Update on Zoey
Tuesday, January 31, 2012
Zoey Week 74.5: January 31, 2012
Week 74 ended saying that Zoey was up and walking on Saturday and the weeks report was sent out on an almost positive note. Later Saturday evening/night her fever returned and breathing became labored even with the supplemental oxygen. Taking Tylenol and ice packs on her legs and arm pits with damp cloth on her forehead her fever continued to climb. The Pediatrics, night time on call Dr. spent most of the night in a chair outside Zoey's room. Says something about the care she's getting and staff dedication. Early Sunday morning she was moved out of the pediatrics unit into the Intensive Care Unit as a precaution. Initial treatment there consisted of a different device to assist breathing which helped initially, but after an hour or two the oxygen level in her blood tanked, her blood pressure dropped and her condition became "Critical." Mid-day on Sunday a decision was made to intubate her so she her oxygen level could improve and her heart wouldn't have to work so hard. She was also set up for dialysis. X-rays and C.T.Scans of lungs and abdomen revealed a lot of fluid in her lungs but no other significant problems. A diuretic was prescribed and a catheter was inserted to help eliminate fluids from her system.
Dad arrived Sunday morning on his scheduled week to hang out with Zoey. Since there is only room for one parent in ICU Mom came home to get some sleep. With all that had been going on she'd been about 48 hours without any sleep. For Dawn, the only thing more difficult then watching Zoey suffer was not being there during this difficult time.
Monday her condition improved to "Stable." At the time the breathing tube was inserted a feeding tube was also put in place. She could get oral medications and nutrition even when she was sedated. She was heavily sedated much of the time. No need to suffer.
As of today, Tuesday, her condition is improving. All labs, have been negative for infection. She had a Bronchiotomy yesterday. It's where cultures are taken with a swab in her bronchial tract. I don't have the results of that yet, they probably have to be cultured. The source of infection and cause of the fever continue to be a mystery. While her fluid output is greater then the fluid intake, fluid in her lungs continue to be a problem. They doubt that the current fungus is the cause. This morning her Dr. was "Pleased with her progress." They have not begun dialysis since her blood pressure is still quite low and initiating dialysis would lower it even more while risking potentially other significant problems. The risk is not worth the reward. Her kidney functions have improved since Sunday.
Many Bone Marrow transplant patients make at least one trip to ICU during their treatment. This has been a real scare and of course is not over yet. All prayers and everything you do for Zoey and our family is appreciated.