Zoey Week 74: January 22 - 28, 2012
Monday, January 23rd was Zoey's 19th Birthday so Grandma and I packed up a weeks worth of cards and gifts and headed north to City of Hope. It was a rainy day and driving in the rain in California is like driving in a blizzard in North Dakota. Fortunately, Dawn's boyfriend Don took the day off work and came along to drive when things got really bad. Thankfully there were no accidents in front of us so we had no significant delays. Returning during rush hour was a challenge as workers left L.A., heading for homes in the suburbs.
We arrived while Zoey was taking her second walk of the day. She was on her third lap and did one more for good measure.
The hospital staff brought in a "Happy 19th Birthday" banner, sang the appropriate song, and left a gift of about a half a dozen gift cards which were really appreciated. Most of the staff stayed out in the hall because they weren't "Sanatized" and couldn't come in the room.
Her spirits were pretty good, she smiled several times during our three and a half hour visit. Of course she grumped whenever we wanted to take a photo. Even though the disease and pain were obvious, it was the best day of the week for everybody. Lunch was brought in from the Spaghetti Factory. Grandma brought confetti cupcakes, carrot cake cupcakes and ginger bread cookies that Zoey had requested. No one ate all three types of Grandma's goodies. But it was nice to have options.
Zoey and Mom
The remainder of the week Zoey's condition was not as good as Monday. She had several fever episodes. The Dr. said the fever was probably some odd virus and not related to any lung problems. Some peaked above 103. She received platelets at least 5 times, and blood at least twice. Some new pains were noticed and the percent of oxygen in her blood got low so she was required to wear an oxygen tube most of the week. She did get her Rituximab on Thursday and IVIG on Friday. Her white blood count dropped from 1.9 on the weekend to 1.4 at midweek, but picked up a few tenths of a point by Friday. As she began to feel worse towards the end of the week the white count improved.
By Friday her lungs sounded worse so the C.T. Scan scheduled for next week was moved up to Friday afternoon. She didn't feel well enough to walk either Thursday or Friday, but her appetite improved late Friday. Friday night was the first night without a fever for several days. She slept quite well. On Saturday she began the walking again. A great step forward. The C.T. Scan didn't show any significant new problems, but it was noted that the fungus infection was more widespread then it was at the previous C.T. Scan two weeks ago. Fungus is difficult to treat and takes a long time to defeat.
The road just got a little longer and a little more difficult this week.
Grandpa Dave 1/28/12
417 days in the hospital since diagnosed August 25, 2010
132 days at City of Hope
123 days since Bone Marrow Transplant
UPDATE, TODAY THE 29TH SHE WAS MOVED TO ICU!! PLEASE PRAY FOR HER