Message board topics
Reply Create A New Topic Subscribe to this Discussion
Community Leader community leader photo Community Leader
ARCHIMEDESII is the moderator for this forum.
Author:
SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (317,129)
Fitness Minutes: (44,702)
Posts: 30,972
12/6/19 6:10 P



My SparkPage
Send Private Message
Reply
@MRSLIVINGWELL - the OP has a severe health condition requiring dialysis. As a result she is also on severe restrictions with various things such as Sodium, Potassium, Phosphates to name but a few. The only way of eating she needs to follow is that prescribed by her medical team including Renal Dietitian. As an example, you mention potatoes. At least one of the foods you mention as a substitute is on her restricted list.

Kris

Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


 current weight: 154.0 
213
198.25
183.5
168.75
154
MRSLIVINGWELL's Photo MRSLIVINGWELL Posts: 540
12/6/19 4:37 P

My SparkPage
Send Private Message
Reply
I gave up cheese and dairy four years ago when I started to follow the McDougall Plan to reduce my high cholestrol (not helped by statin). I found some recipes that I use now in place of cheese. You have to be careful about nondairy cheeses because they have a lot of oil and calories in them. The two recipes I like and use on things like pizza are: Jill McKeever's Cheeze sauce and Brand New Vegan's Cheeze sauce. These are made mostly with things like oats, potatoes, carrots, onion powder, etc..

We have been discussing these things in our team. Come join us to learn how to replace your cheese with good substitutes. I was a total cheese head and don't miss it now!

Mrslivingwell
McDougall Plan Coleader

It's not about perfect, it's about effort. Jillian Michaels


Total SparkPoints: 8,947
8,500
8,874
9,249
9,624
9,999
SparkPoints Level 10
EOWYN24241's Photo EOWYN24241 Posts: 5,283
11/22/19 4:28 A

My SparkPage
Send Private Message
Reply
Latest update on those black shorts!!!!

They finally fit!!!!!

Still a little snug, but they fit!!!!!

I am wearing them now!



I will repost this pic on my blog! Seems I can't rotate it here!

Edited by: EOWYN24241 at: 11/22/2019 (04:29)
Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
EOWYN24241's Photo EOWYN24241 Posts: 5,283
11/19/19 4:22 A

My SparkPage
Send Private Message
Reply
Thanks, James for your thorough research. I will have to look up the levels of potassium & phosphate of common foods that I encounter. Looking up levels on the internet is useful but sometimes, not relevant to the local foods here, I'd have to do more thorough searching.

I am now going to the cinema & eating out much less often in order to save money. I am also determined, no matter how tempting, to stop buying new clothes! I have more than enough anyway! And I don't need to dress up. I am not some big corporate figure that needs office clothes. Nor am I a socialite that needs evening dresses or need a new dress at every function like some celebrity.

I suppose I am more fortunate in a sense that I still have a small pension, so I won't starve. Some dialysis patients have to pay for every single thing, and that is REALLY tough!

Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
-JAMES-'s Photo -JAMES- Posts: 13,995
11/18/19 10:57 P

Community Team Member

My SparkPage
Send Private Message
Reply
EOWYN24241 (Elaine),
sorry about your employment situation. I've been through some unemployed times in my life too, ... it was very stressful for me.
- - - - - -

I meant to look at your dietary guidelines earlier, I just got busy. I didn't forget. Here was what you posted for yourself:

Sodium : less than 2,000 mg per day
Potassium : 2,000 to 3,000 mg per day
Phosphate : 800 to 1,000 mg per day
Protein : 75 g per day
Fluid : 500 to 750 ml per day

- - - - - -
POTASSIUM:

I use a site called nutritiondata to look up the nutrition of all kinds of things, and to figure out daily recommendations on all sorts of things too. I'll start with a baked potato, not because I ever eat one, but because I can find the normal daily suggested potassium amount.
nutritiondata.self.com/facts/vegetables-an
d-vegetable-products/2770/2



You can look at that page and see 1600 mg of potassium, and they think it is 46% of an adults daily needs, ... a little math and about 3500 mg ( 3.5 grams) is what they think. But with kidney issues I can see 2000 mg or less being reasonable, lets say 1000 mg. Yes its lower than most, but it probably means avoiding high potassium foods.

- - - - - -
SODIUM:
Just looking up plain salt:
nutritiondata.self.com/facts/spices-and-he
rbs/216/2

and a little calculation, ... that site thinks about 2400 mg of sodium is the daily needs. So 2000 mg or less is not super low. Probably no extra salt added to foods.

- - - - - -
PHOSPHOROUS:
A cup of cooked chicken meat:
nutritiondata.self.com/facts/poultry-produ
cts/703/2

has 319 mg of phosphorous, which they think is 32% of a healthy person's daily needs. So they think people need around 1,000 mg a day. So 800 to 1000 is pretty normal really.

- - - - - -
PROTEIN:
On that same chicken meat information:
nutritiondata.self.com/facts/poultry-produ
cts/703/2

it thinks the 43.4 grams of protein is 87% of ones daily needs, so about 50 grams is ones daily needs. 75 is higher, but not terribly high, I'd say OK as 50 is really a minimum.

- - - - - -
Conclusion ... All the the recommendations for you are really meeting your basic needs, and not going overboard on anything. I see it as being marginally restrictive on salt and potassium, with most of the restriction being fluid intake.

Edited by: -JAMES- at: 11/18/2019 (22:57)
James
Alberta, Canada


All time highest weight : 217 pounds

Starting weight : 195.0 pounds (June 7, 2012)
Final weight : 168.2 pounds (July 23, 2013)


 current weight: 169.0 
217
204
191
178
165
SPARK_MERLE's Photo SPARK_MERLE Posts: 9,271
11/16/19 10:53 A

SparkPeople Team Member

My SparkPage
Send Private Message
Reply
Elaine,

I am sorry to hear about the job. It is never fun to lose a job under any circumstances.

50% seems like a lot to have to pay back to the church if you sell through them. Do you have the option to try out craft shows at other places where the fee may not be so high? Or any online selling? I'm probably not saying anything you don't already know about; but, hoping you find something soon.

Best wishes.

~ Merle

"I am only one, but I am one. I cannot do everything, but I can do something. And I will not let what I cannot do interfere with what I can do."
Edward Everett Hale
CHICAGOHOPE's Photo CHICAGOHOPE SparkPoints: (26,438)
Fitness Minutes: (65,492)
Posts: 930
11/16/19 9:59 A

My SparkPage
Send Private Message
Reply
I'm sorry to hear about you losing your job, it always comes as a shock even when you know it is coming.

Think of it this way, you have learned some good skills, you've learned that you can do the work. Now promote yourself. If there are local businesses, go to them and bring a resume and ask if they have any part time work. Since it is the holiday season maybe you can work retail and get some cash during the holiday season. Take what you can, when you can.

You can always start a small Etsy store selling your crafts on the side, that way you have time to create them.

There are a lot of possibilities, Just have to take a breather, update your resume, and look.

Hopefully, you put away some money for the rainy day.

And BTW, there are a lot of us that are not "spring chickens" (myself included) that are still working 14-18 hr days, (I do) because it is what we have to do to pay the bills, have medical insurance, and put a roof over our heads. You do what you have to.

Good luck with job hunting.




 Pounds lost: 0.0 
0
1.75
3.5
5.25
7
SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (317,129)
Fitness Minutes: (44,702)
Posts: 30,972
11/16/19 6:36 A



My SparkPage
Send Private Message
Reply
I'm very sorry to hear that Elaine. Have you thought about looking for some part-time work in your line of expertise, closer to home or working from home? Maybe free-lancing? Your needle work is beautiful - try some little things. Would your father be able to sell them where he works? A lot of people are looking to pick up little gifts at the moment re Xmas.

Good luck

Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


 current weight: 154.0 
213
198.25
183.5
168.75
154
EOWYN24241's Photo EOWYN24241 Posts: 5,283
11/16/19 3:58 A

My SparkPage
Send Private Message
Reply
Bad news!

I don't what transpired, but my boss just called me saying she has resigned from her position. I tried to ask for more details but she wouldn't tell me.

So, I am now unemployed again :-(

I'll have to find other ways of getting some income. I was thinking of making some greeting cards with my ahem! artistic skills and selling them at church from time to time. But I will have to donate half my earnings from the sale of the cards to the church in order to do so. But that will only get me income not as regularly, I can't be doing that too often because 1) it takes time for me to build up stock 2) There's only so much I can sell because my church is a small church.

Alternatively, I can try to find a job in retail but I am reluctant to do so because 1) low pay for long hours 2) I am not a spring chicken anymore 3) I'd rather use the free time for art and needlework.

I will have to think about this seriously. Losing my job has come so suddenly. I thought my boss wanted to continue in her current position. She just called me with the bad news.

Edited by: EOWYN24241 at: 11/16/2019 (04:10)
Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
EOWYN24241's Photo EOWYN24241 Posts: 5,283
11/16/19 12:02 A

My SparkPage
Send Private Message
Reply
I couldn't find any green onion nor shallots, so I just added a clove of minced garlic to my potato salad. I boiled an egg, hoping to get the onsen egg effect but I under-boiled and got soft boiled egg instead. Sigh!

I added a teaspoon of margarine and a tablespoon of mayo, lot's of white pepper, along with the soft boiled egg to 3 potatoes roughly cubed and mixed. No salt. It was very yummy and tasty.

I underestimated the potatoes though, 3 potatoes doesn't make much salad, I only managed to give a little to my friend, I didn't even have enough to give it to another friend, and I finished the whole lot yesterday, so no leftovers.

The manual tracking starts today!

Oh, about my facial, the extraction yesterday wasn't so bad! My face feels so clean now! All white heads, oil seeds and black heads have been removed! The message felt wonderful as was the facial itself! The beautician keeps urging me to come monthly, but I can only afford to come once in 2 months.

My manicurist keeps asking me to come more often too, but I don't feel the need to come so often if my toenails still look freshly painted with nail polish. I only come for a pedi when it starts to grow out and starts looking half there.

I also have to learn to not ruminate on the negative things that happen in my life. I have not much control over it because I can't control or change other ppl, so, I have to learn to just let go and not go over it repeatedly in my mind or take it to heart or take it so personally.

Edited by: EOWYN24241 at: 11/16/2019 (00:53)
Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (317,129)
Fitness Minutes: (44,702)
Posts: 30,972
11/15/19 5:52 A



My SparkPage
Send Private Message
Reply
Tracking your food religiously and analyzing what you have tracked, and then tweaking to ensure that you aren't going over the recommendations is a great plan.

It's good news about your boss and by default the resulting likelihood that you will also keep your job.

I have never once had a facial, manicure, pedicure etc. and I'm 65 yrs young :-)

Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


 current weight: 154.0 
213
198.25
183.5
168.75
154
EOWYN24241's Photo EOWYN24241 Posts: 5,283
11/14/19 8:40 P

My SparkPage
Send Private Message
Reply
Firstly, I plan to eat more home cooked & home prepared meals. I will minimise eating out when it is not necessary. Outside food is chock full of sodium & expensive!

I plan to make a potato salad for lunch today. I hope my potatoes are still ok. Otherwise I will just make pesto pasta with an egg as a protein source. If my potatoes are still usable, I will see if there is any green onion in the fridge, if there is none I will subsitute with onion, sometimes you have to be creative! I don't have time to go buy green onion today bcoz I have a facial scheduled at 1pm.

I will also track my food more religiously both on SP & also manually. I will look up nutrition stats online when it is not physically available.

Oh, and a bit of good news! My boss' manager is keen on keeping her in her current position, so I might have my job again!

I am really looking forward to my facial today! The part I don't like is the extraction! Ouch! But it is so necessary!


Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
ARCHIMEDESII's Photo ARCHIMEDESII SparkPoints: (222,763)
Fitness Minutes: (341,231)
Posts: 28,437
11/14/19 9:56 A



My SparkPage
Send Private Message
Reply
EOWYN,

This is wonderful news. I'm happy to hear that you are being more proactive about your health. Talking to your psychiatrist as well as a dietitian and endocrinologist is a big step towards improving your health.

“Your body is the harp of your soul and it is yours to bring forth sweet music from it or confused sounds.” - Khalil Gibran, poet.

CHICAGOHOPE's Photo CHICAGOHOPE SparkPoints: (26,438)
Fitness Minutes: (65,492)
Posts: 930
11/14/19 9:43 A

My SparkPage
Send Private Message
Reply
"My doctor told me that I can't change my parents, only my reaction to them. I have to learn to just not let their hurtful words affect me."

That is GREAT and insightful advice for doctor gave you. Now you KNOW what to do, the challenge is LEARNING how to do that. Did the doctor give you strategies on HOW to do that? Did they give you references for books?

There is a difference, remember they said "you have to learn...." how do you plan to learn how to not let things bother you?

For your nutrition, it is great now you know the numbers. There will never be an excuse, that you don't know. Now, how do you use that information on a DAILY basis to PLAN your meals? Just know, you can not eat freestyle (how and when you want), your nutrition must be planned.

No more excuses... time to take charge of these areas of your life.



 Pounds lost: 0.0 
0
1.75
3.5
5.25
7
EOWYN24241's Photo EOWYN24241 Posts: 5,283
11/14/19 6:54 A

My SparkPage
Send Private Message
Reply
Sigh! I got my appointment dates mixed up! Today was my psychiatry appointment, not the endocrine appointment The endocrine appointment is in December, thankfully, I discovered my mistake without waiting too long!

Anyways, here is what I found out from the RD! :

Sodium : less than 2,000 mg per day
Potassium : 2,000 to 3,000 mg per day
Phosphate : 800 to 1,000 mg per day
Protein : 75 g per day
Fluid : 500 to 750 ml per day

I managed to talk to my psychiatrist about some issues I have with my family. My doctor told me that I can't change my parents, only my reaction to them. I have to learn to just not let their hurtful words affect me.

And the dialysis machine does remove waste products including some sodium, but mainly urea and Creatinine.

Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (317,129)
Fitness Minutes: (44,702)
Posts: 30,972
11/14/19 4:20 A



My SparkPage
Send Private Message
Reply
Elaine - I just saw this article and thought of you:
www.sparkpeople.com/resource/nutrition_art
icles.asp?id=166&utm_source=sparkpeopl
e&utm_medium=email&utm_campaign=email-
generic


I hope that you got on o.k. at your Endocrinology appointment.

Kris xxx

Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


 current weight: 154.0 
213
198.25
183.5
168.75
154
SPARK_MERLE's Photo SPARK_MERLE Posts: 9,271
11/13/19 10:08 A

SparkPeople Team Member

My SparkPage
Send Private Message
Reply
Sounds like a great idea, Elaine! Best wishes with the endrochrinologist.

~ Merle

"I am only one, but I am one. I cannot do everything, but I can do something. And I will not let what I cannot do interfere with what I can do."
Edward Everett Hale
SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (317,129)
Fitness Minutes: (44,702)
Posts: 30,972
11/13/19 1:31 A



My SparkPage
Send Private Message
Reply
That's a very good idea, Elaine.

Good luck with your Endocrinology appointment.

Kris

Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


 current weight: 154.0 
213
198.25
183.5
168.75
154
EOWYN24241's Photo EOWYN24241 Posts: 5,283
11/13/19 1:01 A

My SparkPage
Send Private Message
Reply
I got the day off tmrw because I'm going to see the Endrochrinologist (follow up after my surgery to remove my parathyroid glands a few years back). Since I have to whole day free, I will see if I can see a RD to ask about the levels of potassium, phosphate, protein & sodium that I am allowed.

So I will have exact figures!

Edited by: EOWYN24241 at: 11/13/2019 (01:02)
Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
CHICAGOHOPE's Photo CHICAGOHOPE SparkPoints: (26,438)
Fitness Minutes: (65,492)
Posts: 930
11/10/19 9:37 A

My SparkPage
Send Private Message
Reply
Hi Jillionis1

Congratulations on the "clean out" of your pantry and freezer. That is a great step, not to have temptation in front of you.

I have to do it a couple times a year(seasonally) since there are times I'm careless and buy irresponsible without looking at labels or researching.

For me, there are a few diseases that keep trying to knock on my door of life. And even though many say "oh it is in your genetics, you'll be just like us". I refuse that destiny since I have a different lifestyle. But I am aware that if I choose to eat their way, yes it will be my future and my consequence.

Regardless, of genetics or just you...like you said so greatly, it is about taking responsibility to live your best life (even with chronic disease).

I wish you the best on your health journey, and again congrats on the pantry/freezer clean out.



 Pounds lost: 0.0 
0
1.75
3.5
5.25
7
JILLINOIS1's Photo JILLINOIS1 SparkPoints: (3,421)
Fitness Minutes: (5)
Posts: 25
11/10/19 12:39 A

My SparkPage
Send Private Message
Reply
"And Jill, I have been on dialysis for about 16 years but not because of anything I did,"

What you do NOW is what you are responsible for. Dialysis isn't a free pass to do whatever you want. It's your life. Or not. YOU are responsible. Nobody else. Ending up on dialysis isn't someone's fault, but blowing off your doctor makes a joke out of your visits.

I'm fighting like crazy to get the referral to a dietician and nephrologist. My labs are worse- and I just went through my pantry and packed up everything with sodium or potassium levels that I knew weren't OK (I've got swelling and a productive cough with too much sodium). They're off to a food pantry via a friend of mine, as I'm housebound. My freezer was emptied of anything processed. No more crackers with salt. Bensen's salt-free seasoning arrived today. I got online and found info on phosphorus content of foods, including going to websites of companies and looking for the information.

We've all got stuff going on. And we can be in charge of our lives to the best of our ability, or play the victim- and I'm nobody's victim.

I can't say anything useful to someone who doesn't want to change. I wish you the best. When you eat something you're not supposed to, ask yourself if it's worth getting you to a place where the complications aren't fixable -- dialysis is full of complications. My grandma died in the chair. And she was compliant with a diet that was horrific in the late 70s.

Signing off... won't enable more conversation on my end that is about self-sabotage and playing the victim. I threw away my cheese.




Total SparkPoints: 3,421
2,500
2,874
3,249
3,624
3,999
SparkPoints Level 6
CHICAGOHOPE's Photo CHICAGOHOPE SparkPoints: (26,438)
Fitness Minutes: (65,492)
Posts: 930
11/9/19 9:34 A

My SparkPage
Send Private Message
Reply
Since you are not sure why a number is high ("maybe because...."), why don't you ask and learn the reason behind the guideline.

And crackers for breakfast? No wonder you over eat. Crackers are highly processed, and really don't add any nutritional value to your body. There so many other choices that are WAY better for you, especially for your breakfast (which means breaking your fast, the time your body is sleeping and you are not eating)

When you were first diagnosed, what foods did the nutritionalist give you as sample meals? If you don't remember, why not go to the library and learn HOW to eat for your disease? You should do it any way, since you really need to learn and know what to do and maybe by learning the RIGHT food will help you with weightloss too.

But the real goal is managing your disease and the progression.



 Pounds lost: 0.0 
0
1.75
3.5
5.25
7
EOWYN24241's Photo EOWYN24241 Posts: 5,283
11/9/19 8:16 A

My SparkPage
Send Private Message
Reply
Maybe bcoz dialysis removes some sodium as well.

Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (317,129)
Fitness Minutes: (44,702)
Posts: 30,972
11/9/19 3:36 A



My SparkPage
Send Private Message
Reply
WOW, Elaine - I'm surprised you are allowed up to 2000mg of salt a day. If I eat that amount I am really bloated around the waist and feet and carry a couple kg more weight. I would have thought that your range would have been more the 1000 - 1500mg range, which is mostly where I typically am (not on dialysis or with renal issues.)

Kris

Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


 current weight: 154.0 
213
198.25
183.5
168.75
154
EOWYN24241's Photo EOWYN24241 Posts: 5,283
11/9/19 3:12 A

My SparkPage
Send Private Message
Reply
Ok, James, some figures for you!

Phosphate : no more than 1,200mg per day
(dialysis removes 500 - 600mg/session)

Potassium : less than 2,000mg per day.

Salt : No more than 2,000mg per day.

Oh, the nurses didn't give me the crackers, I brought them there for my breakfast.

Fluids : 500ml per day

All dialysis patients take phosphate blockers to help manage their phosphate levels.



Edited by: EOWYN24241 at: 11/9/2019 (03:16)
Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
EOWYN24241's Photo EOWYN24241 Posts: 5,283
11/9/19 12:47 A

My SparkPage
Send Private Message
Reply
Hi, James,

I will give you a detailed reply to your questions later, I'm at work now. I will need to refer to my renal diet booklet and do some more research in order to provide a comprehensive answer.

So, please hang on.

_______________________________________________________

I've finished my tasks at work! Now I have time for a little research.

This is something I found :

www.health.govt.nz/system/files/documents/
topic_sheets/ckd-and-nutrition.pdf


Edited by: EOWYN24241 at: 11/9/2019 (03:04)
Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
-JAMES-'s Photo -JAMES- Posts: 13,995
11/8/19 10:44 A

Community Team Member

My SparkPage
Send Private Message
Reply
Elaine,
I have some very simple questions. To help manage your medical conditions, what are you supposed to avoid eating, or supposed to eat?

Is it just sodium (presumably from salt) and potassium, or is it other things also? Do you have a daily maximum on certain things?

The thing I try to avoid, to better manage my blood sugar is carbohydrates, so I eat as few grams of that as possible, and if I go over 20 grams a day, then I start to get super careful. I don't freak out at 30 or 35 a day, but more than that was a not an on track day. I don't eat 80 grams or more a day, ... I just don't, I never even get close to that. Its my health, I take charge.

So if they give you some saltine crackers during treatment, to manage some problems you have, surely they know that they have salt, ... you are there for dialysis, so they can't be idiots regarding salt, right?

But if you put some numbers on it, a salted cracker has about 60 mg of sodium. If you ate 4 such crackers, about 240 mg. What is your daily limit on sodium? This topic started off with you needing to give up cheese due to phosphate in the cheese. I looked it up, and 100 grams of cheddar cheese has about 500 mg of phosphorous, which it says is about 50% of ones daily needs.
nutritiondata.self.com/facts/dairy-and-egg
-products/8/2


What do you do about phosphorous then? Do you have a lower limit than what that website thinks a person needs per day, which is then 1000 mg? If its not 1000 mg due to your medical issues, I understand that. That same site thinks I need about 300 grams of carbs a day, and I know my body can't handle that.

Please answer questions here, and not in a blog, I don't often read blogs unless I'm curious in general, its not the sort of place I expect a reply.


Edited by: -JAMES- at: 11/8/2019 (10:53)
James
Alberta, Canada


All time highest weight : 217 pounds

Starting weight : 195.0 pounds (June 7, 2012)
Final weight : 168.2 pounds (July 23, 2013)


 current weight: 169.0 
217
204
191
178
165
MIAMIRN's Photo MIAMIRN Posts: 2,577
11/8/19 6:15 A

My SparkPage
Send Private Message
Reply
You are very welcome Eowyn! emoticon

Today sounded fabulous! You sound hopeful and positive minded.

All of us want to feel joy and peace. I try my best to stay as positive-minded as possible. It doesn't always happen, but I can always try again and again until it does.

I'm really glad things worked out today. Treasure the feeling! emoticon

My name is Elona. I live in the Philippines.
Love life! Never, never give up! Never give in, never give in, never; never; never; never give in nothing, great or small, large or petty. Never give in except to convictions of honor and good sense-Winston Churchill. When you have a lemon, make lemonade!


 current weight: 9.0  over
10
5
0
-5
-10
EOWYN24241's Photo EOWYN24241 Posts: 5,283
11/8/19 3:28 A

My SparkPage
Send Private Message
Reply
Thank you so much, MIAMIRN; for your thoughtful post. I am in denial, I see that now. I have been in denial for a long time. And in certain ways, I am still in denial. But I do know what I am not supposed to eat and what I am allowed to eat.

I have been on dialysis for 16 years and counting. And lately, my dialyzer has been passing the re-processor machine without any problems. So, I must be doing something right.

The head nurse gave me a frank talking to this morning. I have determined to just prime the machine and wash my dialyzer every morning without complaint. I also will be compliant to the renal diet (fluid and diet restrictions). I will also not complain when they give me saline etc. to manage any problems during my treatments. They are specially trained for this job and I will just trust them and leave it to them.

All I did was report everything that happened on Wednesday by texting the head nurse. I suspect they had a meeting yesterday and the head nurse decided to talk to me too. It was quite peaceful at the dialysis center today. I pray that the peace will last.

Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (317,129)
Fitness Minutes: (44,702)
Posts: 30,972
11/8/19 3:09 A



My SparkPage
Send Private Message
Reply
The only way any threads can be removed, or a post, is if one of the SparkCoaches does it. We can't even remove our own, only edit it.

I think we need to take a deep breath, hold it a while and then let it out slowly. SP must remain a safe site for all.

Kris

Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


 current weight: 154.0 
213
198.25
183.5
168.75
154
-POOKIE-'s Photo -POOKIE- Posts: 27,750
11/8/19 2:39 A

My SparkPage
Send Private Message
Reply
It's the posts about your attitude towards the "fat pple" on public transport, or the "shocking" fact an elderly patient was experiencing incontinence in a hospital... both those threads showed a side of you we all found, to use your word, shocking.

Both those threads have mysteriously disappeared.

I don't know what reaction you expected other than a negative attention from those. you cannot expect sympathy about "fat pple" (even more degrading since you can't even call them people) from a group of people collected together to lose weight and gain health. We ARE (or were) the fat people! And yes, you probably did offend people with your attitude.

It ends up feeling a calculated experiment in how far you can push, how much attention you can get for being awful, how many direct questions you can blatantly ignore and act hurt when called out on it all.

But STILL people choose to offer advice. Good advice, educated advice, with knowledge that could literally prolong your life. Your lack of gratitude is, well, "shocking".



 Pounds lost: 77.0 
0
40.75
81.5
122.25
163
MIAMIRN's Photo MIAMIRN Posts: 2,577
11/8/19 2:30 A

My SparkPage
Send Private Message
Reply
Hi everyone emoticon

Let me introduce myself because I do not remember posting to you Eowyn, before. I have been a member of Sparkpeople for a few years. I have lost a lot of weight and have become much healthier. I have some chronic illnesses that have made my journey difficult, but everyone has their own obstacles to overcome. I am not unique. I want to throw in, I am a retired nurse. I now teach children how to swim.

For the past couple or so years, I have been following your posts on the "panic" message board. Lately, I have noticed there has been more tension between you and the members who have given you a lot of wonderful support. I have given this some thought and decided to express some of my thoughts about health and illness, about being a person seeking and searching for a better lifestyle and all the issues that relate to communicating this to each other. Obviously, none of these issues are easy.

One thing that stands out to me is a very common one. It is the issue of "Denial".

In my work, (even with myself, my family and friends and with many people, I have met either online or in physical form), I have learned denial is a difficult thing to cope with. Not just myself or with my patients, their family's, etc, but just to even become AWARE it even exists! If you are asking me whether I think you are in denial that is something you need to explore within yourself. My opinion is far less important that your opinion.

Let me explain further...

Eowyn, denial is invisible, it is like being in the outside in the dark and thinking it's light outside. Denial is also not black or white. Sometimes to see what is in front of you and sometimes you don't. It is also graded and shaded. Sometimes people are in mild denial and some severe. It is also a process. With something like a serious life-threatening illness, especially chronic severe illness, facing the reality of a harsh and painful, frightening reality takes a long time. Everyone is different, some cope better and faster and some cope slower and it is more difficult for them.

For me, I pass no judgment. I have had and will continue to have experienced my experiences with denial. I see it in others, too. I will do my best to see hard truths and I will try to help others do the same. The one common thread in all of this is PATIENCE and TIME.

I have learned there is no such thing as taking things personally when helping others. I believe rushing people to see reality and faster than they are able only leads to a lack of harmony. What I have found to be helpful is actively listening and reflecting back on what the person in denial has told you. Doing the best you can to help someone is an act of love, nothing more and nothing less.

For you Eowyn, expressing how you feel, not just what your mind is telling you, not just what is happening in your life, but you put into words what you "FEEL" like. For example, I am afraid of... (the worst thing ever!), I have a lot of anxiety about going to my appointment, because what if such and such will happen.. I feel like eating something delicious because it makes me "feel" (Name the feeling). And the list goes on and on.

What I believe is the most important advice from me to you, is for you to see a therapist every single week (that is my goal for you). A therapist who specializes in chronic illness. Your doctors should know how to find one or a social service network. Not seeing a therapist is a sign of denial when you have a serious chronic illness such as yours. One of the symptoms of denial is making excuses or finding legitimate reasons that either minimize the need for a therapist or make it seem impossible, impractical or financially impossible to see a therapist. These are all "NORMAL DENIAL BEHAVIORS".
If I didn't make this clear before, please accept my apology. Denial is a normal and human cognitive (thinking) feeling process any person can have. When feelings are overwhelming and too intense denial sets in as a natural human defense. This is to protect yourself from psychological or psychiatric breakdown.

I truly pass no judgment on any of you. My hope is to in some way lighten the load of stress I feel is building up here.

My very, very best to you Eowyn. Your life is obviously hard. I can feel your sorrow and suffering. Somehow, someday I have faith, you will find a happier life and a better lifestyle. Just keep on trying, keep on reaching out and when you falter stand up and start again! Please, don't ever give up! You are worth it!

emoticon emoticon



My name is Elona. I live in the Philippines.
Love life! Never, never give up! Never give in, never give in, never; never; never; never give in nothing, great or small, large or petty. Never give in except to convictions of honor and good sense-Winston Churchill. When you have a lemon, make lemonade!


 current weight: 9.0  over
10
5
0
-5
-10
ARCHIMEDESII's Photo ARCHIMEDESII SparkPoints: (222,763)
Fitness Minutes: (341,231)
Posts: 28,437
11/7/19 12:48 P



My SparkPage
Send Private Message
Reply
"I am not ignoring you. I am constantly posting updates but it is seen as blogging. I am confused. What do you expect me to say. I am just posting my honest thoughts but I only keep getting scolded. I am very hurt. So hurt that I am not inclined to post anymore. Why do you say I do nothing? Why do you say I treat you ppl badly? I am mystyfied. I do post updates but even that seems to offend you.

If whatever I say is wrong or not enough then I guess I won't bother you all anymore."

QUESTION

Elaine, when you leave a post on the panic message board, what kind of response are you expecting from the members ? As an example, you posted, forced to give up cheese.

Were any of the replies useful ?

How has being on Spark helped you ? You keep posting questions, do you get the answers you want ?


Edited by: ARCHIMEDESII at: 11/7/2019 (12:49)
CHICAGOHOPE's Photo CHICAGOHOPE SparkPoints: (26,438)
Fitness Minutes: (65,492)
Posts: 930
11/7/19 11:01 A

My SparkPage
Send Private Message
Reply
I am sorry to hear you are losing your job, that is a tough situation to be in. As for accepting lunch when you boss asks - you know she and her family are having financial issues, why not say - "thank you, but not today". That is the polite thing to do. Just because someone makes more than you do, is not a reason to accept everything they offer you. That is called using someone.

"I may not respond directly to questions sometimes" - that is not correct. You have yet to respond to JIllionis.

Yes, it is blogging what you are doing. What we expect is that if you post you respond to the questions, we expect self reflection, self realization, self learning. Tht is what we expect. An example is I asked you a question in the last post, and you did not respond to the question (scroll down and take a look).

As for posting you thoughts.... several of your "thoughts"do not take into consideration of others. You only think of yourself and how things effect you and your world. You seldom think of others when you post your "thoughts".

So you post, we respond, we ask questions, you read the post, don't necessary respond and you get hurt. Really? We have continued to attempt to help, support and provide information to you - even when you clearly do not change or truely take it to heart.

I say you do nothing,because if you reread your past posts and the responses everyone had provided - they are the same thing post over post. The words slightly change, but the attitude, carelessness and lack of action have not changed. PLEASE, PLEASE go back and reread your posts and responses. You will see a pattern.

Your posts do not offend me, quite the opposite - it makes me sad that you have not changed and still want to continue down the road of crap food. Yes, you made a couple of good choices, but overall you do not. What makes me sad, frustrated (like others) is that WE believe in you more than you do. WE want you to live a long life (even with a disease), WE want you to see your potential. Yet YOU continue to eat crap food, complain about people, believe you are entitled, and refuse to change.

Elaine - If we truely didn't care we wouldn't take our time (time is something you invest with no promise of return) in responding to you, giving you advise and hopefully sparking you to change. It is your choice.





 Pounds lost: 0.0 
0
1.75
3.5
5.25
7
EOWYN24241's Photo EOWYN24241 Posts: 5,283
11/7/19 10:27 A

My SparkPage
Send Private Message
Reply
I am losing my job any time. There has been a power struggle & a change of ownership. My boss & her family no longer own the company. That is the hard truth.

My boss' manager still keeps her around because she knows the job well. That is God's grace to her. I still accept lunch from her because I an earning even less now. She has been giving me less work because she has lost her will to fight for her position. A few key ppl in her family have been ousted out of the company. That's how bad the situation is. I am saving every cent I can because I know I will be losing my job very soon.

I may not response directly to questions some times but I do post updates to my situation. It seems no matter what I post, it is never enough.

I am not ignoring you. I am constantly posting updates but it is seen as blogging. I am confused. What do you expect me to say.

I am just posting my honest thoughts but I only keep getting scolded. I am very hurt. So hurt that I am not inclined to post anymore.

Why do you say I do nothing? Why do you say I treat you ppl badly? I am mystyfied. I do post updates but even that seems to offend you.

If whatever I say is wrong or not enough then I guess I won't bother you all anymore.

Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
CHICAGOHOPE's Photo CHICAGOHOPE SparkPoints: (26,438)
Fitness Minutes: (65,492)
Posts: 930
11/7/19 9:19 A

My SparkPage
Send Private Message
Reply
People have responded CONTINOUSLY to you EACH AND EVERY TIME YOU POST.

They ask questions, give advice. And you post NOTHING in response to them. You post about how you want what you shouldn't eat, and how you "overcame" the temptation looking for praise and approval.

What we are interested in is your self reflection, we ask questions to you to spark change, to spark some self realization. You do nothing, except ignore us and continue on, like we said nothing.

Over the course of the time I've responded to you, you have responded to my questions a handful of times. Frankly, that is disrespectful. Yet, for some reason, I think you MIGHT have potential to change (but it is fading)

Here is my last question to you (which I doubt will be answered with thoughtfulness):

Elaine, what would you think if when you posted your "panic" question if NOBODY responded to you, how would that make you feel? Why do you think we should continue to respond when you don't?

Here is an observation:
It takes very little to be kind to people, maybe its time you learn to be kind to the online community, you so depend on for attention. People have been kind to you, been patient with you, showed tough friendship with you, and you have been disrespectful to us, by your lack of response and ignoring questions. If you post, you do know people will respond with questions.

If you dont want to change or don't want to respond to the questions for the help you want, then really what you are posting is a blog, which is more for your personal page. That way you can post and not respond. This "panic" page is for people that are looking for support, wanting change, looking for quick help not just attention. Many of them post thank you, or an update of how they are changed, or respond to questions. Do you really think this is a "panic" or just a day in your life? For me, these are your "day in the life" attention grabbing headlines.

I hope you really think about how you treat people on this site.



 Pounds lost: 0.0 
0
1.75
3.5
5.25
7
ARCHIMEDESII's Photo ARCHIMEDESII SparkPoints: (222,763)
Fitness Minutes: (341,231)
Posts: 28,437
11/7/19 9:07 A



My SparkPage
Send Private Message
Reply
"I will be losing my job soon, so will my boss. The problem I thought was solved is far from solved. My boss and her family is also in financial trouble. I will not say anymore as my boss may not like it. Surface to say, I won't have so much disposable income from now on. So, much less eating out and going to the cinema. And also no more buying new clothes just because. I have more than enough clothes anyway........."

EOWYN,

You mentioned that your boss gave you the day off. Does this mean the company isn't in financial trouble ? That you're still working.

Here's an observation of mine. If your boss is in financial trouble, why do you keep accepting free meals from her ? She's still buying you lunch, why ?

ARCHIMEDESII's Photo ARCHIMEDESII SparkPoints: (222,763)
Fitness Minutes: (341,231)
Posts: 28,437
11/7/19 8:42 A



My SparkPage
Send Private Message
Reply
EOWYN,

JILLINIOIS took the time to write a thoughtful reply to you. She replied with excellent advice which you didn't seem to notice or care about. If you read it, then it didn't have the same impact for you, that it did for me.

Which is why many members have stopped replying to your posts. Most of us know you really aren't reading our replies.

Why do we keep replying ? Many of us do still hope that one day, you WILL want to make a change.

Does that make sense ?

-POOKIE-'s Photo -POOKIE- Posts: 27,750
11/7/19 4:31 A

My SparkPage
Send Private Message
Reply
Drama, created attention seeking drama.

It's as blatant as a child misbehaving... But you know what? People STILL give you the benefit of the doubt because they are good people and choose to give their time freely to try and help you.

After the recent displays of attitude you have shown you should be grateful anybody does, but it just seems like a game you are playing with people for attention. It's sad.



 Pounds lost: 77.0 
0
40.75
81.5
122.25
163
EOWYN24241's Photo EOWYN24241 Posts: 5,283
11/7/19 2:59 A

My SparkPage
Send Private Message
Reply
Yes, I read every post here.

Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
-JAMES-'s Photo -JAMES- Posts: 13,995
11/7/19 2:51 A

Community Team Member

My SparkPage
Send Private Message
Reply
EOWYN,
I'm certainly not asking you to be more "intuitive" about food choices. I'm asking you to be far more calculating. Also, you didn't answer ARCHIMEDESII direct question:
"I'd like to take a moment to say that JILLNOIS1 left you a very thoughtful reply.

Did you read it ?"

So .... DID YOU READ IT?

It amazes me how you can just not react to a question. You might think ... I read it, I don't have to say so ... but she had a direct question. In the past I remember you not replying to direct questions of mine.

Answer her question.

James
Alberta, Canada


All time highest weight : 217 pounds

Starting weight : 195.0 pounds (June 7, 2012)
Final weight : 168.2 pounds (July 23, 2013)


 current weight: 169.0 
217
204
191
178
165
EOWYN24241's Photo EOWYN24241 Posts: 5,283
11/7/19 1:43 A

My SparkPage
Send Private Message
Reply
I woke up close to noon today because my boss gave me the day off. I really felt like ordering KFC chicken tenders with sour cream and onion sauce but controlled myself because 1) It's sky high in sodium; 2) It's unhealthy & 3) It's expensive.

I remembered I have some pesto macaroni that I cooked myself in the fridge, so I nuked it and had that for lunch. It was abt 1.5 cups of pasta.

Then I did some work from home and surfed the net and cleared some email, and I started feeling peckish. So I went to the fridge to hunt for a snack. I saw a single tuna sandwich that my Mom made yesterday but I decided not to eat it as it's my Dad's favorite, so I thought, what else can I eat.....

My eyes settled on a huge basket of oranges, so I picked a large one cut it up & ate it. And now I am no longer peckish! It was delicious and refreshing because it came out from the fridge!

So, thanks to you all for encouraging me to be more intuitive about my food choices.

Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (317,129)
Fitness Minutes: (44,702)
Posts: 30,972
11/6/19 7:17 P



My SparkPage
Send Private Message
Reply
Elaine - your 3 little packets of innocent looking crackers have more sodium in them than I normally eat in an entire day. The difference between you and me is that I am not on a medically required low sodium diet. If I eat around 1800 - 2000mg of sodium in a day my body sure hangs on to fluid. I feel it and the scales reflect it by a good couple kg.

Hopefully you continue to pay attention to the full nutritional analysis and learn from it and act, .... but I won't hold my breath.

Edited by: SLIMMERKIWI at: 11/7/2019 (00:27)
Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


 current weight: 154.0 
213
198.25
183.5
168.75
154
ARCHIMEDESII's Photo ARCHIMEDESII SparkPoints: (222,763)
Fitness Minutes: (341,231)
Posts: 28,437
11/6/19 12:28 P



My SparkPage
Send Private Message
Reply
EOWYN,

I'd like to take a moment to say that JILLNOIS1 left you a very thoughtful reply.

Did you read it ?






-JAMES-'s Photo -JAMES- Posts: 13,995
11/6/19 12:14 P

Community Team Member

My SparkPage
Send Private Message
Reply
Elaine,
what is your maximum sodium target per day? Sodium is something you should avoid, right?

I'm a type-2 diabetic, so I avoid carbohydrates. I try to not go above 25 grams of carbs a day. Its crazy low, but it sure helps my blood sugar. If I ate one of those 3 gram crackers, it has 2.2 grams of carbs. I don't eat them for that reason. Looking at fraction of weight that is carbs, which is how I look at foods:
- crackers (75% of the weight is carbs)
- chicken (0%)
- mayonnaise (0%)

I eat chicken, sometimes with mayonnaise on it. I never eat crackers, or breaded chicken. To each their own, but I look critically at the foods I eat, and it doesn't take long to figure things out. We all tend to eat pretty much the same things over and over, and in a month we have probably covered it. New things still come up after that, but rarely.

Its my life, I do what my body needs in order to keep healthy and alive as long as I can.

James
Alberta, Canada


All time highest weight : 217 pounds

Starting weight : 195.0 pounds (June 7, 2012)
Final weight : 168.2 pounds (July 23, 2013)


 current weight: 169.0 
217
204
191
178
165
ARCHIMEDESII's Photo ARCHIMEDESII SparkPoints: (222,763)
Fitness Minutes: (341,231)
Posts: 28,437
11/6/19 12:04 P



My SparkPage
Send Private Message
Reply
"I was astounded at my total sodium count! I took a few minutes to trace the source of the hidden sodium, and it was those little packs of crackers!"

When is the last time you had a Big Mac ? I know how much you enjoy eating them. Did you know how much sodium they have ? 1007 mg !



How about that KFC chicken drumstick you enjoy ? You're being good when you only eat one, right ? Did you know how much sodium is in one leg ? 430 mg



CHICAGO is spot on. It's time EOWYN face the facts she's been ignoring for so many years. She knows how high in sodium these foods are.

She chooses to ignore the information.

Edited by: ARCHIMEDESII at: 11/6/2019 (12:06)
-JAMES-'s Photo -JAMES- Posts: 13,995
11/6/19 12:00 P

Community Team Member

My SparkPage
Send Private Message
Reply
How I look at nutrition. Dr. Fuhrman came up with the equation:
HEALTH = NUTRITION / CALORIES

I apply that one nutrient at a time. I know that for vitamin C green peppers have more vitamin C per calorie consumed than oranges, like 3 or 4 times more.

In Elaine's case of avoiding sodium the opposite can be applied, trying to get the least sodium per calorie consumed. I use the nutritiondata site, and here is info on salted crackers:
nutritiondata.self.com/facts/baked-product
s/4999/2

One cracker (a square one, 3 grams in weight) has 12.6 calories, and 33.5 mg of sodium. Doing the division:
- salted crackers (2.7 mg/cal)

In comparison:
- boiled egg (0.8 mg/cal)

I googled foods low in sodium and found this page:
www.healthline.com/nutrition/low-sodium-di
et#foods-to-eat

and eggs are listed as low in sodium, so I'll take that number of 0.8 mg/cal as low. That page also lists the following foods as low, and using the nutritiondata website I'll calculate mg/cal:

- broccoli (1.2 )
- apples (0.08)
- chicken (0.5)
- mayonnaise (1.0)

If I look up foods high in sodium it is bacon:
- bacon (1.9)

Yup, you just have to go to nutritiondata, find the food of interest, set your quantity and read of the mg of sodium.

Edited by: -JAMES- at: 11/6/2019 (12:01)
James
Alberta, Canada


All time highest weight : 217 pounds

Starting weight : 195.0 pounds (June 7, 2012)
Final weight : 168.2 pounds (July 23, 2013)


 current weight: 169.0 
217
204
191
178
165
CHICAGOHOPE's Photo CHICAGOHOPE SparkPoints: (26,438)
Fitness Minutes: (65,492)
Posts: 930
11/6/19 9:43 A

My SparkPage
Send Private Message
Reply
"And I thought I was being good! "

Here is the truth..... You never have been good, you have been lying to yourself. You haven't taken your disease seriously. You seldom to never take our advise, and never look to yourself as to why you choose not to change.

You are always "surprised" by what you think you find, when in truth we have already told you.

In my opionion, I am shocked by someone who has such a serious disease who is so careless. As someone who has reread your posts, and even remembers some of the posts the moderators delete I have to ask you, why? Have you asked yourself why, you are careless, why you are surprised by what you find in food, why you haven't changed?

I'd like to suggest (even though it is likely to fall on deaf ears) some self reflection, honest self reflection as to why you don't want to change. Is it really because you want the attention? Be honest. Did you know that you can get the same attention as someone who takes their disease serious, who knows nutrition, who lives by example, ve someone that when you respond to a post with advise that it is taken seriously cause you live and know it. This is positive attention. The attention you get here, at home, from the nurses is negative attention. (Yes any attention is attention)

Elaine, it is well past the time you grow up, take responsibility, and start being responsible for your health and life - stop acting shocked by discoveries we have been telling you. Trying to get praise or reaction for some "discovery" that we have been telling you (do you think we forget what we tell you?) Honestly, that is manipulation, and we don't by it.

Here is your posting cycle:
You post a crisis (or what you think is a crises)
The SP family responds, reminds you we have been down this path, gives advise (again)
You don't respond to the questions, just provide excuses
In the post you get a " surprise" discovery
You hope you get the praise for discovery
You still don't respond with any change, just excuses
The post drops away (meaning you get no attention)
Couple days go by
Another "crises" appears
When researched, it has been previously posted, just with different words
Cycle begins again
It looks like when your post is not at the top, you feel you are not getting attention

Elaine, what do you think? How about posting some TRUE & HONEST self reflection. Isn't it time to get on the road to being honest?



 Pounds lost: 0.0 
0
1.75
3.5
5.25
7
EOWYN24241's Photo EOWYN24241 Posts: 5,283
11/6/19 9:04 A

My SparkPage
Send Private Message
Reply
Wow! I didn't realize those innocent looking little packets of crackers contain 510mg of sodium per packet! I had 3 packets, that's slightly more than 1,500mg of sodium from breakfast alone! And I thought I was being good! From now on I am eating sandwiches or oatmeal for breakfast! Even soft boiled eggs would be better!

I was astounded at my total sodium count! I took a few minutes to trace the source of the hidden sodium, and it was those little packs of crackers!



Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
ARCHIMEDESII's Photo ARCHIMEDESII SparkPoints: (222,763)
Fitness Minutes: (341,231)
Posts: 28,437
11/6/19 8:45 A



My SparkPage
Send Private Message
Reply
This is something I learned from my own journey,"In order to lose weight, a person has to WANT to lose." I found this to be true of any goal I set for myself.

When a person really wants to achieve whatever goal they set, they will find a way. They will do the work. When I was morbidly obese, I didn't want to do the work. I was happy being stuck in a rut. I didn't care. However, there came a time when I did care and I was ready for change.

And that's the problem with EOWYN. She doesn't really want to make any changes. She continually puts up roadblocks of her own making. She's stuck in a rut.

Any member who has replied to her posts has always provided sound advice. She chooses not to act on it because, it's too hard. I don't have time. It's inconvenient. What do statements like that tell me ? They say, I don't want to change.

That's all I ever see whenever I read her posts, a person who doesn't want to change.



-POOKIE-'s Photo -POOKIE- Posts: 27,750
11/6/19 7:24 A

My SparkPage
Send Private Message
Reply
Your life will NOT go on if you don't take it seriously though.

What does it take to make you realise?



 Pounds lost: 77.0 
0
40.75
81.5
122.25
163
SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (317,129)
Fitness Minutes: (44,702)
Posts: 30,972
11/6/19 4:08 A



My SparkPage
Send Private Message
Reply
Elaine, I think it is the only way to properly open your eyes to what you are REALLY consuming, so that you have the information to enable you to help keep your health from slipping. You can't afford to keep putting stumbling blocks in your way, that needn't be there.

I entered most of mine, but I didn't do it all at one time. If you have time to visit the mall and wander around shops, then you have a few minutes each day, or most days, to update even 2-3 items of food. Once it is done, you don't have to 'waste' your time searching it any more. As I mentioned the USDA provides this information for a lot of the food. I would be inclined to start with your protein foods. Eggs, beef, pork, chicken, fish is easy to get that info for. It is one ingredient AND they are sources of, to you, a significant amount of potassium and protein.

If the fruit/veggies you eat are from the SP Nutrition Data Base and not from an entry that an SP member has generated, then odds are it will have the info. Just make sure that you have gone to "Edit Nutrition Goals" under Tools & Settings and check sodium and potassium. Make sure that you save it before you leave.

Edited by: SLIMMERKIWI at: 11/6/2019 (04:09)
Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


 current weight: 154.0 
213
198.25
183.5
168.75
154
EOWYN24241's Photo EOWYN24241 Posts: 5,283
11/6/19 3:50 A

My SparkPage
Send Private Message
Reply
If my entries is incomplete, it's because there wasn't complete info entered into the tracker choices. Do you mean to say that I have to enter each and every detail into the tracker myself for every single item of food I eat or drink? I don't really have time to do that.

As it is I spend way too much time online already, esp on SP!

Life must go on!

Edited by: EOWYN24241 at: 11/6/2019 (03:51)
Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (317,129)
Fitness Minutes: (44,702)
Posts: 30,972
11/6/19 3:30 A



My SparkPage
Send Private Message
Reply
I hope that you DO pay attention to what you eat.

Also pay attention to your Nutrition Tracker. In the past I have noticed that some of the entries are incomplete, as in fish or meat entries with no protein recorded which really isn't possible, and I doubt very much that your potassium, sodium or phosphate is recorded either.

I record my potassium and where the products don't have any in the label, but I KNOW that they contain it, I do a search for the main ingredient (usually from the USDA link) and work it out from there. It isn't accurate but it is a lot better than putting the blinders on and saying that you didn't consume it.

Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


 current weight: 154.0 
213
198.25
183.5
168.75
154
-POOKIE-'s Photo -POOKIE- Posts: 27,750
11/6/19 2:36 A

My SparkPage
Send Private Message
Reply
And how many times do you need to say that you do better before you actually do?

Look how great it went when you finally, after years, took your fluid intake more seriously and you could meet your dry weight easily. Why do you not want the same success elsewhere?



 Pounds lost: 77.0 
0
40.75
81.5
122.25
163
EOWYN24241's Photo EOWYN24241 Posts: 5,283
11/6/19 12:09 A

My SparkPage
Send Private Message
Reply
I will revise my study of those booklets and pamphlets and I will do more research on the internet to find out which foods are high in phosphate & potassium and should be avoided; and which foods are low in them that I am allowed to eat.

Most importantly, I will learn to eat correctly.

Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
-JAMES-'s Photo -JAMES- Posts: 13,995
11/5/19 11:34 P

Community Team Member

My SparkPage
Send Private Message
Reply
My particular disease is type-2 diabetes.

I've learned a lot about what foods are good or bad for me. It basically comes down to carbohydrates, not just sugar. I carefully look at which foods have more carbs than others, and generally avoid or limit those foods that would raise my blood sugar.

I take charge. I'm not happy that I can't just eat stuff. But I don't ignore what I know because its sooo depressing. I make active choices every day. I don't put my head in the sand. I know quite well which foods are high in carbs. Bad choices on any one day won't kill me right away, but each bad choice shortens my life.

I choose to take control, and use what I know, not ignore the reality. I choose to live as long as I can, and as healthy as I can, the choices I make day to day matter.

Edited by: -JAMES- at: 11/5/2019 (23:46)
James
Alberta, Canada


All time highest weight : 217 pounds

Starting weight : 195.0 pounds (June 7, 2012)
Final weight : 168.2 pounds (July 23, 2013)


 current weight: 169.0 
217
204
191
178
165
SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (317,129)
Fitness Minutes: (44,702)
Posts: 30,972
11/5/19 7:32 P



My SparkPage
Send Private Message
Reply
Elaine -

"I have a few booklets and leaflets given by the hospital and dialysis center but I don't often refer to it because it is sooo depressing."

I would be inclined to think that rather than being 'sooo depressing' you are actually in a form of denial. You seem to be denying that your health WILL deteriorate further. You can decide by reading them properly, regularly, that they are depressing, or you can turn it around and find them enlightening because they will help you to maintain your health better than it is, which is very poor. YOU CAN CHOOSE but you choose the wrong path.



"I roughly know which foods are high in potassium and phosphate and I try to eat less of those or not at all."

'roughly' is NOT good enough. You need to create the list of taboo foods, and the list of foods that you CAN enjoy without issue. Again, YOUR choice but you choose to not be bothered to make wise choices.



"The problem being a lot of those foods are also my favorite foods......."

THAT is probably one of the most telling statements. You are NOT prepared to pay attention to your health and choose wisely BECAUSE you are not prepared to miss out. You put instant gratification above all else, and to Hell with the consequences.

You are the author of your own fate. O.K. - you didn't choose SLE, but you have chosen to ignore the seriousness of not adhering to your many medical professionals' advice on nutrition to prevent a worse outcome.

Kris

Edited by: SLIMMERKIWI at: 11/5/2019 (19:33)
Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


 current weight: 154.0 
213
198.25
183.5
168.75
154
LININPARADISE7's Photo LININPARADISE7 Posts: 1,115
11/5/19 10:34 A

Send Private Message
Reply
Have you tried to focus on a list of foods you can eat?
Perhaps an attitude shift would help.

Live, Laugh, Love!!


 current weight: 148.0 
150
147.5
145
142.5
140
CHICAGOHOPE's Photo CHICAGOHOPE SparkPoints: (26,438)
Fitness Minutes: (65,492)
Posts: 930
11/5/19 8:33 A

My SparkPage
Send Private Message
Reply
Elaine

They are you favorite foods because you have continued to eat them all these years.

As for depressing, there is always an excuse. My question is, how will you feel when (not if) things get worse, and knowing you could have done something to delay or prevent the disease progression?

A few brochures/pamphlets? Really, you have access to the net, a library and haven't done more nutritional research? Why not after all these years? Denial does not change reality.

To be frank, you DON'T know the guidelines of food, you are lying to yourself. You are careless, weakness and make irresponsible food choices, all because "it tastes yummy, I have a craving, it is a special occasion " we have heard it all.

Except,
"I don't care what doctors say,
I don't care about the financial burden I put on my parents,
I don't care about all the advise the people on SP say,
I don't care if it shortens my life"
You want what you want when you want it.

Please stop acting surprised, that is what happens when you don't know, or research your nutrition. Some of this that you are surprised about is basic 101 knowledge. I suggest you start to study, time is going to run out for you to make a difference.



 Pounds lost: 0.0 
0
1.75
3.5
5.25
7
-POOKIE-'s Photo -POOKIE- Posts: 27,750
11/5/19 6:40 A

My SparkPage
Send Private Message
Reply
"roughly know"

It is literally your life or death and you just can't be bothered to know properly?




 Pounds lost: 77.0 
0
40.75
81.5
122.25
163
EOWYN24241's Photo EOWYN24241 Posts: 5,283
11/5/19 4:26 A

My SparkPage
Send Private Message
Reply
I have a few booklets and leaflets given by the hospital and dialysis center but I don't often refer to it because it is sooo depressing.

I roughly know which foods are high in potassium and phosphate and I try to eat less of those or not at all.

The problem being a lot of those foods are also my favorite foods.......

Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
CHICAGOHOPE's Photo CHICAGOHOPE SparkPoints: (26,438)
Fitness Minutes: (65,492)
Posts: 930
11/3/19 7:54 P

My SparkPage
Send Private Message
Reply
Elaine

Can you show where you are getting your information, as the seems to be a big discrepancy between what you say and facts that others give.

Where are you getting your nutritional information, now I'm confused - Elaine, please help.



 Pounds lost: 0.0 
0
1.75
3.5
5.25
7
SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (317,129)
Fitness Minutes: (44,702)
Posts: 30,972
11/3/19 7:07 P



My SparkPage
Send Private Message
Reply
Bok Choy is very similar in potassium to cabbage, and white radish is higher in potassium.

Radish Kimchi is very high in sodium - about 1000mg per 100g of kimchi.

Kris

Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


 current weight: 154.0 
213
198.25
183.5
168.75
154
-JAMES-'s Photo -JAMES- Posts: 13,995
11/3/19 11:15 A

Community Team Member

My SparkPage
Send Private Message
Reply
CHICAGOHOPE,
yup, learning about nutrition, and what one's individual situation is ... very important.

I knew nothing about nutrition until I bumped into a diet to loose weight, found that the diet really lowered my blood sugar. That was when I started reading, and found out how important food was for type-2 diabetics. Until then all I did was avoid "sugar" (like in coke, ice-cream ...). If it didn't taste sweet I ate it. The words "blood sugar" have the word "sugar" in them, ... so sugar was all that I focused on.

So many years of medication for type-2 diabetes, I finally read up and learned about nutrition. I know so much more about nutrition in general now than I ever did, like vitamin C in green peppers, and how much of a green pepper you need to get your daily needs for that vitamin met, and how much protein you need per day, etc. etc. A big learning curve, but it got me to where it does influence my decisions on what to eat.

James
Alberta, Canada


All time highest weight : 217 pounds

Starting weight : 195.0 pounds (June 7, 2012)
Final weight : 168.2 pounds (July 23, 2013)


 current weight: 169.0 
217
204
191
178
165
CHICAGOHOPE's Photo CHICAGOHOPE SparkPoints: (26,438)
Fitness Minutes: (65,492)
Posts: 930
11/3/19 9:48 A

My SparkPage
Send Private Message
Reply
When you buy pre-made food, remember it had added ingredients, salt, etc in order for it to be shelf-stable or extend the life.

Why cant you make your own pesto, but a squeezy bottle and control the ingredients ?

To me, your diet and lack of nutrition come down to being lazy to make your own items. There are very few premade foods that are really good for you.

At least you will have time to read and study nutrition once you are home longer.(even though you should have done this year's ago) with your new found time, you should be able to commit to learning about food and your disease path.



 Pounds lost: 0.0 
0
1.75
3.5
5.25
7
EOWYN24241's Photo EOWYN24241 Posts: 5,283
11/3/19 6:57 A

My SparkPage
Send Private Message
Reply
It isn't cabbage kimchi but baby white radish.

And cabbage kimchi is actually bok choi kimchi.

Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (317,129)
Fitness Minutes: (44,702)
Posts: 30,972
11/3/19 6:04 A



My SparkPage
Send Private Message
Reply
Isn't kimchi loaded with sodium?

You have to remember that a lot of "healthy foods" are far from healthy for you.

Aren't you on a potassium restricted diet? Cabbage (kimchi) and potatoes aren't exactly low in that, altho if you peel the potato and soak it then emptying that water and replacing it with fresh would reduce a reasonable amount of potassium.

Rather than buying food you *hear* is good for you, I would be working off your recommended foods and ditching the rest. It's almost like you have a death wish.

Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


 current weight: 154.0 
213
198.25
183.5
168.75
154
EOWYN24241's Photo EOWYN24241 Posts: 5,283
11/3/19 4:18 A

My SparkPage
Send Private Message
Reply
I went to the mall after church today. To do some much needed grocery shopping for myself. I am coming home from dialysis by cab tmrw because my Mom has her own program for the morning all the way to late or mid afternoon. So I have to come back on my own, which also means I have to either buy or prepare my lunch.

I have some lovely pesto sauce in a nice squeezy bottle. So I bought some nice macaroni that was on sale to make myself some pasta for lunch tmrw. I was thinking, needs fresh mushrooms, but immediately vetoed the idea because mushrooms are high in phosphate. I've decided to put some frozen veggies in (y'know those with corn, peas and cubed carrots).

I also bought some potatoes, I saved there too, I initially wanted to get a bag of mini potatoes but they were pricey and I figured I don't need so much, so I just bought 3 medium sized potatoes, 2 red and 1 yellow, at one third the price. Plus I am reassured that I am able to finish them before they go to seed.

I bought a loaf of wheat germ bread. That is like white bread with the addition of wheat germ. I was advised to eat more white bread and pasta because they were lower in potassium. I will buy sprouted bread sometimes because it's so tasty but not all the time. That is my compromise.

I also bought some lovely baby romaine lettuce. I also bought some kimchi that was on sale. Not very crunchy because it expired January 2020 but still edible. Next time I will buy when it's not on clearance. This is the 1st time I bought discounted kimchi. I don't buy kimchi often but I heard they are a prebiotic food that is good for u.

Finally, I bought some deodorant because I'm down to my last bottle.

Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
CHICAGOHOPE's Photo CHICAGOHOPE SparkPoints: (26,438)
Fitness Minutes: (65,492)
Posts: 930
11/2/19 8:32 P

My SparkPage
Send Private Message
Reply
Help me understand how "I actually wanted the cheesy jumbo dog but that was too much meat", when the word "cheesy jumbo" is in the title. And your post is titled "forced to give up cheese".


Why are you even considering, thinking or tempting yourself with such garbage? Is the seaweed pretzel really a healthy choice? Maybe a salad, maybe just saying no to junk.

You really need a lesson in nutrition- when did you last see your nutritionist?

So much for taking things seriously ... please don't be surprised with the consequences of your choices.

Maybe since you will have more time, you should research and study nutrition. Maybe even start to research the consequences to prepare for your future, because it is going to happen.



 Pounds lost: 0.0 
0
1.75
3.5
5.25
7
ELEKTRA0412's Photo ELEKTRA0412 Posts: 4,366
11/2/19 1:39 P

My SparkPage
Send Private Message
Reply
Eowyn I think Jills response was based on your feigned surprise that you are not supposed to eat foods high in phosphates and salt. I hope you heed your doctors warnings. These complications are not uncommon for patients who are non-compliant.

“Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.”

Christopher Robin to Winnie the Pooh




 current weight: 130.0 
139
135.5
132
128.5
125
EOWYN24241's Photo EOWYN24241 Posts: 5,283
11/2/19 12:57 A

My SparkPage
Send Private Message
Reply
I actually had a seaweed pretzel but I couldn't find it in the nutrition tracker. It didn't taste all that salty. I just wanted something cheap and light for lunch yesterday. I actually wanted the cheesy jumbo dog but that was too much meat. I am trying to cut down on my protein intake because of the phosphate and uric acid.

My Mom picked me up from dialysis yesterday and we went straight to the mall. I didn't want to spend more than RM10 or RM20 on my lunch. So the pretzel fit the bill as it was only RM4.50.

I will be more careful in the future but I have already decided to avoid eating out whenever possible and eat more home cooked and home prepared meals.

I will be losing my job soon, so will my boss. The problem I thought was solved is far from solved. My boss and her family is also in financial trouble. I will not say anymore as my boss may not like it. Surface to say, I won't have so much disposable income from now on. So, much less eating out and going to the cinema. And also no more buying new clothes just because. I have more than enough clothes anyway.........

And Jill, I have been on dialysis for about 16 years but not because of anything I did, but because of SLE. The doctor's told me during my diagnosis way back in 1997 that I would eventually need dialysis. It was unavoidable because of the nature of my SLE. I was just one of the more unfortunate ones. I started dialysis on November 2003.

Edited by: EOWYN24241 at: 11/2/2019 (02:18)
Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (317,129)
Fitness Minutes: (44,702)
Posts: 30,972
11/1/19 8:18 P



My SparkPage
Send Private Message
Reply
I just had a little peek at your nutrition tracker (hope you don't mind.) I noticed the Auntie Annes Original Pretzel. Is this what you actually had? Or is it just similar to what you ate. The reason I asked is because 1 serving is approximately 1,000mg of sodium. Not really conducive to someone on a sodium restricted diet.

I seldom consume much more sodium in a day (usually hover around 1,500mg) and if I consume much more, my weight goes up and my body bloats up.

Do you track sodium, potassium and phosphate in your diet as much as you can? If you don't I suggest you start doing so because even tho' it wouldn't be a complete daily intake re some foods not having them recorded, what IS recorded might just be quite an eye opener.

Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


 current weight: 154.0 
213
198.25
183.5
168.75
154
JILLINOIS1's Photo JILLINOIS1 SparkPoints: (3,421)
Fitness Minutes: (5)
Posts: 25
11/1/19 11:59 A

My SparkPage
Send Private Message
Reply
I know I'm new, but not new to kidney issues personally and professionally. I'm stunned at you being on dialysis (only done for kidneys that are no longer compatible with life on their own), and fluids are a mystery. The ONLY reason dialysis is done is to remove fluid and waste products that your kidneys can't (or for toxins caused by disease, injury, or chemicals- but that is temporary). Without dialysis to remove fluid, you die.

Five hundred cc is very low fluid restriction. Every liter of fluid weighs 2.2 pounds or 1 kg. You have to have dialysis to get rid of fluid your kidneys don't process- and you talk about a fluid heavy dinner. You are sabotaging your own health, life, and the impact it has on your friends, co-workers, and family.

There will come a time when you have no more chances to do all you can to protect what you have. I wish you well- and only you can determine your behavior with your health. Same for all of us- we make the decisions- and must live with the consequences. Or not.



Total SparkPoints: 3,421
2,500
2,874
3,249
3,624
3,999
SparkPoints Level 6
SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (317,129)
Fitness Minutes: (44,702)
Posts: 30,972
11/1/19 7:43 A



My SparkPage
Send Private Message
Reply
I am really pleased that you were able to meet the target weight, but am stunned that you say "This has taught me a lesson that not indulging in too much fluids is the way to go!" How many times have you said that? How many times has it not stayed in your brain for very long? .... basically till the next dialysis day. Hopefully one day the penny will drop properly.

Anyway, congratulations on meeting that target weight.

Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


 current weight: 154.0 
213
198.25
183.5
168.75
154
EOWYN24241's Photo EOWYN24241 Posts: 5,283
11/1/19 6:12 A

My SparkPage
Send Private Message
Reply
I came home very late from work last night. Because my boss was busy with doing plumbing work for the foreign workers who live in the factory premises. I reached home around 11pm. My boss drove me all the way home. For that, I am very thankful!

Because of this, I didn't get to indulge in a fluid heavy dinner after work. Because I went straight home. I just had a homemade ham sandwich when I got home. I had a packet of instant noodles dry style and 2 soft boiled eggs around 8pm. So did my boss. We cooked it together and ate together. Then she continued to tinker around some more.

I was very tired today because of lack of sleep last night. I had to wake up early to get to dialysis. But I'm fine now because I just had a nice nap!

The thing I wanted to tell you all is this! : I only put on 2.2kg today because I ate less last night. The nurse was nice enough to grant me a target of 2.7kg! So, bottom line, I went home with 63kg! Usually I would have been happy to reach 63.5kg, but 63kg is EXCELLENT!!!

I didn't have any complications either! No low bp, no dizziness! Yes! This is the way to dialyze! This has taught me a lesson that not indulging in too much fluids is the way to go!

Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
JILLINOIS1's Photo JILLINOIS1 SparkPoints: (3,421)
Fitness Minutes: (5)
Posts: 25
10/31/19 5:43 P

My SparkPage
Send Private Message
Reply
What's more important- cheese or your life?

Phosphorus is rarely on nutrition labels, and therefore, it's best to follow the list of acceptable foods. I'm a T2D, and have fluctuating GFR and creatinine. I'm PROACTIVELY going to a dietician to find out BEFORE I end up on dialysis (which I won't do) how I can prolong my shelf life. Anything with "phos- or -phos" in the ingredient list should be suspect until proven otherwise. My grandma died in a dialysis chair (multiple myeloma with amyloidosis). She wasn't diabetic.. but when I became an RN (disabled now), I swore that I wouldn't go sit with people I didn't know or want to know 3 x per week for the rest of my life, which wouldn't have much quality. So, I choose to take care of myself as best I can within the parameters set by my doctors and soon, the dietician.

Cheese or plan a funeral- we get to choose.



Total SparkPoints: 3,421
2,500
2,874
3,249
3,624
3,999
SparkPoints Level 6
SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (317,129)
Fitness Minutes: (44,702)
Posts: 30,972
10/30/19 7:54 P



My SparkPage
Send Private Message
Reply
Given your extremely limited (recommended) fluid intake, I am surprised you have to give up "diet colas, like diet coke or pepsi and softdrinks in general." They are all drinks that shouldn't have featured in the first place.

Please, every time you think of having something you know you shouldn't, remember your friend who has just died. It could be you next.

Kris

Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


 current weight: 154.0 
213
198.25
183.5
168.75
154
CHICAGOHOPE's Photo CHICAGOHOPE SparkPoints: (26,438)
Fitness Minutes: (65,492)
Posts: 930
10/30/19 5:02 P

My SparkPage
Send Private Message
Reply
Elaine

I'm not sure I understand why you are so surprised about what foods have in them. For several years all of us have encouraged, told, gave you information about what your food has in it.

This is nothing new. You have had this disease for sometime, you said you have worked with a specialist for your diet- what am I missing?

Maybe you need to get back to your specialist and review the foods you can eat, since over the past few years you have had no regard for your health and have been extremely reckless to say the least.

For me, I'd make that call now and not wait another day. But making the call is the first step you have to do the work. Being alarmed by this should come as no surprise.

Time to get real, and get serious - time is running out.



 Pounds lost: 0.0 
0
1.75
3.5
5.25
7
EOWYN24241's Photo EOWYN24241 Posts: 5,283
10/30/19 1:33 A

My SparkPage
Send Private Message
Reply
Oh yeah! About my protein intake : no more burgers or foods with excessive protein, so that means no more meals with a lot of protein like chicken/pork chops or fish and chips. The chips mean high potassium. I don't even dare take sweet potatoes now because they are very high in potassium. Absolutely no more avocados! They are very high in potassium too. No more bananas.

I do have a very good handle on the foods I should avoid and the foods I am allowed to eat (having been on this renal diet for 14+ years). The main problem is, the foods to avoid contain many of my favorite foods!

Oh, one more thing, I've discovered an unsuspected source of potassium, diet colas, like diet coke or pepsi and softdrinks in general. Something else to give up!

Edited by: EOWYN24241 at: 10/30/2019 (02:24)
Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
CHICAGOHOPE's Photo CHICAGOHOPE SparkPoints: (26,438)
Fitness Minutes: (65,492)
Posts: 930
10/29/19 8:50 P

My SparkPage
Send Private Message
Reply
Elaine,

Please work on getting your nutrition under control. This is so serious. I'm not sure if this is the thing to change your lifestyle, but one can continue to hope.

Maybe something else to consider.... if you continue to eat the foods YOU want to, and your heath deteriorates to the extreme(that you are afraid of), who do you think will take care of you? Who will put a roof over your head? How will you be able to enjoy your little shopping trips? What about enjoying the outside? Or the freedom you have now to have a job?

All these depend on YOU. YOU taking your health serious. It's time to wake up to what your future WILL be if you continue the road you have been on.

I only hope this post is for real, and you want to change.



 Pounds lost: 0.0 
0
1.75
3.5
5.25
7
EOWYN24241's Photo EOWYN24241 Posts: 5,283
10/29/19 8:22 P

My SparkPage
Send Private Message
Reply
Thank you, Kris. I've had bone pain & v itchy skin before. That's why I had to have surgery to get my parathyroid glands removed.

Yes. I will certainly b much more careful from now on and avoid all high phosphate foods. Including those salty snacks I love so much.

Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (317,129)
Fitness Minutes: (44,702)
Posts: 30,972
10/29/19 7:57 P



My SparkPage
Send Private Message
Reply
I'm very sorry to hear that, Elaine.

Your previous post "In short, high phosphate causes bone problems & itchy skin."

That is the least of it!!! I really think you are only reading what you want to take on board, and ignoring the rest.

In your situation it can lead to:
* bad bone pain (VERY hard to do anything about that)

* the itchy skin is VERY itchy skin. I have moderately itchy skin, and THAT is NOT nice and also very hard to deal with, let alone worsening itch.

* Worsening of your CKD

* It can cause diarrhea, as well as a hardening of organs and soft tissue.

Ultimately, what you seem to dismiss as an inconvenience or almost trivial can actually lead to death. Please do NOT undervalue the importance of getting your phosphate under control.

Did the Dr mention anything to you about limiting meat, too?

I hope that you are contacting your Renal Dietitian again to brush up on what you should be limiting/avoiding.

Kris







Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


 current weight: 154.0 
213
198.25
183.5
168.75
154
SPARK_MERLE's Photo SPARK_MERLE Posts: 9,271
10/29/19 7:53 P

SparkPeople Team Member

My SparkPage
Send Private Message
Reply
I am sorry to hear about your friend and wish you all the best. Kris has given you some great advice about making the list of acceptable foods--I hope you do that.

Take care.

~ Merle

"I am only one, but I am one. I cannot do everything, but I can do something. And I will not let what I cannot do interfere with what I can do."
Edward Everett Hale
EOWYN24241's Photo EOWYN24241 Posts: 5,283
10/29/19 7:33 P

My SparkPage
Send Private Message
Reply
Sad news. My friend that got his leg(s) amputated has passed away on Monday night. I m really saddened by the news! He is a good friend!

Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
EOWYN24241's Photo EOWYN24241 Posts: 5,283
10/29/19 6:17 A

My SparkPage
Send Private Message
Reply
Just did some research. I don't really need to fear amputation bcoz I m not diabetic.

However, I still need to b v careful with my diet bcoz I have a family history of diabetes & high phosphate & potassium is just bad for me.

In short, high phosphate causes bone problems & itchy skin. I will pack up my cheses & give them to my uncle tmrw.

So from now on, I won't but any dairy products & I will take my tea black.

Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (317,129)
Fitness Minutes: (44,702)
Posts: 30,972
10/29/19 3:57 A



My SparkPage
Send Private Message
Reply
Yes - you should have ALWAYS been taking this very seriously. I am sorry about your friend. Hopefully your friend's situation and your possible future scenario is that wake-up call you have been needing.

Good luck,
Kris

Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


 current weight: 154.0 
213
198.25
183.5
168.75
154
EOWYN24241's Photo EOWYN24241 Posts: 5,283
10/29/19 3:11 A

My SparkPage
Send Private Message
Reply
Oh, the doctor also said that even though I am not a diabetic, there is still a chance for limb amputation if phosphate levels are too high. That's what he said.

He said that if I don't get my phosphate and potassium levels under control, I would have to take expensive phosphate blockers for the phosphate.

He also told me that a friend of mine who is diabetic just got his leg(s) amputated and that he has changed dialysis centers, but I am not sure what the current status is as he has not been coming into dialysis recently.

So, I have to take this very seriously!

Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (317,129)
Fitness Minutes: (44,702)
Posts: 30,972
10/29/19 2:11 A



My SparkPage
Send Private Message
Reply
Elaine - I feel for you, but we have been down this road so many times with you before.

I strongly suggest that you make a list of all the foods that you CAN eat, and keep that list with you. It's easiest to have it in alphabetical order for quick referencing.

If you pay more attention to what goes into your mouth and choose wisely, you will not have so many issues. Having a ready reference on you at all times might provide you with incentive to consider your health over instant gratification. .

Good luck,
Hugs,
Kris xxxx

Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


 current weight: 154.0 
213
198.25
183.5
168.75
154
EOWYN24241's Photo EOWYN24241 Posts: 5,283
10/29/19 1:47 A

My SparkPage
Send Private Message
Reply
The doctor came to the dialysis center I go to yesterday. He told me STRICTLY NO cheese, yogurt or dairy because they are high in phosphate. Other high phosphate foods include nuts and mushrooms.

He told me that because I have been buying cheese recently and having small amounts several times a week because I love cheese so much.

But now, I have to bite the bullet and pack up all my remaining cheeses and give them to my uncle. And never buy cheese or yogurt anymore. No more pizza or burgers either.

The doctor also said that my potassium levels are also on the high side. So, no more high potassium fruits either. I just have to keep avoiding and NOT BUY the foods I shouldn't have!

I love nuts but that's easy, I just don't buy them! If they are not in the house, I can't munch on them!

But I am so sad that I have to give up my cheeses! Now, I can't even have small amounts occasionally. I have to give up cheese completely! The doctor said there is no question about it! I just have to give it up! Now to pack up what I have left and give it to my uncle!

Used to be Eowyn2424


 current weight: 137.0 
137
129
121
113
105
Page: 1 of (1)   1

Report Inappropriate Post

Other Panic! Button for Immediate Help Topics:

Topics:
Last Post:
7/9/2019 9:29:45 AM
8/6/2019 11:33:18 AM
5/1/2019 7:50:15 PM

Thread URL: https://sparkrecipes.sparkpeople.com/myspark/messageboard.asp?imboard=32&imparent=50505558

Review our Community Guidelines