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1965KAREN's Photo 1965KAREN Posts: 3,563
8/29/19 11:53 A

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I am very sorry about the news you have received. You have been given lots of wonderful support here. I have daily pain and I am learning to fight the pain and fight the depression it can cause. I am worth the effort. Trying to give myself a better quality of life. One step, one sometimes small movement at a time. You've got this. Not everyone handles bad news the same. It can be the way you handle the storm, that makes all the difference. Stay inside because it's raining or go outside and stomp in the puddles!! I hope you stomp through your storm!!

“What you eat in private will show up in public.” ~Unknown
“Don’t dig your grave with your own knife and fork.” ~English Proverb
“Don’t eat anything your great-great grandmother wouldn’t recognize as food.” ~Michael Pollan
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8/15/19 6:09 A



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I am sorry to hear that you are potentially facing this health issue.

The sister of a guy who used to work for my late husband had/has lupus, (as does their mother.) For a lot of years AFTER diagnosis, the sister worked in a large pot-making factory - where they hand make large planter pots etc. out of clay. She did a lot of heavy work there, and apart from occasional flare-ups, managed really well. Their mother didn't seem to be impacted by it much at all, except that she had to keep well covered in the sun. (New Zealand sun is one of the most harsh in the world re UV rating.)

Hopefully if your diagnosis comes back that it IS this, then you too will find you are able to cope just as well once you have gotten used to it.

Hugs,
Kris xxx



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I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


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-JAMES-'s Photo -JAMES- Posts: 13,980
8/14/19 11:45 P

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AURAINE051,
lupus is an auto-immune disease, where the body attacks itself.

I have an auto-immune disease myself, I have ulcerative colitis. Perhaps an auto-immune disease where the part of the body being attacked is more restricted.

I want to give you some hope. After decades of anti-inflammatory medications I finally found that eating better really helped. It took months, but my body slowly healed itself, so it wasn't eat healthy for a week and you feel better, no, it was very slow, really about 3 months for me to say, hey, I'm not 100%, but I'm better, and about 6 months to say I'm almost normal.

So don't go off track with diet, like ice-cream will somehow make you feel better, ... in the long run it won't. Eat real food. Veggies, meats, and although I don't, perhaps some fruits. But eat real stuff, things that your distant relatives from 200 years ago would recognize. A box of fruit loops ... they wouldn't recognize. Then give it a lot of time.

Edited by: -JAMES- at: 8/14/2019 (23:47)
James
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NIGHTGLOW's Photo NIGHTGLOW Posts: 4,213
8/14/19 11:07 A

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Hugs and blessings to you. I hope you are being very gentle and loving towards yourself right now (and always).

As others have said, slow and small is the way to go - focusing first on what you need to do to relieve pain and manage this diagnosis. Are there things that work to gently stretch your body and relieve pain at the same time? Of course, your medical team will have the very best advice.

I would just encourage you to treat your body as a dear friend who is suffering and give her all you can to help her. It's so easy for us to see our bodies as enemies, especially with a tough medical diagnosis.

Keep reaching out and wishing you an easy path forward.

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"Lasting happiness cannot be found in pursuit of any goal or achievement. It does not reside in fortune or fame. It resides only in the human mind and heart." - The Book of Joy








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NEED2MOVE2's Photo NEED2MOVE2 Posts: 1,669
8/6/19 1:40 P

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7/30/19 12:53 P



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AURAINE051,

I'm sorry to hear about your diagnosis for lupus, but this does not mean your situation is hopeless.

I give all new members one piece of advice and it's this,"Don't look at good health or weight loss with an all or nothing mentality". if the only healthy thing you did for yourself today was drink 8 glasses of water, that's still a step in the right direction.

Just start slowly. you take baby steps literally and figuratively.

Start by setting some simple goals. Example, if you're not eating 6-9 servings of fresh fruit and veggies, set a goal to eat 2-3 servings each day for one week. if you're not drinking 8 glasses of water, set a goal to drink 2-4 glasses each day for one week. if you have been sedentary, don't start with an hour of exercise, set a goal to take a 30 minute walk each day for one week. Once you've achieved these goals, you do them again or set new ones.

Setting simple goals is how you SLOWLY ease into a healthy set of habits.

Rome wasn't built in a day and neither were you. Take things slowly and you will achieve your goals !


SPARK_MERLE's Photo SPARK_MERLE Posts: 9,256
7/30/19 12:19 P

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Hi AURAINE051!

I am sorry to hear about your health issues and wish you all the best as you work through that diagnosis and learning how to treat or manage symptoms. You are right that it can all be hard. But, it sounds like you are headed in the right direction with getting back on track. I always find the best thing is to not overwhelm yourself as you get started or restarted. Pick one or two small goals and focus on those until they become routine/habits. Then add another goal into the mix or increase one you already achieved. Slow and steady truly is the best approach when working on lifestyle changes.

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Keep in touch and let us know how you are doing or how we can help keep you on track.

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~ Merle

"I am only one, but I am one. I cannot do everything, but I can do something. And I will not let what I cannot do interfere with what I can do."
Edward Everett Hale
AURAINE051 Posts: 8
7/30/19 10:01 A

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I have been off track with my self the last few weeks. I found out that I may have Lupus. And my body hurts. so I have not stayed on track with the diet. Now I need to get back on track. And I have to restart the plan again. Having depression and body hurting is hard. But I need help to stay on track.

Thank You

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