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Diabetes Burnout

Thursday, January 11, 2018

I have read some blogs the last few days that are from family members and friends frustrated with family members who are not taking the best care of their diabetes, or who are having something they like but may not be healthy for them. Please know I understand your frustration as I cared for my parents with type 2 diabetes and I have type 1. This is in no way to put anyone down but to maybe offer another way to look at things sometimes.

Diabetes care is a 24/7, 365 job. Diabetes type 1 or 2 affects every aspect of your life. I am Type 1 and also have Gluten Intolerance. Many Type 1s also have Celiac Disease and have to be GF. GF foods tend to be higher in carbs as sugar is used to make it more palitable. I am learning to make many of my own foods from scratch and making them more healthy. It makes it very hard to eat at a friends home, go to a restaurant, or social eating events. You can feel isolated.

When you take insulin you have to carry your meter, test strips, and insulin with you everywhere. Also something to counteract a low blood sugar if necessary. You need to check your blood sugar before and after exercise, before meals & sometimes after, when you are sick blood sugar checks are even more often and Insulin doses have to be adjusted.

For any diabetic any type of infection can raise or lower your blood sugar so you have to watch it more closely. Colds can turn to pneumonia or systemic infections more easily, elevated blood sugars can cause, nerve damage in hands, feet, arms, legs, eyes. Changing a medicine can affect your blood sugars and affect other medicines and insulin or oral medication dosage.

Please realize this is not a complaint but just some facts everyone does not realize. Basically diabetes affects every part of our lives in some way. It is not just food and medicine. We understand the risks for complications and do not want to get them any more than you would. Sometimes though balancing diet, meds, other medical conditions, exercise, work, school, and social and family life becomes overwhelming. You wish if even for 1 day you could just be a normal person. You don't want to take another pill or injection, sit out activity because your sugar is too high or too low, walk without pain in your feet from neuralgia etc.

I have had Type 1 for 20 years. Each year as my body ages I have to do more to try and keep my blood sugars under control. All of us can do everything we are told to do, at any age and our blood sugar can still go out of control. It is not our fault but it happens. We still can feel guilty and wonder what we messed up.

Please before you think we do not care. Put yourself in our shoes for a week. Take a small box or purse, or carrier (approx: 8"L×2.5"W×2.5"H) put a pen in it, a small compact and a 2 lip balms. This is the size and approx weight of my meter case, meter, lancet device and test strips. Carry it with you everywhere you go. Set your phone, watch or other alarm to remind you to check your BS before each meal and before bed. Imagine poking your finger to get blood each time the alarm goes off and then taking oral medicine or give your self an injection each time also. Each meal think about what you are going to eat. Are you picking up that great blueberry muffin, or Creme Donut for breakfast? Is that Latte really going to help you? Your at the gym and you check your sugar but it is over 200. Exercise at this point can raise it even farther and so you have to go home til another day. Or your sugar is low. Do you have a healthy snack to eat or drink? You wait 15 minutes to recheck your sugar and make sure it is over 110 or what the Dr tells you needs to be. You exercise and have to check it again to see if low again. For lunch friends brought in cheese, crackers, cup cakes, chocolate cake, chili, chimichongas, soda (not sugar free), Sweetened ice tea, cold cuts and cheese, pasta salad, cookies. What do you chose to keep your sugar with in range. You are invited on an all day hike with friends, pack your back pack to have everything you need to keep you from having low blood sugar, to correct it if it happens, first aid for everything that normally could happen, blisters, bug bites, cuts, sun screen,etc., water or drinks to keep you hydrated. Your meal and snacks for lunch. You see where I am going.

This gives you just a small idea of the choices we make everyday and what it is like. But remember for us it does not end in a week. It is a lifetime. Walking in our shoes for a little while can give you a different way to see us, approach us with your frustrations with us or our behavior, and to understand somewhat where we are.

I know we all appreciate the care and support of our family and friends and know that you love and care about us. Please keep coming back. We need your love and understanding.
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Member Comments About This Blog Post
  • UNDERGROUNDGEEK
    Very well put. I was sometimes impatient with my mom & managing her diabetes. Now that the shoe's on the other foot, I understand better.
    668 days ago
  • BECCABOO127
    I couldn't have said it better. Diabetes burn out is real. We struggle with it. The body does what it wants to do sometimes, and we must carry on.

    Sending plenty of hugs and understanding. I am type 2.

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    1101 days ago
  • JANET552
    We live this in my house. My husband had Type 1 diabetes, 40+ years and he has celiac disease so we have a gluten free house. Well, not exactly, since I still eat foods with gluten but I don't cook that way anymore. I can remember having to leave restaurants because we could not be seated soon enough since he took a shot before leaving home. He no longer does that. Now he brings along what he needs and takes a shot after eating.

    We should never judge another unless we've taken a walk in their shoes.
    1103 days ago
  • KOHLRABIGIRL
    Thanks for sharing!
    1104 days ago
  • OKBACK2MEAGAIN
    My youngest son has been type1 since he was 16. He was the only one of his friends that had to send in yearly medical exams to the Government to prove he was well enough to drive. This went on for years. He has done remarkably well keeping his levels in range. Even though a cold or flue can reek havoc with the levels. Does he occasionally eat food that he shouldn’t, yes. Don’t we all!!! Really, if we think about it, is that cookie, piece of cake any better for us? I know that complaining about what they eat is based on love and concern, but does that really help? Does it help you? Darren is looking forward to the day he can get an implant to scan for his levels. It is coming.
    1104 days ago
  • TRINASFITLIFE
    Yours is worse than mine, and mine is still bad enough!! Even getting to goal weight and getting blood sugars with my Diet and Exercise will still ALWAYS be a lifelong battle. This year, I'm committed to daily exercise. Exercise tends to bring my blood sugars down. I'm only 46 though. Who knows how it'll be years down the road. I may lose my battle being medication free. I'm almost there now, but I'm going to FIGHT to see if it's possible. One way or another, 2 hours of exercise a day is my lifetime diabetes prescription, even if I need meds in the future.
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    1104 days ago
  • ARTJAC
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    1104 days ago
  • SHENZOSPEAKS
    Well said! I didn't view this as making excuses but more as just stating the reasons. Thanks for the reminder from a Type2.
    1104 days ago
  • NOMORECLOUDYDAY
    I am thankful he is still with me and better.
    1104 days ago
  • NOMORECLOUDYDAY
    Thank you for a wonderful blog. My husband has type 2 and for several years he was in denial. He felt fine. Why should he test? Then he landed in hospital with blood clots in lungs. They tested. It was a wake up call for him. I have never ....
    1104 days ago
  • 1CRAZYDOG
    You've nailed it. Type 2 here, so All I can say to you is I know you've got it even more difficult!
    1104 days ago
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