought that was stress. I had pleurisy and pericarditis and my GP said that was probably just a fluke...until it was recurrent. Finally I asked for the ANA test and the diagnosis came rapidly after that. So...I am glad you got diagnosed and sent to a specialist sooner than I did.

I was 1st seen by an internist because our area didn't have a rheumatologist. This past year, a rheumy finally joined the clinic and I think he knows his stuff. How do you think your specialist is doing with you?



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PAWNDY's Photo PAWNDY Posts: 431
2/3/09 12:11 A

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Welcome to the team. My daughter in law has a dog like the one in your picture. It is pregnant by a cocker spaniel. We are a little worried about that. Sorry back to the topic at hand. I am glad you have joined the team and you will learn about many types of auto immune diseases.

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STARSHINE47804's Photo STARSHINE47804 SparkPoints: (0)
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2/2/09 2:45 P

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welcome to the team!



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PAMSIE1's Photo PAMSIE1 Posts: 506
2/2/09 10:16 A

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Welcome to the team! I read your info and noticed you mentioned itchiness. Did anyone do a liver panel on you. I had a lot of your symptoms and had PBC., which led to a transplant. Just something you might check out if you haven't already. Fortunately for me I found a great dr(after 5 years of misdiagnosis) and he picked up on my symptoms quickly and led me to the right specialists.

Welcome to the team and I look forward to getting to know you better.



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MOMMA48's Photo MOMMA48 Posts: 783,770
2/1/09 12:20 P

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Hi guys! I'm a 48 year old stressed, married Mom with a teenage son, 2 cats, 2 dogs, a stressful job at a law office who experienced very strange symptoms a few years ago. I began losing weight and no one knew why. The dr. told me I had an eating disorder or something and I was just refusing to admit it. Most people and, especially on this site, would have loved to lose that amount of weight in that amount of time. I'm talking I was usually around 135 and bottomed out at 106 in about 3/4 months. I was so drained that I could hardly function, so they sent me to a specialist. After numerous blood tests, I was told I had an ANA -- anti-nuclear antibody in my blood and that it was an "auto-immune" condition. I had symptoms similar to Lupus, skin rashes, nose ulcers, fatigue, my hands would turn beet red and actually hurt to touch. Some days I could eat chocolate and be fine, the next, I could eat a chocolate chip and start itching like crazy. I was told to adjust my living accordingly and report in if symptoms worsened. Well, the symptoms haven't worsened -- that's the good news. The bad news is that I'm uncertain of when the flares decide to hit, which they do. And, especially just prior to the monthly!

So, I'm glad to have found this site and maybe I can compare my frustrations with others and we can get/share some questions and answers. As I was told, we just need to adjust accordingly and live through the flares when they come.

And, by the way, I'm now 127 pounds as it was like all of a sudden my body's chemistry changed or something and the weight started coming back. Now, I'm in the process of trying to get to 115 as, honestly, that is where I felt the best during the stages of losing the weight at first energy-wise. So message me and let's get started!

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STRESSED OUT WOMEN GETTIN' HEALTHY
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VIP-VIRTUALLY INSPIRED PEERS /teams.sparkpeople.com/VIP
KEEP IT SIMPLE teams.sparkpeople.com/KeepSimple
AUTOIMMUNE CONDITIONS teams.sparkpeople.com/AI


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