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Zoey Week 90: May 13 - May 19, 2012

Wednesday, May 23, 2012

Zoey Week 90: May 13 - May 19, 2012


On Sunday Dad left for Phoenix and Mom returned to Kaiser (KP) Los Angeles. There was more traffic on the route to KP then there was to CoH. Bummer. The neighborhood is really urban and folks are warned not to walk out of the hospital after dark. To get into the hospital there is security and screening, visitors must wear a photo I.D. Keeps everybody safe and secure.

Not much change for Zoey this week. She continues as a patient in Intensive Care (ICU). A few days were better than others, but no real pattern of improvement. Towards the end of the week she required less Oxygen, a good sign. She was TNP (No Food Allowed) the entire week. All her nutrition came by way of I.V.'s. Seems likely that the possible cause for her current situation might be:

(1) The Graft Host disease (GV/HD) may be attacking her intestinal tract.

(2) There may be micro perforations in her intestinal tract.

The procedures to determine the specific cause are too invasive to perform at this time. So, they are treating both possibilities. Since Zoey doesn't do well with Steroid treatment, they've begun a new drug that requires frequent blood testing to determine it's level in her system. It's toxic. Can't have too much present in her system and too little doesn't get the job done. For the perforation possibility they are giving her several antibiotics and the "No Food" diet that will give things time to heal.

They are continuing to develop a plan to deal with Zoey's pain which probably stems from a spinal condition related to Osteophrosis. A lengthy MRI scheduled for early midweek, was postponed several times. The facility is really busy. First attempt was about 4:00 in the morning. A later possible window of opportunity was 5:00 in the afternoon, then 9:30 or so in the evening. It finally took place from 11 - 1 Thursday night-Friday morning. Results showed some disk compression. Early next week there will be a consult between the Transplant Specialist and a Spinal Surgeon to determine if Zoey is a candidate for a new spinal procedure. They want to see if a procedure called a "Vertebroplasty" might be a good course of action. It is far less invasive than open spine surgery and involves, basically, inserting a needle into the cracks in the bone and filling them with a cement to repair and strengthen the area. If the spinal disc compression is too great this may not be an option. At any rate, she has been cleared for more strenuous Physical Therapy immediately.

Zoey could use some help here.



The trial her Dad was working on in Phoenix ended on Wednesday and he left for home in Seattle. As mentioned last week, there were several issues with his work in Seattle. Don't know when things will allow him to get down to L.A. again.

Think I'm going to start making lists too. Not sure what lists, but "Hope" and "Prayers" will certainly be among the first two. We appreciate your Prayers and Support.

Thanks a 1,000,000.


Grandpa Dave 5/19/12

13 days at Kaiser L.A.
232 days at City of Hope
284 days at Kaiser S.D.
529 days in the hospital since diagnosed August 25, 2010

234 days since Bone Marrow Transplant

Just a friendly note: Many who get these updates are getting them 2nd, 3rd, 4th or more down a chain of email. When someone in the chain has a vacation, computer meltdown, or a too busy week, your chain may be broken. You will not get that weeks report. I'd urge you to bookmark the site below where the updates usually appear within a day or so.

Also, many of the full reports of Zoey's Journey have been archived on the website of the New Apostolic Church in El Cajon.
If you've missed some of the reports, check it out. There is a link there to reports going back over a year.

http://www.nacfirst.org/Zoey
/

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  • JIBBIE49
    http://www.youtube.com/watch?v=-pEk
    CbqN4uo

    Watch the HBO documentary "THE WEIGHT OF THE NATION" now on YouTube. IT has four parts.
    3345 days ago
  • SLIMMERJESSE
    You know, I can't imagine what parents go through when they watch their child
    suffer for so long and so hard. It's very
    sad, and I have continued to keep her
    in my prayers. Thanks for the update,
    Jetta.
    3348 days ago
  • INBRAZILFORNOW
    Sending prayers.
    3348 days ago
  • SAFETYSUE
    Wow, I will keep her in my prayers!
    emoticon emoticon emoticon
    3348 days ago
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