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NARNIA9334's Photo NARNIA9334 SparkPoints: (30,128)
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8/30/14 3:38 P

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What kind of cheese would you like? lol Hey, whining, venting, whatever you call it. Its good to do it sometimes. Welcome Jeff. sorry for the delay. that's me.

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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JEFFJAPAN SparkPoints: (1,633)
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6/8/14 6:43 P

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Hi i'm Jeff and i've been living in Japan for 13years now. I've had low grade chronic depression since fifth grade elementary school. Now i'm 36 i still have depression and it seems to be getting worse. I was diagnosed with melas a mitochondria disease ten years ago. I was diagnosed with diabetes six months ago. I can't excersize toomuch or i get lactic acidosis..but for diabetes i need to exercise to keep fit andmaintain good glucose control. I live in aichi prefecture and the only mitochondria docs are two hours away by bullet train in tokyou and yes i'd love some cheese with my whine.

NARNIA9334's Photo NARNIA9334 SparkPoints: (30,128)
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4/3/14 12:09 P

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Hello to all the new members. emoticon

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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LARTOON's Photo LARTOON Posts: 58
1/20/14 2:10 P

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hi Rachel... I know what you mean. :(


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RACHELVP SparkPoints: (87)
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1/20/14 1:33 P

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Hi, I'm new here. I have an immune deficiency and other autoimmune diseases. I'm house-bound so I don't get to do a lot of exercise. I had lost over 100 lbs. but since I got sicker, I put back about 30 or so. I need to get back on the right track and move in the right direction.

LARTOON's Photo LARTOON Posts: 58
1/18/14 11:26 A

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Hi Jayne, Hi All. I'm also new here. Again, looking for lots of motivation to start the 2nd half of life. Need to lose 50 and on #4. Its so not easy! But I'm from MS, and now live in Canada. A new life, a new start! Cheers All, and good luck as well.

Josie

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JBREWSTER70's Photo JBREWSTER70 SparkPoints: (1,150)
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1/8/14 11:39 A

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Greetings from Houston, TX! My name is Jayne, I am a mother of three teenage boys, and wife of 17 wonderful years to my best friend. I have lost 20 lbs so far and about 50 to go. I have been dx with FMS and chronic fatigue. I've been learning a lot since I've been a member here. I think the biggest lesson I am working on right now is acceptance. That and patience. I am a people pleaser by nature so, I'm working on accepting that's it's OK if I don't get everything done when I don't feel well, Or if I run out of time. 😊
I'm glad I found y'all !

Twitter: jayneB09


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ROSSKT88 SparkPoints: (2,713)
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12/19/13 1:22 P

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Hi everyone, my name is Katie. I am 25 years old and last year I got diagnosed with Ulcerative Colitis a type of Inflammatory Bowel Disease. It got so bad to the point where in April of this year they had to remove my large intestine. I am working on keeping the weight I lost off because I was really overweight. I have two more surgeries coming up and I need to be as healthy as possible. It's been a lot to deal with but I have the support of my family and friends and that really gets me through the tough days. I have also found when I get down that listening to my music and doing a 10 min. workout can really lift my spirits. Thank you for adding me to your group and I hope we can all reach our goals, whatever they may be.

CD14358620 SparkPoints: (1,152)
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11/21/13 8:52 P

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Hi folks ~

Another severe fibro person here (and osteo and ????) Recently moved homes and starting to work my way out of a looooong flare. Have had some success decreasing pain through diet (no prepared food, wheat or corn. very limited dairy ~ who knows what's next). I need to find that balance between pushing myself to ++ goals with exercise without re-injuring myself in the process. Look forward to getting to "know" some of you. :-)

CD14346874 SparkPoints: (763)
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11/13/13 8:50 P

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Hi my name is Bonnie. I have fibromyalgia and POTS and my 2 disabilities are Tietze Syndrome and a neurogenic nerve disorder in my left rib cage. Due to all of this my soon-to-be ex-husband handed me divorce papers when I was approved for my disability...but honestly, I am so much happier without him!! My goal(s) are to move 30 minutes a day. As you all know this is a challenge. And I wouldn't complain if I lost 20 pounds in this process:0). The cold weather is upon us here in Ohio so I joined Planet Fitness. I am looking forward to starting my new life with a better me:0)

Edited by: CD14346874 at: 11/13/2013 (21:05)
CD8248021 Posts: 2,161
9/18/13 9:29 P

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Back after a mental and physical break down - health took a real set back - probably brought on by me thinking I could do it all after a first bit of good health and success in years - last year from end of May to November I lost 26kgs and felt better than I had in forever I was even up to walking 10kms a day - well being forced to return to full time work, my doctor deciding to wean me off meds she decided I didn't need and well hectic and stressful family life by the end of December the weight was alaready slowly climbing and I was averaging 2 days a week bed ridden - fast forward to June and I was gettting disciplinary action for too much absenteeism, had a bit of an emotional collapse decided nobody could help me and I was going to sulk, from June to now I have put on another 15kgs :-(

So here I am back at 130kgs and have pulled my head out of my backside - needing support and to remember slow and easy is better than going all out then falling and failing

I have chronic fatigue, fibro and all the nonsense that entails including half the people in my life telling me it doesn't exist or isn't really a condition or that I'm just lazy/fat/depressed etc

I also have had since birth bronchial issues ( get pneumonia regularly) and liver problems. Since my early 30s there have also been issues with hormonal stuff which results in some pretty cruddy times but numerous tests and meds can't seem to work out why - and amongst all of that my bowel stopped working at all and I became enema dependent - again they cannot work out why

I was up to 27 prescription meds a day plus natural stuff but as most of it appeared to be doing nothing except sending me broke I weaned myself off most of it since June and am now down to 3 prescription meds a day (apart from during TTOM when that increases as I have to take meds to make my blood clot) and am on about 5 natural supplements which are helping - including spirulina blue which is AWESOME and means I can get through the whole day at my desk job - no sick days since July which is a miracle for me :-)

So hope to get to know some cool people on here again that can help me keep positive and focussed

Deb




KRISTINA2525 SparkPoints: (50)
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7/28/13 11:02 P

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Hi,
I am brand new to sparks. I am a disabled physician. Starting in medical school, I was diagnosed with MS, chronic mono, chronic fatigue syndrome, POTS, chronic hypovolemia, Lyme disease and, most recently illness from black mold exposure.

The actual truth, in retrospect, is that I developed Lyme disease at age 17, which was misdiagnosed as various things over the years. Right about the time i was finally diagnosed and treated, i moved into a house that was full of black mold. After 10 yrs of that, which caused severe disability-I spent those 10 yrs in bed-that is finally diagnosed.

I recently moved to Dallas for treatment. Am quite lonely and discouraged.

TLICHIE's Photo TLICHIE Posts: 174
7/20/13 7:38 P

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Hello!

I'm back to sparkpeople after a while away. I've been ill with Chronic Fatigue Syndrome and Fibromyalgia for 20 years. I do what I can, but some days that's not much!

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CATMARIE1960's Photo CATMARIE1960 Posts: 801
6/27/13 8:53 A

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Hi, just dropping in to introduce myself. I'm Catherine, and am coming back to SparkPeople after a year or more absence.

I came looking for this team, not for myself, but for a cousin-in-law. She has several chronic illnesses and I am so worried about her. I'm here to learn so I can be supportive and helpful to her.

Don't wait for January first or even next Monday to start anew. Do it now!

Sexy comes in all shapes and sizes!


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MEG-NATALIA07's Photo MEG-NATALIA07 Posts: 679
6/8/13 2:23 P

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Hey everybody, I am glad to have stumbled upon this team. I have been sick for years and believe that it's more complicated than fibromyalgia and parasites... I am investigating Lyme and believe there is a strong possibility of me having it. I am doing my best to learn as much as I can and how to treat it and by whom. Thanks for being here!

GRACE. BEAUTY. LAUGHTER. REST. COMPASSION. GOOD FOOD.


I love to cook and bake. I have compiled hundreds of recipes on Pinterest: Crowd pleasers: Traditional & Lightened versions of timeless favorites, as well as: gluten free, vegan, Paleo & Grain-Free... and a ton of Scones and desserts.
pinterest.com/willdance4joy/


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PRIVATEFATGIRL SparkPoints: (554)
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1/17/13 11:19 A

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HI All I am new again to spark pages I am really serious about getting my weight and health in order I am morbid obese. I have to get control of this I need all the support I can have. I am so determine. I just marched in place for 2 mins and was so out of breathe it was ridiculous But you know what the best part about is I did it I will be joining as many teams as I can and making realistic goals for myself that I can achieve I will not accept failure anymore that is not a option for me anymore. I have a beautiful little boy that has special needs I need to be healthy to care for him. I need to begin to control the things I can . I can control what goes in my mouth. Please feel free to add me as a friend I am very friendly I need you all and just to let you guys know I have to copy and paste my intro to all the teams because I refuse to be typing all day lol Any who I am looking forward to being successful with you all

LADYSLIPPERS12 Posts: 7
12/29/12 2:45 P

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Glad to be here. I am homebound from Dec-Apr so this is terrific. I haven't had a chance to read others posts yet I am still setting things up but as you see I have plenty of time to do it. emoticon

RECHARGEREVAMP's Photo RECHARGEREVAMP Posts: 96
12/3/12 11:02 A

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Hi! I am Amanda. I am 27 years old and have a preschool aged girl. I also have Lyme disease and Rocky Mountain Spotted Fever. This is all rather new to me since I have only been battling it for about 4 months. I am currently finishing off my first herx after an ozone treatment :-P. I'm trying to stick with the Paleo diet to help with the Lyme and hopefully lose the intense amount of weight I need to. It's hard to find support here in the Southwest, but I am lucky to have amazing doctors and an LLMD. Hopefully I can make some friends here who can understand what I am going through.

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CD13343604 Posts: 149
11/24/12 10:25 P

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Hello everyone. My name is Nicole. I am an emotional and I tend to over eat. I get so depressed at times that I ether stay in bed all day or make a huge bowl of air popped popcorn or chips and I can easily eat the entire bowl. I am not even hungry but I just love food. Good makes me so sick also from all my allergies. It makes my physically and mentally sick. My mind gets all cloudy and I have these sneezing fits and paralyze in my arms and legs at times. You would think that would make me stop eating so much for whatever reason but it doesn't. I need some help here.

NARNIA9334's Photo NARNIA9334 SparkPoints: (30,128)
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11/17/12 1:30 P

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emoticon Welcome new members!

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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MOPPET4 SparkPoints: (0)
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11/7/12 10:18 A

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hi
omy gosh!! i know exactly what you are going thru. I had a vp shunt done in 2010, which left me no stamina for exersising--and,yes,food is my comfort. I''m turning into a tv addict,my family cannot understand why i am like this. let's chat often, and i would be honored to be your spark friend.





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MOPPET4 SparkPoints: (0)
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11/7/12 9:59 A

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what an inspiration you are. I had hydrocephalus'diagnosed in 2010.had vp shunt put in..still having issues with balance and memory I am 60 yrs old. My motivation to keep well is non instinctive. I also have joint and bone pain issues. let's talk often-------we need progess report from each other.I would be honored to be your spark friend.

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KARENSTURNNOW's Photo KARENSTURNNOW Posts: 30
8/30/12 4:26 P

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Hi,y'all! I have been on and off of SP for about a year and a half but am fairly new to this group. I was diagnosed with fibromyalgia about 12 years ago. In 2007, I became very ill with recurring diverticulitis. After 5 hospitalizations, I had surgery and had 18 inches of my colon removed. After that, I had to have 2 more abdominal surgeries, incisional hernia repairs. I was so sick and so weak from it all. I couldn't even walk through a grocery store. Then, in 2008, I was diagnosed with Trigeminal Neuralgia. I thought I knew what pain was after my surgeries. Compared to the Tn, surgery is a cake walk. In 2010, I went through a medically supervised 12 week nutrition and exercise program at my local YMCA . It was the jumpstart I needed. I lost 56 pounds. But in the last 6 months, I have regained 30 of those pounds. It makes me ill to think about all my hard work wasted. But I am trying again despite my issues with pain. I wanted to encourage those with FMS that exercise really does help, with the pain and especially the stiffness. (although mornings are still pretty tin-manish) I also wanted to let you know that my doc prescribed me Topamax and Baclofen for my TN but it had the wonderful side effect of greatly reducing my Fibro pain. (I am no longer on these meds so I definitely saw a difference when I weaned off of them). Maybe those meds are an option for some of you. I have to say it is so very hard to stay motivated when your whole body racks with pain. Exercise is harder, food is more comforting!

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KORCEI Posts: 21
7/23/12 7:00 A

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Hi All,

I am live Nampa, ID. I am fighting several different health problems which make exercising difficult. I know that weight lost would be good for me. I just lack any motivation to lose weight. One of my few pleasure in life at the moment is eating. So I am looking for friends that understand that when I say doing 5 minutes of stretching can put on the couch for the day in pain. It really hard when everyone around seems convinced that I all I need to is get active. I look forward to reading posts and hopefully getting some good ideas on how to do this.

Have a great and pain free day,
Korcei


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NARNIA9334's Photo NARNIA9334 SparkPoints: (30,128)
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7/5/12 6:33 P

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LILLIANH13 and Wquest Welcome to the team, we love having you.. Sorry your welcome is a little late.

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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CD4728027 Posts: 116
5/5/12 6:52 A

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Hi! I'm new and looking to find others in a similar health situation as myself so I don't feel as alone about my current health place.

I'm a 26 year old with several chronic issues, some mild and a few recently annoying. My life has been a whirlwind for the past several years losing several close family members, going straight through college and grad-school and this coming fall I will finally get to embark on my first official teaching position--in college no less. I'm excited but very nervous as my health is in a low place thanks to several conditional roadblocks.

I've had asthma and allergies since I was born and while they aren't severe they cause complications with other things. Back last summer my chronic sinus infections became so severe they would debilitate me; my face would swell so bad my eyes would be swelled shut. Now I'm in a chronic state of sinus swelling because the sinus infection stopped responding to antibiotics last fall. I have to have the FESS surgery on May 29 to finally get things out and fixed.

On top of that last fall my white blood cell count stayed out of whack for months and I was tested for leukemia, lupus, RA, and several other things. I wound up in ER one night with a doctor that luckily listened to me and sent me for a gall bladder ultrasound. My gall bladder was full of stones and severely infected (the dr's said it looked like strawberry skin when they removed it.) A month after the removal surgery my white count was more normal (still up due to the sinuses) and I felt much better.

As if that wasn't bad enough I just had emergency eye surgery in April to fix retinal holes, tears, and a partial detachment. They sealed the holes and tears and placed a scleral buckle in my right eye for the detachment. It put me off work for the rest of the school year because I was restricted from everything for the first three weeks and then I still have to avoid high infection risk areas right now.

I was doing amazing at eating well and exercising before all this hit last summer; was even up to running three minute intervals. I'm looking to get started back in a healthy lifestyle especially after my sinus surgery at the end of the month and am hoping to find someone here to help encourage me and I can encourage you.

WQUEST's Photo WQUEST SparkPoints: (0)
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4/27/12 12:58 P

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Hello, this is my 3rd day with this site in general and found your team page today. I have so many medical conditions and medications that interfere with weight gain and fluid retention, that if I listed them we would be here all day on just this 1 post! Mainly I want to get some support/ideas on dealing with fibro and exercise induced asthma issues. For me, I seem to get weaker and have so much more pain from doing almost any activity, not to mention having to follow most activities with a breathing treatment. I am caught in a circle and a mean one at that. I have no support people in my life that I can count on to help me with things or even to really talk to; everyone pretty much wrote me off a long time ago out of ignorance. I am housebound and without the internet I doubt I would even be alive. Thank God for online grocery shopping!

Every thing is possible, what slows you down is the probability factor. So why let that get in your way?


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NARNIA9334's Photo NARNIA9334 SparkPoints: (30,128)
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4/7/12 6:53 P

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Welcome everyone Glad you could join us here!

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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EILEENKNY Posts: 2
3/29/12 3:53 P

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Hi, I'm new here and on the site, although my profile says I joined in 2006. I don't remember doing that-fibro fog, I guess.
I'm 59, a longarm machine quilter with my own business in my home. I'm married to a very supportive guy who tries too hard to help sometimes. We have 2 grown kids, one of whom is married and has given us an adorable grandson.

I used to be a schoolbus driver; I got hurt on the job in 2005, which herniated a cervical disc in my spine. I had 2 surgeries, tons of PT and lots of medications. I've been diagnosed with RSD, fibromyalgia and osteoarthritis. Needless to say, I haven't been moving around much.

Rationally, I know that to ease the pain, I have to lose weight. That's my primary reason in being here. Less weight equals less pain.

I'm looking forward to "meeting" everyone; maybe even help others

CD8248021 Posts: 2,161
3/23/12 8:05 P

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Hi all I'm Deb and I was on SP a while back but due to a bit of a breakdown and health issues fell off the edge of the world for a while - but I'm back and trying to build a huge support network. I have a barely functioning bowel which they can't find any reason for, a liver that works at about half what it should, I have tendencies to get pneumonia or severe chest infections at the drop of a hat and now have Chronic Fatigue/fibromyalgia which is making all the rest seem like nothing .

looking forward to chatting with some of you, and learning and growing with all of you too

MJLADY51's Photo MJLADY51 Posts: 142
3/1/12 8:17 A

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Hi, my name is Martha and I live in St Cloud, MN. I am so glad to finally find a team that is set up to deal with chronic illness. I have a lot on my plate and I am sure some of the drugs don't help trying to lose weight. I even reduced my carbs because my husband is a borderline diabetic. This has helped some, I have lost 5 lbs but only in two months. I have sleep apnea, restless leg syndrome, peripherial neuropathy, gluten intolerance, lupus antibodies, sjournes disease, rheumatologist, fibromylgia, and osteoarthritis. I have one knee and both hips replaced. I just want the pain to go away and being tired all the time. I also suffer from clinical depression and anxiety order. Which my doctor told me goes hand in hand with having so many health issues. Only can deal with one thing at a time. I am so lucky to have a husband and children that support in the fact I do not do much. When I have a good day I tend to overdue and then pay like hell with pain and being tired.
I hope that some of you can give me suggestions. I can only walk 5 minutes a day without starting to get tired and hurting.
I hate whining but I guess we have to get it off my chest. Don't expect long messages like this to often. LOL

Isaiah 41:10 fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.




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CD8204396 Posts: 98
12/1/11 12:06 A

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Hi everyone. My name is Tanya and I live in Sioux Falls, SD. Last year, I had to stop working because the pain of my many chronic conditions had made work impossible. At that time, I had already been diagnosed with Sjogren's Syndrome, fibromyalgia, migraines, cluster headaches, hypothyroidism, and chronic fatigue. My rheumatologist is also thinking that I have psoriatic arthritis. As my boyfriend says, "It just keeps getting better." However, now it all makes sense why the treatments for fibromyalgia and Sjogren's only had minimal affects on the pain, stiffness, and fatigue.

I have had migraines ever since I was a kid and I have had cluster headaches since I was about 19 or 20 years old which is also when the symptoms of fibromyalgia and Sjogren's began even though it would take about 15 years to get a diagnosis. I have had episodes of psoriasis, but only affected small areas such as in the front of my knees and feet as a kid or my ears as an adult.

I think the most difficult part of all of it has been the gradual and quite severe loss of movement. The stiffness and pain makes even the simplest tasks difficult and often impossible. Yet, I figure the best thing I can do is to try and enjoy the things I still can and make the best of my situation. I have grown quite fond of watching the birds and squirrels on my patio.

I am so glad that there are so many teams for support on this site. It is one of the few places where I can meet people who understand how hard it is to lose weight when exercise is impossible and medications cause weight gain and other issues. I am currently about 100 pounds overweight, although I would be ecstatic to lose even 50 pounds. When I quite working, I did lose about 13 pounds. I don't think I truly realized just how much I relied on caffeine and food cravings just to get through a work day. Once I was able to rest whenever I needed, I became much less dependent on caffeine and food as a pick-me-up. In fact, I have pretty much given up caffeine altogether which is important in trying to manage Sjogren's and even fibromyalgia.

I am looking forward to getting to know the people in this team and consider any suggestions from others as valuable in helping my cope and manage my chronic health problems. Just knowing I am not alone is a big help in maintaining my sanity and keep things in perspective.

MAMAPETES's Photo MAMAPETES Posts: 34
11/16/11 10:01 P

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Hello, everyone! My name is Betty, and I live in Coos Bay, OR. I was diagnosed with Fibromyalgia about 8 years ago, when even less was known about this disease! I was put on Elavil to help, and continue taking it. When I moved here and got my new care provider, I was put on Lyrica. I tried that for about 9 months, but found the weight gain I experienced from the medication was not worth the little relief I got, so, after discussing it with my provider, I discontinued it. I also have severe muscle spasms in my lower back from an accident I had in 1972, so it is easy to over-do things. I managed to do my 2 sets of each strengthening exercises yesterday, but I feel it in my back today. Still need to do my cardio, too, but I may not make it tonight! But I still have time to get it done before bed if I can just convince myself to do it!

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CRAZEDQUILTER's Photo CRAZEDQUILTER Posts: 7
10/27/11 12:41 A

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Hi, I'm Chandra and I'm a recent transplant from Beaverton, OR to Grants Pass which is in southern Oregon.

I have a bunch of chronic illnesses and until about four months ago, didn't realize that my pain levels were wildly out of control. I thought that was just how I was supposed to feel because of the illnesses I have. However, I did mention to my doctor that the pain had been getting harder to cope with, so she did a pain assessment and I ended up on a daily regime of medications to manage my pain. I cannot even begin to explain how much my life has improved.

I think it's explained best when you look at how some days were so painful that getting out of bed, showering, feeding myself and my pets were about all I could do, and feeding myself was a real struggle if my husband wasn't able to help cook, or I was home alone with nothing that I could eat straight from the refrigerator or only have to microwave.

Now that I'm not in so much pain, I've been able to start walking again and it's been wonderful. I feel like I have my life back. Before most of my health issues hit, I was an extremely fit and active person. I may never be able to do martial arts again, or field training dogs, but I should be able to eventually walk three to five miles on an easy hiking trail with my husband. Right now I'll start out with a quarter mile being my goal and build from there.

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CTUPTON's Photo CTUPTON SparkPoints: (212,362)
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7/29/11 7:05 A

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Hi Bren! Thanks for the wonderful welcome! Chris

I have to be diligent about caring for myself. MINDFULNESS NOW. Build habits to produce success. First habit: delay eating by using a timer.
LONG TERM GOAL: Reduce A1C,BP,tryglicerides,and weight.
Founder of this team: Evening Eating Sabotage Myself Frustration ..Help! www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=51755


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JITZUROE's Photo JITZUROE SparkPoints: (254,702)
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7/28/11 8:31 P

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Hey Chris! Nice to meet you. My name is Bren and although I have a different nerve condition than you, I can completely relate to finding so much joy in getting one low pain day. It is precious and worth more than $ for sure.

ARIA also pointed me in this direction (thanks ARIA!!!), and it is so nice ot know we are not alone in our battle with our pain and health. It's so easy to fall into the mentality that our health conditions mean we should give up all dreams of getting fit and (for me) losing some of my depression weight.

We are here to support all, and I hope everyone has a low pain night- filled with some giggles
Bren

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CTUPTON's Photo CTUPTON SparkPoints: (212,362)
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7/28/11 7:40 P

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MALKS_ARIA, I have to thank you for suggesting this team. I may not post often because of the commitment to the Evening Eating Team. I hope that is OK. I will try to check in as much as possible.

I battle fatigue and body pain from trigger points and fibromyalgia. I so wish I could have some energy! When I get that anywhere from 1 day to (on rare occasions a week_-- it is heaven. Mostly I live thinking of things I want to do but not having the energy to get them done.

I am 64 and anxiously awaiting retirement (June 2012 )from teaching deaf students. I love the kids but they sure zap a person's energy! High school sciences and lately they give me more and more health classes. We are now in portable classrooms and space is very tight.

I am caregiver for my husband who had a debilitating stroke in the spring of 2006. We have a daughter, 30, who lives in another city about 3 hours away. We have a cat, Cujo, who is orange and white and big and very hairy! He keeps us laughing. We moved from a house in the country to a condo. We needed the one floor layout and love the natural setting here. Very nice neighbors.

I am loving water aerobics for exercise. Land exercises are too painful for me. Zumba in the pool is awesome. I was able to try it this summer while off from work.

Chris

emoticon

I have to be diligent about caring for myself. MINDFULNESS NOW. Build habits to produce success. First habit: delay eating by using a timer.
LONG TERM GOAL: Reduce A1C,BP,tryglicerides,and weight.
Founder of this team: Evening Eating Sabotage Myself Frustration ..Help! www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=51755


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JITZUROE's Photo JITZUROE SparkPoints: (254,702)
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5/28/11 8:26 P

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Hi Everyone! I am so glad I stumbled onto this thread!
I have a rare neuromuscular and nuerovascular disease called Erythromelalgia.
It mainly affects my arms and legs, which swell a lot and are usually kinda purple. I wear tights and pants all the time for my legs, but it's hard to cover up the hands at work : )
It's a painful disease and gets debilitating, so I am always looking for pain relief methods that others are having success with. So far ice packs are my saving grace, but it's not good to use them all the time since they damage your nerves (arg!).

Anyway, I lived in shame with this for a long time when the doctor's couldn't diagnose me, and I honestly felt like a freak. Then turning to food for comfort and being depressed about the lack of treatments did not help. The docs even put me on meds for fribromyalgia hoping it might help (didn't), but of course I tried it out .

I have not encountered anyone else like me, so seeing this on Spark was encouraging. People in pain can unite and support each other WHILE trying to lose weight- wahoo!!!
Bren

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EEYOREGRAY Posts: 14
5/28/11 2:34 P

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I'm glad to have found this group. There are so many chronic illnesses in the world today and I've got more than my share, but somehow I continue to press on despite the issues associated with these disorders/illnesses.

I know how hard it can be to live with chronic conditions and so I congratulate everyone for their determination to continue to press on through the mental, physical and emotional pain of chronic illness.

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RAVEN2FEATHERS Posts: 7,175
5/28/11 1:08 P

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Hi there ! I'm Alison from Mukilteo Washington, originally from Everett Washington, I am the mother of two adult children whom I love dearly and the grandmother of one very beautiful and very talented little girl we've nicknamed Little Ma'am, Kimberleigh is her real name.

I suffer from many allergies and many other health problems that will most likely never go away. But I'm good with that because I've lived with them my whole life and I know what to expect as time goes on.

Oh Great Spirit who dwells in the sky, lead us to the path of peace and understanding. Our lives are so short here, walking upon Mother Earth's surface. Let our eyes be opened to all the blessings you have given us. Please hear our prayers, oh Great Spirit.

"Native Amerian Prayer for Peace"
Tsalagi, Sasa Ageya


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GABBY308's Photo GABBY308 Posts: 10,915
4/28/11 1:11 P

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Hi!
I'm Gabby and also live in Western Ny as one of the other newbies just posted being from. I'm 59 and on SSD for CFS/Fibromyalgia. I also had PTSD from being abused as a child. I'm joining this group as opposed to the other Fibromyalgia groups because it's for all chronic illness. My husband suffers from severe chronic pain from 3 back surgeries. My 86 year old mother lives with us and she has osteoarthritis. They don't need to lose weight but there's a lot of stress from being the caretaker in this household and battling through my own fatigue and pain; which leads to emotional eating. I thought this group would understand if I have to vent a little


" Donít eat less; eat less often."
"I want to see what will happen if I don't give up."




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MARIAHE1 SparkPoints: (0)
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4/4/11 8:29 P

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Hi everyone, my name is Mariah. I have had fibromyalgia all of my life. While living in Alaska, my fibromyalgia was made a hundred times worse by a medical treatment that went wrong. I nearly died but as they say "that which doesn't kill you, makes you stronger.". I was diagnosed with a malignant melanoma and we moved back to the states. About 10 years ago, I was diagnosed with Osteoarthritis and a couple years ago I was diagnosed with IBS. I have a team of great doctors and today, I am much better. Needless to say, I still have bad days but I keep moving.

NARNIA9334's Photo NARNIA9334 SparkPoints: (30,128)
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3/27/11 5:01 P

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emoticon gREAT TO MEET YOU hALEY! Welcome to the team look forward to getting to know you more. emoticon

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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HALEY12793's Photo HALEY12793 Posts: 5
3/18/11 3:01 P

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.

Edited by: HALEY12793 at: 3/18/2011 (15:02)
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HALEY12793's Photo HALEY12793 Posts: 5
3/18/11 3:00 P

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Hi yall :)
My name is haley and im 18! wohooo. im trying my hardest to graduate cause of being sick and all. I have CFS (chronic fatigue syndrome), chronic migraines, POTS( Postural Orthostatic Tachycardia Syndrome), dysautonomia, fibromyalgia, anemia, mitral valve prolapse, and a brain tumor. Haha im the problem child as my mom says.
butttt anywayyyyyyy i am a very happy person or i try to be. Sorry getting to the point.... I want to lose weight and get healthy before college. But most importantly... I need to change my habits to try to benefit my health!!
But before i became ill, i played like every sport you can think of. I was extremely active. But now i spend my days in bed mostly because i cant get up. blah blah blah. idk what to say. sorry im very ADD haha.
okay yahhh thats me :D
emoticon emoticon

Edited by: HALEY12793 at: 3/18/2011 (15:05)
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IMHAPPY2BME's Photo IMHAPPY2BME SparkPoints: (0)
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3/11/11 9:39 P

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Hi my name is Monica. I was diagnosed w/fibro less than a year ago after abt 3 yrs of being misdiagnosed. I even knew I had been misdiagnosed & told my family doctor who just blew it off. So I went to a new doctor. After spending over an hour w/me conducting many tests & both of us asking question I was finally diagnosed correctly. Which is what I thought I had & told my family doctor. Grr I have learned to listen to my body after other experiences. I degenerative arthritis in my upper back, tailbone area, and knees. I have a problems w/my neck & upper back due to my ex and his lovely temper. I also have PCOS, severe depression, anxiety, and agoraphobia (occasionally). Wow! I am a basket-case. LOL No, the depression is multiplied because of the PCOS and fibro. I am 34 and never married and no children. I hope one day to find a good guy to marry and have at least one child. Since I am unable to work I watch my cousins children and I love it. Great children, but it can be challenging at times. Lately I have been doing red-light therapy for my fibro and arthritis. It has helped greatly. I just wished it helped more w/my headaches and migraines. Oh well. At least I have been able to cut done on pain meds. I am happy to be here!

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PRINCESSKAT814's Photo PRINCESSKAT814 Posts: 12
3/7/11 3:10 P

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Hi everyone,

My name is Rebecca and I'm from Western NY. I am 31 years old and was diagnosed with IgA Nephropathy in November 2008. I joined a gym early last summer and switched to a gluten free diet in order to get my disease under control. Since then, I've lost 20 pounds and my nephrologist is thrilled with my healthier lifestyle and progress. I was seeing her and getting lab work done every 3 months but since I have incorporated these changes I only need to see my neph and have the lab work done every 6 months. I am no longer experiencing nausea on a daily basis (a result of going gluten free), no longer exhausted or lethargic, and am LOVING exercise!!! I am currently training for my first 5K since high school!! Some days I feel so great that I forget that I have a chronic disease but it took me two years to realize that I needed to take control of this disease.

Have a great day everyone.

Take care,
Rebecca


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NARNIA9334's Photo NARNIA9334 SparkPoints: (30,128)
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2/20/11 1:42 P

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Hello Cindy Susie and inform55! Welcome to the team! We are glad to have you and look forward to getting to know you.

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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AUNTCINDYKNITS's Photo AUNTCINDYKNITS Posts: 58
2/11/11 6:35 A

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Hi, Everyone, I read a bunch of your introductions and want to start by saying that the world is full of suffering and brave people who enjoy life anyway or who try very hard against the odds. I admire everyone who is here trying to change their weight and their health and their lives. As for me, the whole list of diagnoses is too long to go into, but basically I have a mitochondrial disorder (my cells do not make energy as efficiently as they should) and I turn stress hormones into neurotoxins and environmental poisonings with more neurotoxic substances. Because of these problems, my brain cells get tired and I have seizures, usually 5 or 6 day, but often they cluster and last off and on for hours. In addition I have other neurological symptoms. I am homebound and have an assistant with me much of the time. My kids are newly grown; I have three standard poodles and I"ve been married 31 years. This year I gave up my car, my Segways, my ambitions to write novels and a lot of other things due to recent decline. I have had a couple of doctors misunderstand me through ignorance and think that my illness is either -psychological (I know, I know, but it gets worse), -faked, _or a psychological reaction to trauma, probably early sexual abuse. Unfortunately this diagnosis is in the electronic records of the local hospital authority so almost every doctor sees this before I see them personally. I am currently trying to be evaluated by a national expert so that my record can be cleared. I saw a psychotherapist for 12 years as I was raising my children and my health was steadily declining. If there were any psychological issues, they would be found by now. I even think my insurance company is investigating me, because if I am not as sick as I say I am, then I am addicted to benzodiapines, I am agoraphobic, paranoid, attention-seeking; I am defrauding the insurance company, I am doing a million things I am not. The sicker I get the less I am believed. I am just a regular person. Even writing this I worry is a mistake because I am so used to not being believed. So before I run out of room I want to say I look forward to a community which understands the virtues and shortcomings of the medical system. I look forward to cheerleading and to having a place to tell my victories and frustrations. To end positively, I have a great marriage and a great doctor and a few great friends and I am getting neurofeedback, and the seizures are lessening. Hurray! My left brain is more injured and my right brain is kicking in and I suddenly have a new interest in art and music and am enjoying learning guitar, writing songs, knitting, sewing, painting, photography, all kinds of new things. It's incredibly cool. See you on the boards: eat well, be strong.

Edited by: AUNTCINDYKNITS at: 2/11/2011 (07:10)
"Although attempting to bring about world peace through the internal transformation of others is difficult, it is the only way."
His Holiness the Dalai Lama


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MALKS_ARIA's Photo MALKS_ARIA Posts: 2,566
1/3/11 5:21 P

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Wow Welcome Susie (I am new too)... But my Birthday is the same as yours :) June 3 .... Hope you have a great day and spark helps you smile a bit more often.

aria

~~~~~~~~~~~~~~~~~~
aria

3 pounds at a time!! I can do it!!

Small Steps pave the way to big changes!!

No matter the obstacles, we can climb over them!


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