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JENNIW70's Photo JENNIW70 Posts: 5,763
10/31/18 12:02 A

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San Jose Girl (do I remember your name is Cathy?),

You are not alone for sure! I'm sorry you have had to go through so much pain in your neck. It is so frustrating to literally have that pain in your neck all the time, isn't it? emoticon I understand. I'm glad you chimed in....

Cold makes my pains worse too. I really don't like the cold of the winter here in the midwest. Husband loves cold weather. He'd love to live in Minnesota. I told him if you are willing not to see me eight months of the year, when I will be hibernating from the cold, that's fine. haha

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"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31

"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


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SANJOSEGIRL's Photo SANJOSEGIRL Posts: 524
10/28/18 8:58 P

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I am glad to hear of someone else who has had degenerative disk disease in their neck. I never thought that hearing of someone else with the same problem helping a person but I just feel less alone in the world with this. Silly but true. I had 3 neck surgeries 10 yrs ago and the surgeon told me that it would probably last only 10 yrs or so and degenerative disk disease was a good reality-also no more surgery was an option. At that time. 10 yrs seemed ages. Now it is here and I am in constant pain.
Fibro especially in my arms and legs is worse if I get cold- Winter is not a good friend. Dr advised I move to AZ or Hawaii--no luck there! I am not a person who worries. I let my husband take care of that for me so stress is minimal in our lives. Give it to God is our moto and he comes through for us 100 percent so far emoticon
Sorry I find of hogged things here
Snjosegirl

Edited by: SANJOSEGIRL at: 10/28/2018 (20:59)
"One thing you can be sure of, things are gonna change." Bryan Duncan

Whatever you do, whether you eat or drink, do it all for God's glory. 1 Cor 10:31


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HIPPYJONJON's Photo HIPPYJONJON Posts: 160
7/18/15 5:36 P

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Well, no one knows better than I do where I hurt, and I'm not big on giving away my money for anything that makes me hurt worse, so I quit going to chiro and I have never gotten a massage, other than hubby trying, it seriously does not register with my brain that it is suppose to be helping.
CFS sounds very much like my fibro foggy days, it would be very difficult to feel like that all the time.
Thank you for your answer.
🐛

JENNIW70's Photo JENNIW70 Posts: 5,763
7/18/15 3:56 P

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No I don't. I think some others may here, but I'm not sure.

I actually don't have fibro, but the sister-illness, Chronic Fatigue Syndrome. I do get the aches and pains, but not like the level of fibro. On the other hand, the fatigue/exhaustion is just crippling for me!

I went to a massage therapist once (it was as part of a teaching session where he was teaching new students, and they were "practicing" on me.) I have a lot of neck pain and headaches from degenerative disk disease in my neck. At first, it seemed really helpful, but the next day and for several days afterward, I was miserable in pain.

I do go to a chiropractor regularly and that seems to help, especially with the headaches. Everything just costs so darn much money though. emoticon

Sounds like you just work on yourself, or do you go to a massage therapist or chiropractor too?

Co-leader Christians with Fibromyalgia
Co-leader Chair Exercise Team


"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31

"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


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HIPPYJONJON's Photo HIPPYJONJON Posts: 160
7/13/15 8:06 A

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Thank you for the article on myofascial release. I find that to be true with my severe pain. If I can knead the area the picture was pointing to, I get a lot of relief. Not permanent, but enough to be able to relax a little. Do you go to a massage therapist?

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JENNIW70's Photo JENNIW70 Posts: 5,763
6/21/15 12:47 A

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Here's another one on mindfulness:

www.chronicfatigue.about.com/od/alte
rn
ativetreatments/fl/Mindfulness-BenefR>its-for-Fibromyalgia.htm?utm_source=
ex
p_nl&utm_medium=email&utm_term=l
ist_ch
ronicfatigue&utm_campaign=li
st_chronic
fatigue&utm_content=20150619


Co-leader Christians with Fibromyalgia
Co-leader Chair Exercise Team


"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31

"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


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JENNIW70's Photo JENNIW70 Posts: 5,763
6/21/15 12:08 A

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Saw this article today on myofascial release for fibro. Results are promising for many.

chronicfatigue.about.com/od/alternat
iv
etreatments/a/Myofascial-Release-ForR>-Fibromyalgia.htm?utm_source=exp_nl&
ut
m_medium=email&utm_term=list_chr
onicfa
tigue&utm_campaign=list_chro
nicfatigue
&utm_content=20150619


Co-leader Christians with Fibromyalgia
Co-leader Chair Exercise Team


"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31

"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


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JENNIW70's Photo JENNIW70 Posts: 5,763
6/13/15 11:12 P

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emoticon Since summer weather is upon us, I thought I'd share this article on surviving heat sensitivity. I am more troubled by cold than heat, but I know heat is a problem for some, and some suffer from sensitivity to both!

"Warm or hot weather can be taxing for those of us with fibromyalgia (FMS) and chronic fatigue syndrome (ME/CFS).

Many of us have temperature sensitivities to either heat, cold or both. Getting overheated can lead to an increase in a host of symptoms.

We don't know a lot about this symptom, but it's believed to be a result of dysfunction of the autonomic nervous system, which deals with homeostasis. Our bodies just don't seem to regulate temperature properly.

This isn't a symptom that's easy to treat, so we have to learn to manage it on our own. We need to figure out how to alleviate our overheating, but the best thing is to keep from getting too hot in the first place...."


Here is the link for the rest: chronicfatigue.about.com/od/Day-to-D
ay
-Life/a/Warm-Weather-Survival.htm?utR>m_source=exp_nl&utm_medium=email&utm
_t
erm=list_chronicfatigue&utm_camp
aign=l
ist_chronicfatigue&utm_content=20150612


Co-leader Christians with Fibromyalgia
Co-leader Chair Exercise Team


"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31

"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


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JENNIW70's Photo JENNIW70 Posts: 5,763
6/13/15 11:04 P

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Found this article on Sensory Overload...what it is and how to cope with it. Here is an excerpt:

"Hypersensitivity is believed to be a core mechanism of FMS and ME/CFS.

It means that our bodies react strongly to all kinds of input noise, bright or flashing lights, crowds of people, smells, chaos, or multiple things competing for your attention...

When you begin to feel overloaded, the best thing to do is get yourself out of the situation and go somewhere quiet. If that's not possible, you may be able to take some deep breaths and calm your body and mind. Some of us learn how to mentally talk ourselves down from that state, but it takes time and practice..."

To read the rest of the article, go here: chronicfatigue.about.com/od/symptoms
/f
l/Sensory-Overload-in-Fibromyalgia-aR>mp-Chronic-Fatigue-Syndrome.htm?utm_
so
urce=exp_nl&utm_medium=email&utm
_term=
list_chronicfatigue&utm_camp
aign=list_
chronicfatigue&utm_content=20150612


Co-leader Christians with Fibromyalgia
Co-leader Chair Exercise Team


"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31

"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


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JENNIW70's Photo JENNIW70 Posts: 5,763
6/13/15 6:04 P

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Please share what has helped you personally....

Suggestions for those new to fibromyalgia on how to cope and manage symptoms....

Articles about suggestions, tips and helps.

emoticon emoticon

Co-leader Christians with Fibromyalgia
Co-leader Chair Exercise Team


"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31

"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


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