Zoey Week 81: March 11 - March 17, 2012
"Great victories are won with courage, greater victories with love,
but the greatest victories are won with patience."
On Sunday at the beginning of the week Dad, left to go back to Seattle after being with Zoey for a week and Mom left her home in El Cajon to return to Zoey's side at City of Hope. Thankfully this was another week of very small steps forward, a few lateral moves, and NO BACKWARD STEPS. The progress is very, very slow, but progress is progress. She gets poked, prodded, awakened, and examined really often. She has a sign on her door that says, "If I am napping when you need to see me - Dr's, PT, OT, etc Please wake me up!!! Naps are overrated & I can seep later, Thanks - Zoey." Sounds like she's willing to do her part.
Physical Therapy and Occupational Therapy begin with a traditional Indian or Eastern greeting called a "Namaste." After that, it's all work. Zoey is working really hard, through a lot of pain to become mobile again. The current advice is that by putting pressure on the bones, enduring the pain, that will help reduce the pain in the long run. By midweek she, with the help of Therapists and a walker, was able to get out of the room, a short distance, into the hall before returning to sit in a chair. Friday she did the same, but with a lot less help from the Therapists. Doesn't sound like much since hospital rooms are small. But it's progress. We are thankful for progress.
With the help of Bone Marrow stimulating drugs her WBC was high enough so she could get both Phosphoresces treatments this week. They discontinued her blood pressure medication and one of her anti-fungal drugs this week along with a reducing steroids and a few other drugs she's been taking since entering ICU. More signs of progress. Zoey's food intake includes some healthy snacks. Before we get too joyful and overconfident, her blood thinner and insulin injection locations in her abdomen require close monitoring. Looks almost like modern art.
On Saturday Grandma and I had the opportunity to stop by CoH and check on Zoey's progress for ourselves. We were impressed. Her voice was very strong. Her vocabulary was great and her responses during our conversations were quick and "Spot On." What a great and thankful day.
Leg pain, sugar levels, water retention, weight control, and vital organ health continue to be concerns at this time.
Actually, getting her Bone Marrow working full speed is the NUMBER 1 NEED.
Just because this road is getting really long, don't get discouraged and think that your prayers and support aren't needed and appreciated.
Grandpa Dave 3/17/12
466 days in the hospital since diagnosed August 25, 2010
181 days at City of Hope
172 days since Bone Marrow Transplant
Many of the full reports of Zoey's Journey have been archived on the website of the New Apostolic Church in El Cajon.
If you've missed some of the reports, check it out. There is a link there to reports going back almost a year.