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1/26/13 12:10 P

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Good morning! Hasn't been much action on this site so I thought I'd say hello. Dealing with life takes 24/7 and autoimmune conditions require another 20 or so/7 leaving little time to mess around on a computer. I trust everyone who does spend a few minutes on their computer gives 1st priority to checking the internet for any new info about research &/or new products that they will discuss with their dr.

In the meantime, I'm all dressed up to meet D-1 & GD for lunch and it's next Sat not today. Oh well. Guess I'll work on the left-overs in the frig. Maybe I'll go to the Fitness Ctr in an effort to stay on my feet. I met my D-3 there 2x last week and tried a couple of different machines. I used her as a spotter so if I landed on the floor she could haul me up. I may be over-wt, but she is a strong substitute for a crane or bull-dozer.

I hope everyone is having a good day,
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MOMMA48's Photo MOMMA48 Posts: 776,878
1/26/13 7:54 A

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emoticon Good morning!

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MOMMA48's Photo MOMMA48 Posts: 776,878
1/25/13 8:14 A

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emoticon Hi!

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MOMMA48's Photo MOMMA48 Posts: 776,878
1/24/13 8:36 A

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1/23/13 8:54 A

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emoticon Good morning!

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1/22/13 7:21 P

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emoticon Hi!

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MEGSTURN's Photo MEGSTURN Posts: 461
1/21/13 4:12 P

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emoticon Hi!

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1/21/13 8:25 A

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MOMMA48's Photo MOMMA48 Posts: 776,878
1/20/13 7:33 A

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MEGSTURN's Photo MEGSTURN Posts: 461
1/19/13 8:56 P

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hello...good evening....

busy day here....
the prednisone is kicking in....both the appetite and the energy level...
I feel like I am waking up from a long bad dream......
I was cleaning through some cupboards today in my kitchen and it seems like 3-4 years ago that I just stopped doing anything except what I had to do....

I went to the nearby lake to walk....and noticed that there was only one moon....) there has been two for over 3 years...)...the meds are working! the double vision is taming.....!

I am so grateful.....
but I need to try harder on the "things I eat"....because my appetite is also roaring...!

weigh in tomorrow....we shall see....
over in fitness minutes this week too....! I think that is good...
tomorrow.....myasthenia Meg

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MOMMA48's Photo MOMMA48 Posts: 776,878
1/19/13 8:08 A

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emoticon Hi!

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ANNC16's Photo ANNC16 Posts: 1,699
1/19/13 7:03 A

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Hi all,

Not too good today. After the 3 hour drive home in the snow yesterday my back, hip, knees and especially my left ankle (so much time on and off the clutch) are really bad. Not venturing out of the house today unless we really have to, maybe put some food out for the poor birds this afternoon, providing I don't slip over that'll be OK.

Hope everyone is having a good day.

X

It is never too late to be what you might have been.


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MEGSTURN's Photo MEGSTURN Posts: 461
1/18/13 7:21 P

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good evening all!

had to make myself walk today...but I DID IT!

so tired this afternoon...and I thought....so go rest...
and I did...slept an hour and a half...and I could still go back to sleep now!

spent part of the day letting friends know about my diagnose....I think that is a good thing...to let them know that sometimes I may have the best intentions of doing something...and sometimes I just need to stay home and rest.
I have always been a bit "hyperactive" naturally....but it seems while my mind still wants to go and go....my body just won't. and that is ok....
will learn to work with it...!

still have a few free calories today....not too hungry...but trying to decide what I do want...
see you tomorrow....Meg

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MOMMA48's Photo MOMMA48 Posts: 776,878
1/18/13 8:06 A

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emoticon Hi!

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ANNC16's Photo ANNC16 Posts: 1,699
1/17/13 7:50 A

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Hi all,

Struggling today. It's really cold in the UK and my joints just hate it.

X

It is never too late to be what you might have been.


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1/17/13 7:15 A

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emoticon Good morning everyone!

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SUNNYDAYDREAMS's Photo SUNNYDAYDREAMS SparkPoints: (527)
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1/17/13 6:29 A

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I am diagnosed with Multiple Sclerosis and Fibromyalgia. My sweetie has Scleroderma - go figure, huh?

I do my thing, and you do your thing. I am not in this world to live up to your expectations, and you are not in this world to live up to mine. You are you, and I am I, and if by chance we find each other, its beautiful.
― Frederick E. Perl
MEGSTURN's Photo MEGSTURN Posts: 461
1/16/13 9:38 P

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sunnydreams.....what type of autoimmune do you have???

Meg

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1/16/13 7:23 P

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SUNNYDAYDREAMS's Photo SUNNYDAYDREAMS SparkPoints: (527)
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1/16/13 4:29 P

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Hi everyone - I hope you are having a good day today and I understand the ups and downs, believe me :)

I live in PA with my soulmate and our three German Shepherds on a tiny half-acre homestead where we do our best to grow our own food and walk softly on Mother Earth.

We actually both have autoimmune conditions, so I am hoping to pick up some tips for living a better life as well as some support :)


☮ & ♥ & ☼
Sunny

I do my thing, and you do your thing. I am not in this world to live up to your expectations, and you are not in this world to live up to mine. You are you, and I am I, and if by chance we find each other, its beautiful.
― Frederick E. Perl
MEGSTURN's Photo MEGSTURN Posts: 461
1/16/13 3:14 P

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hi...

just confirmed a diagnose for myasthenia gravis here....
still trying to figure out what all this means....

after 3 years of all kinds of testing which showed up nada...
my eyes finally started to collapse and my vision went double...
so..
started meds this week...
I did not realize how bad I was till now!
You have to work up to a full dose over a couple of months...but I feel great already!
God bless the doctors!

anyone else here with myasthenia gravis to share info???
I also have a thyroid out of whack ....but this could be due to the myasthenia.
off to walk...
Meg

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ANNC16's Photo ANNC16 Posts: 1,699
1/16/13 10:00 A

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Hi All,

I've been a member of Spark People for some time now, but I've been out of it for a year, so this is a new start for me.

I was dx with Fibromyalgia in June 2011 and it has steadily got worse as the time has gone by.

I am now at the stage where I require a stick to help me get around and I have a blue badge.

Ann
x

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MBMAST Posts: 1
1/15/13 9:21 A

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Hi, I just signed up for this group today. I have autoimmune thyroiditis and am insulin resistance. I need to get my act together. I was doing well with my diet and then fell off the wagon.
I will admit I have a terrible mind set. I tend to give up easily, get frustrated, think I can't do it, etc.
I'm hoping that by joining this group I will be able to get healthier and stay on track!

MOMMA48's Photo MOMMA48 Posts: 776,878
1/15/13 8:41 A

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MOMMA48's Photo MOMMA48 Posts: 776,878
1/14/13 9:19 A

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emoticon Good Morning!

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MOMMA48's Photo MOMMA48 Posts: 776,878
1/13/13 9:43 A

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1/11/13 7:45 A

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emoticon Hi!

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LADYLIGHT's Photo LADYLIGHT Posts: 2,289
1/9/13 3:22 P

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Hello I am Jenny I have had a hard time lately just been in the hospital for about a month and then they tell me I have systematic Lupus where my body attacks major organs. YIKES! How did I get here?

I read a yoga to de-stress and this is what it said: Stress has 3 levels. the alert level the resistance (I will get through this) but still stressed level then comes the exhaustion level. I over the years went through all three. Yoga says after this you will get one of 4 things.
1) Heart disease
2) Auto-immune disease
3) Thyroid disease
4) Mental illness

I seem to have gotten the Auto-immune disease in Lupus in the worst form. So I am doing all I can to de-stress. What does it matter anyways?
I am 43 have 3 children only one at home is about to become a teenager in March. Yup need to handle stress better! LOL

Edited by: LADYLIGHT at: 1/9/2013 (15:24)
Ladylight (aka) Jenny

I have lost myself, I have gone to find myself, should I return before I get back, Please have me wait!



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PURPOSEPOWER95's Photo PURPOSEPOWER95 SparkPoints: (116,531)
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1/9/13 8:25 A

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Edited by: PURPOSEPOWER95 at: 1/9/2013 (12:32)
And God shall wipe away all tears from their eyes; and there shall be no more death, neither sorrow, nor crying, neither shall there be any more pain: for the former things are passed away.

Revelation 21:4

**Throw me to the wolves I'll come back leading the pack."


Pat from the east coast


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MOMMA48's Photo MOMMA48 Posts: 776,878
1/8/13 11:10 A

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1/7/13 7:59 A

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MOMMA48's Photo MOMMA48 Posts: 776,878
1/6/13 6:50 P

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emoticon Hi and welcome, Sandy!

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MESANDEE's Photo MESANDEE Posts: 1,079
1/4/13 12:50 P

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Just stopping by to say Hello. I am Sandy and I have Diffuse Systemic Sclerosis / Scleroderma.



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MOMMA48's Photo MOMMA48 Posts: 776,878
1/4/13 7:43 A

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PEACHESAUSSIE's Photo PEACHESAUSSIE Posts: 60
1/2/13 1:09 P

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Hello, A variety of arthritis, fibro, thyroid issues/surgery are part of my daily life. I've got a wonderful Australian Shepard who keeps me on the up and up.

PeachesAussie, My WunderDog


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MOMMA48's Photo MOMMA48 Posts: 776,878
1/2/13 7:56 A

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MOMMA48's Photo MOMMA48 Posts: 776,878
12/30/12 9:18 A

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12/29/12 7:42 A

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12/28/12 8:08 P

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MOMMA48's Photo MOMMA48 Posts: 776,878
12/27/12 7:47 A

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VICTORIANGURL's Photo VICTORIANGURL Posts: 207
12/26/12 7:41 P

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Hi this is Annie. I live in Canada. I have Diffuse Scleroderma diagnosed Feb 2010, Raynaud's, interstitial lung disease, severe GERD. I am in pain most of the time...was a member on here years ago...haven't been on here since. Anyone else have sclero?

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MOMMA48's Photo MOMMA48 Posts: 776,878
12/24/12 8:16 A

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MOMMA48's Photo MOMMA48 Posts: 776,878
12/23/12 8:27 A

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POEDAUGHTER7's Photo POEDAUGHTER7 SparkPoints: (128,948)
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12/22/12 1:27 A

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Hi, I am Andrea in Texas. I have been dealing with many health issues lately. Many related to CFS and other disorders. It can be hard feeling "alone" with the problems. Pain registers in your head, and your imagination is in your head. This leads many people to say pain is ALL in your imagination. Then you are sick AND belittled. It is nice to read the support groups online, and see that I am NOT alone.

"You don't drown by falling in the water, only by staying there." pg 129 "The Spark"
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12/21/12 9:45 P

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12/18/12 8:22 A

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12/17/12 8:12 A

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12/16/12 9:07 A

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12/14/12 5:38 P

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12/11/12 9:00 A

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