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INDIANABON's Photo INDIANABON Posts: 9,742
11/14/16 5:09 A

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Mary Ann, it sounds like you are managing your physical symptoms and emotions well. Fear can be as debilitating as the disease itself.

the longer I live with my chronic artery spasms and angina and the more I research and learn about it, the less fearful I am and the better I can manage the symptoms. It doesn't change the disease, but it changed me.

Good for you at becoming an encourager for your husband. I'm praying he will come to grips with his emotions about his physical illnesses too.

Bonnie
With all your heart you must trust the Lord and not your own judgment. Always let him lead you, and he will clear the road for you to follow. Proverbs 3:5-6 (CEV)

Daughters of Hope and Healing bonniewinters.com

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ALEXSGIRL1's Photo ALEXSGIRL1 Posts: 35,059
11/13/16 7:49 P

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glad you are doing better and are optimistic that makes everything so easier. good things are coming your way ,

"Experience is not what happens to a man. It is what a man does with what happens to him."~Aldous Huxley


Because I love you-Mick St. John _moonlight
A women must not depend upon the protection of man, but must be taught to protect herself. Susan B Anthony

Joanne


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11/13/16 11:48 A

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I am being more optimistic I think. Nine years ago this month was when my life changed drastically forever when I developed a rare disease that was trying to destroy me while doctors were trying to find out what was wrong and treat me, not just my symptoms. Having high fever uncontrollable with chills so hard I was getting exhausted and so much more. That lead to some of my problems I now have and there could be more. Compared to November 2007 I feel wonderful and I am getting better at pacing myself and getting more done. Congestive heart failure is not one of the things I thought would happen.

My husband has health issues also and sometimes he is so fatalist about his life I really have to remind him of just what he can do, not dwell on what he can't do.

Mary Ann -
West Central Arkansas.

Live each day to the fullest, believe in yourself.

Each day is the first day of the rest of your life


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ALEXSGIRL1's Photo ALEXSGIRL1 Posts: 35,059
10/29/16 8:05 P

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thank you mary ann thank you !!!

"Experience is not what happens to a man. It is what a man does with what happens to him."~Aldous Huxley


Because I love you-Mick St. John _moonlight
A women must not depend upon the protection of man, but must be taught to protect herself. Susan B Anthony

Joanne


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INDIANABON's Photo INDIANABON Posts: 9,742
10/29/16 2:35 P

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Good advice Mary Ann!

Bonnie
With all your heart you must trust the Lord and not your own judgment. Always let him lead you, and he will clear the road for you to follow. Proverbs 3:5-6 (CEV)

Daughters of Hope and Healing bonniewinters.com

Daughters of Hope and Healing Community on Facebook:
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10/29/16 11:24 A

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Yesterday I went to a memorial service for a lady who worked at the hospital I work call at. I would see her when I would have an I had to go do ultrasound in that section of the hospital. We would always talk. She would remotely unlock the doors for me. The section where OB and Babies are is locked for security purposes. Her death shook me.

I knew she had a couple of health issues but she just recently had a stress test that was normal. Then she had a massive heart attack and couldn't be saved. I know that my major heart problem won't show up on a stress test or ECG. My PSVT will but my CHF showed up on a specific blood test and an echocardiogram showed which part of the heart was damaged. My legs had to start swelling big time before the specific blood test was done.A few years ago after ending up in ER with severe chest and going to ER from the fitness center. I had to stay overnight. A hospitalist suspected I might have CHF. It just goes to show that sometimes it may take a while for some types of heart damage to show up in test. Just don't give up going to regular doctor appointments and when something changes definitely check it out..




Edited by: MAZACK at: 11/1/2016 (21:13)
Mary Ann -
West Central Arkansas.

Live each day to the fullest, believe in yourself.

Each day is the first day of the rest of your life


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INDIANABON's Photo INDIANABON Posts: 9,742
9/7/16 10:04 P

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Mary Ann, Joanne's right we all have our bad days. I did a lot of crying in church and at home when I was first diagnosed with coronary microvascualr disease. One of the things that helped me to cope, was to find a support group of people with a similar diagnosis and to learn all I could about my variety of heart disease. It was a place I could talk about my fears and get my questions answered. The more I learned about it, the less afraid I became and I began to encourage others which helped me tremendously!

Bonnie
With all your heart you must trust the Lord and not your own judgment. Always let him lead you, and he will clear the road for you to follow. Proverbs 3:5-6 (CEV)

Daughters of Hope and Healing bonniewinters.com

Daughters of Hope and Healing Community on Facebook:
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ALEXSGIRL1's Photo ALEXSGIRL1 Posts: 35,059
9/7/16 8:48 P

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hugs Mary anne we all have our bad days We are all lucky we can still walk a lot of heart patients cant, we have to try hard with what we are given ,

"Experience is not what happens to a man. It is what a man does with what happens to him."~Aldous Huxley


Because I love you-Mick St. John _moonlight
A women must not depend upon the protection of man, but must be taught to protect herself. Susan B Anthony

Joanne


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MAZACK's Photo MAZACK SparkPoints: (84,099)
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9/7/16 8:10 P

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Sunday while at church for some reason I started thinking about my heart when they were having some special prayers and all I wanted to do was keep from crying.

Mary Ann -
West Central Arkansas.

Live each day to the fullest, believe in yourself.

Each day is the first day of the rest of your life


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INDIANABON's Photo INDIANABON Posts: 9,742
8/29/16 7:19 A

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Glad you're here!

Bonnie
With all your heart you must trust the Lord and not your own judgment. Always let him lead you, and he will clear the road for you to follow. Proverbs 3:5-6 (CEV)

Daughters of Hope and Healing bonniewinters.com

Daughters of Hope and Healing Community on Facebook:
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.hope.and.healing


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MAZACK's Photo MAZACK SparkPoints: (84,099)
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8/28/16 9:43 P

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Sounds like a team to join.

Mary Ann -
West Central Arkansas.

Live each day to the fullest, believe in yourself.

Each day is the first day of the rest of your life


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ALEXSGIRL1's Photo ALEXSGIRL1 Posts: 35,059
8/17/16 7:14 P

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hi mary ann welcome to the team . were here every day plugging along. just drop by and talk sometime so we get to know you better,

"Experience is not what happens to a man. It is what a man does with what happens to him."~Aldous Huxley


Because I love you-Mick St. John _moonlight
A women must not depend upon the protection of man, but must be taught to protect herself. Susan B Anthony

Joanne


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INDIANABON's Photo INDIANABON Posts: 9,742
8/15/16 11:58 P

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Hi Mary Ann, That's why I love Spark People - there is so much encouragement here. I broke my leg on Christmas Day and recently learned that the fracture was not healing. The doctor ordered a bone growth stimulator which I have to use every day, but the treatment has been triggering a lot more coronary artery spasms and angina. So I'm using a lot of nitroglycerin right now to help keep my arteries open. I have been so encouraged by friends here during this time.

Nice to get to know you!

Bonnie
With all your heart you must trust the Lord and not your own judgment. Always let him lead you, and he will clear the road for you to follow. Proverbs 3:5-6 (CEV)

Daughters of Hope and Healing bonniewinters.com

Daughters of Hope and Healing Community on Facebook:
www.facebook.com/daughters.of
.hope.and.healing


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8/15/16 10:24 P

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I was just diagnosed with diastolic dysfunction (one type Congestive heart failure), In reading about it I learned that I could also I could get both types of congestive heart failure.. According to my doctor 2 of the Medications I was already on helped me not go into CHF sooner. One med. he increased the dosage. I was on dyazide and I was changed to a stronger diuretic, 40 mg Lasix. The medicines I was one were for my blood pressure and one was to control my heart-rate.

I was diagnosed with high blood pressure in my late 20's and a cardiac arrhythmia in my 30's, I hope you get information that eases you mind some,

Mary Ann -
West Central Arkansas.

Live each day to the fullest, believe in yourself.

Each day is the first day of the rest of your life


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INDIANABON's Photo INDIANABON Posts: 9,742
9/29/15 7:30 A

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Hi Gretamay! Ditto what Joanne said. It is scary to find out you have a heart condition.


I started with a heart attack at age 49. Then 2 years ago I was diagnosed with non obstructive heart disease, coronary artery spasms and microvascular dysfunction. It is very scary to be told you have something wrong with your heart. The whole first year after I was diagnosed, I wanted to run to the ER each time I had an angina flare up. I was reading everything I could find on my condition and I found a support group which helped a lot.

I found a lot of support and information here: www.inspire.com/ They have a network support groups for all sorts of medical conditions Womenheart was the one that was most beneficial to me.

Spark People helps me with weight loss and diet management and the Inspire site helps me to find information specific to my heart condition. I don't know what I'd do without both of these resources!

We're glad you're here!




Bonnie
With all your heart you must trust the Lord and not your own judgment. Always let him lead you, and he will clear the road for you to follow. Proverbs 3:5-6 (CEV)

Daughters of Hope and Healing bonniewinters.com

Daughters of Hope and Healing Community on Facebook:
www.facebook.com/daughters.of
.hope.and.healing


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ALEXSGIRL1's Photo ALEXSGIRL1 Posts: 35,059
9/27/15 7:43 P

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hi my name is Joanne and I have a pacemaker my daughter has one also. She got her's when I she was 4 I got mine when i was 40 my doctor warned me I would need one since i was a teenager but i made it to 40. My daughter sara was not supposed to have the same condition as me in fact she is worse. But we still are lucky as we both led very active lives and you cant tell we have one sometimes we forget, i don;t know anything about your condition but I do know having a heart problem can be very scary . Please find all the info you can about your condition call the doctor back and get answers . the more you are informed the less afraid you will feel welcome to the team we are a small group but always looking for others, to join. keep doing your best and try to find some little happiness in each day

"Experience is not what happens to a man. It is what a man does with what happens to him."~Aldous Huxley


Because I love you-Mick St. John _moonlight
A women must not depend upon the protection of man, but must be taught to protect herself. Susan B Anthony

Joanne


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GRETAMAY SparkPoints: (620)
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9/27/15 1:30 P

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I am new to this board, but I am so happy I finally found a support group composed of people with heart issues too! I was diagnosed last week with systolic heart failure, EF is 23%. I am scared and sad mostly. I have been cutting back the sodium, tracking my food and exercising. I am scared I won't live to be 30. I am also scared I might not be able to have a baby because of my weak heart, and I have wanted to be a mom for a long time. My doctor wouldn't go into if pregnancy would be a possibility in the future, so I am still unsure about what the future holds for me.

All I know is that I need support right now. I have never wanted to live a long healthy life more than I do right now. I am scared and sad that won't be a possibility. I guess I am wondering if anyone has gone through this. Or if you have any hopeful success stories I would definitely appreciate those too! I hope to make some good supportive friends on this board, right now it feels as though I don't have many people who can relate to what I am going through.

Thanks! I hope you have a great weekend!

�It takes as much energy to wish as it does to plan.� ~Eleanor Roosevelt


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