MARYJEANSL
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MARYJEANSL's Blogs

Latest MRIs
Wednesday, October 23, 2019      3 comments

Gosh, I haven't posted anything in a very long time! Not really my intention, but I get busy, and my perfectionist tendencies keep me from starting something I don't think I can finish and do a good job on. So here goes a brief update. Da... Read more
Autoharp Vacation
Monday, July 01, 2019      6 comments

We had planned a short holiday, as soon as Danny's doctor said it was OK, to the east coast, for a couple of reasons. One was to attend the Mountain Laurel Autoharp Gathering in PA, quite near to my old home, the house that was my mother's, and... Read more
Maybe not so bad...
Sunday, June 23, 2019      6 comments

Danny's trip to the ER turned out to be somewhat anticlimactic, oddly enough. To me, a seizure, especially when his brain/spine MRI looked fantastic, indicates serious trouble. But maybe not. Dr. Whiteway wanted me to take Danny to the ER, fi... Read more
Really bad news
Friday, June 21, 2019      7 comments

Just when things seemed to be going very well, when Danny's MRI had been clear (18 days ago), and he was tolerating chemo with no real problems, the bottom fell out. Today he got up, went into the bathroom and locked the door, and a few minutes... Read more
New Danny Update
Sunday, June 16, 2019      3 comments

I am still not doing a particularly good job at updating people about Danny. However, I am doing better than I had been, so I am giving myself at least a little credit. I left off the last blog (May 18th) with Danny getting one steroid p... Read more
Danny Update
Sunday, May 19, 2019      6 comments

I have been terrible at updating on how Danny is doing. I really, really need to get back on Caring Bridge, and I hope to do so tomorrow. (Of course, I have been saying that for a couple of weeks, and still haven't done it, but maybe putting i... Read more
Noticing who a person is and not what he/she looks like...
Saturday, April 20, 2019      6 comments

I haven't blogged in a while, and those who know me know that I am going through the hardest thing any parent can go through - watching my son die slowly and being unable to do anything to help him. It's hard to even write about. But somet... Read more
Sad Sack Day
Tuesday, March 26, 2019      5 comments

I am in a very dark place right now, and not doing very well at getting out of it. I am facing the loss of my son, which is so devastating that I almost am losing it completely. My own health is at risk, although I almost don't care, and I can... Read more
Good News and Bad News
Saturday, January 12, 2019      7 comments

It has been so hard for me to find time to blog lately, that I have all but stopped. Only when something really good or something really bad happens do I decide it's important to write about it. I'm writing for myself as much as anything. ... Read more
Bad News
Sunday, December 23, 2018      4 comments

I have been promising myself that I would get around to blogging about the really horrifically bad news I got two weeks ago. Unfortunately, it's a long story. I'll try to be brief. Five years ago, when Danny was diagnosed, I asked to spea... Read more
Life goes on...
Sunday, November 25, 2018      3 comments

I haven't blogged in a while. I never seem to be able to make the time. But since I seem to be too sick to do anything requiring physical effort, I thought I would update a bit. Danny is continuing to do well, and is still NED (medicalese... Read more
My Eulogy
Saturday, June 23, 2018      11 comments

My brother, sister, and I, are all going to speak tomorrow at our mother's memorial service. As one way to save a copy that I can't possibly lose, I am copy-and-pasting the eulogy that I am going to give tomorrow. I hope I can get through it w... Read more
Death and grieving
Sunday, June 03, 2018      3 comments

It turns out that the hospice nurses were overly optimistic about how much more time my mother was likely to live. After her stroke, she came home paralyzed on one side and unable to talk, but able to swallow soft foods and with some periods of... Read more
My Mother
Wednesday, May 23, 2018      7 comments

On Monday night around 11, my sister called me to tell me that our mother had had a stroke. Mom hasn't been very well for some time. Last year she had several brief hospitalizations for different things - dehydration, infection. We all felt t... Read more
F/U MRI - Good News
Wednesday, April 25, 2018      3 comments

Danny's two-month follow-up MRI was scheduled for Sunday, April 15th. My siblings couldn't believe such a thing would be scheduled for a Sunday. However, since Dr. Whiteway had somehow forgotten to put the order in the system for the follow-up... Read more

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