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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
11/2/15 2:19 P

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HI Suzy!

Great to hear from you, happy you are happy with your results!
Thrilling that you had no cancer, what a gift that must be for you to have heard...

Glad you didn't take the Vicodin, that's pretty powerful stuff that can leave you bound up... which is also often an unfortunate side effect of surgery to begin with. As well as being one sign of an underactive thyroid, which is what may happen until your full final dose of thyroid hormone is decided.

As for Hashimoto's Thyroid disease, the vast majority... I think its like 90%? of us with low thyroid issues?.... the cause of our thyroid's dysfunction is autoimmunity... which is what Hashimoto's is... hypothyroid (low thyroid function) autoimmune disease.

Dr Hashimoto was the Japanese physician who did the initial research into autoimmune hypothyroid disease in the early 1900s, so the syndrome is named after him.

I know it was your choice to have a TT.

But for the vast majority of those with Hashimoto's, surgery is not required, unless there's some other situation going on like yours, Suzy, with a huge nodule on one side, various smaller ones on the "good" side and the possibility of these nodules being cancer.

Just wanted to make that clear to the group!

Be well...
Keep us posted!
: )
Mzzchief

Edited by: MZZCHIEF at: 11/2/2015 (14:21)
New decade. Big world.
Hello, 60!
Primum non nocere.

Never underestimate the value of getting out of your own way.

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10/31/15 9:00 P

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I'm very happy that my TT surgery went well on Monday. I was home by noon on Tuesday! My surgeon left it up to me to have either a partial or a full TT and I choose the full. I received the labs from the Patho and there was no cancer so I am grateful for that. However, the lab results were positive for Hashimoto Disease which is exactly what I assumed I had due to all my symptoms. (Even though my TSH test were in the normal range of 3.052.) My surgeon told me the TT was a great call now that we know I have Hashimoto.
I'm now recovering quite well (never even felt the need to take any of the Vicodon they sent me home with!). I am on 100mcg Synthroid along with Calcium, Vit D and Calcitriol.~~~~am anxious to feel better but am aware it will take some time.

My scar isn't even that bad~~~~wasn't too worried about it to begin with though! emoticon

Thanks so much to everyone in this group~~~I very much appreciated all the help/advice given and will look forward to learning more from this group!

Edited by: SUZYBFIT at: 11/1/2015 (09:12)
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GOANNA2's Photo GOANNA2 Posts: 27,818
10/31/15 10:28 A

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Back home after a 3 month vacation in Greece. Have to have thyroid checked
as having trouble swallowing and notice the gland seems bigger and lumpier...
HPPY Halloween everyone. emoticon

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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
10/28/15 9:59 P

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HI Suzy!

Been thinking of you... when you are up to it, please post and update so we know how your surgery went, and how you are feeling.

Be well
: )
Mzzchief

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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
10/26/15 1:52 P

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Suzy,

Its really a personal decision that you need to make for yourself, no one can decide that but you and your doctor. As for regrets, those are as variable as the patient.

You might want to have the pathologist look at the tissue during the operation, and opt for a TT if the tissue is malignant.

As for the "100% Synthroid vs 50% Synthroid" my GUESS is that "they" are talking about dosages. Like 100mcgs or 50mcgs to start out.

Its as you say, dosage is a highly individual thing.
Medicine is just as much an art as it is a science.

Thinking of you today (Monday 10/26) and wondering if this is your surgery day... Hoping for the best and peace with whatever choice you make.

Be well
: )
Mzzchief

New decade. Big world.
Hello, 60!
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Never underestimate the value of getting out of your own way.

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SUZYBFIT's Photo SUZYBFIT SparkPoints: (0)
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10/22/15 8:47 P

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Thank you for your thoughts! I'm still in limbo on what I'll decide but all this information is helpful. Glad things have worked out reasonably well for you!

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NEVERMIND2010's Photo NEVERMIND2010 Posts: 587
10/22/15 12:32 P

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SuzyB, my friend had a partial thyroidectomy about 10 years ago (one half removed). She has normal levels with no need for thyroid hormone replacement. She has had no further thyroid problems.

Some people are lucky.

I vacillated between TT and RAI for Graves disease, and eventually settled on RAI (in fact, I canceled my surgery about a week before it was scheduled to happen). I think my thyroid is re-generating and that I may be able to go off replacement hormone at some point in the future. I know if I had had the TT, that would never be an option. (That's not why I canceled the surgery - I had serious doubts about the hospital.)

I can't say for sure, but I think if I were in your situation, I would probably try for a partial and see how it goes.

Whatever you decide, good luck!



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10/21/15 7:59 P

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So, my TT surgery is scheduled for this coming Monday. I just had my pre-op meeting w/surgeon this afternoon.

I have a few questions for anyone w/experience regarding full thyroidectomy vs partial.

I have a 4.2 cm nodule on my right thyroid. Found to be nondiagnostic so not positive if benign or malignant. Regardless, the right side is being removed on Monday.

My left thyroid has 2 very tiny tiny nodules. The result is my left thyroid is "abnormal".

The surgeon would be more than happy to remove the entire thyroid if I choose to do so --------or just remove the right one w/large nodule.

Looking for thoughts, experiences, advice on being on Synthroid 100% vs Synthroid 50%(or whatever it may be!). Does the replacement hormone do the job better if it is used w/no thyroid? Meaning easier to regulate? Or is this just a case-to-case scenario?

Anyone have the option of all thyroid removed or half removed and regret whichever decision was made?

I believe I am leaning towards full thyroidectomy & 100% replacement. A couple of my doctors are telling me that my thyroid blood tests are completely normal. However, I feel they are not! The only test I have had taken is the TSH, Sensitive---My number is 3.052/normal range is .358-3.740.

TIA!

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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
10/18/15 7:10 P

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Sprite,

Lots of people can go on thyroid medication and continue with their life as if nothing had changed.

Those people by and large, are not on this team!
Losing weight with thyroid disease, and keeping it off,even when your numbers are peachy, isn't easy.

I feel your pain!
emoticon
Mzzchief

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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
10/18/15 10:55 A

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PS.
Your parathyroid glands are attached to the back of your thyroid gland. They are the size of a grain of rice, standard issue is 4, but some people have as many as 8, and they aren't always located on the back of the thyroid.

Parathyroids control calcium metabolism in the body.
Which is why doctors will monitor your calcium closely, before letting you leave the hospital.

Sometimes parathyroids, bc of their position directly on the thyroid, and being as small as they are, are accidentally removed. Your doctor can replant them in your upper arm or somewhere in the chest cavity.

Ask your doctor about this.

: )
Mzzchief

New decade. Big world.
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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
10/18/15 10:49 A

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HI Suzy!

That's so frustrating that 6 samples didn't produce an adequate sampling to get a firm diagnosis. Yes, it would be nice after putting yourself thru the procedure and waiting for both the appointment and the results, if you had conclusive results.

FNB makes zero sense if a TT is a foregone conclusion:
Why?
1. they put the patient thru an additional procedure
2. they delay surgery
3. Its often difficult to get a clear sample, as you've discovered
4. its an additional, avoidable cost that does not influence the outcome
5. If there is cancer, a biopsy can potentially release cancer cells to the bloodstream where they can metastasize, bc the integrity of the nodule has been compromised
6. surgery cleanly removes the nodules, enclosed in thyroid tissue, where they can be examined by a pathologist and the threat of cancer confirmed or eliminated.

So IMO, FNBs should be reserved for those entertaining the thought of TT, not for those who are going to get one regardless of the results.

Sorry you had to go thru that!
emoticon
Mzzchief



Edited by: MZZCHIEF at: 10/18/2015 (19:06)
New decade. Big world.
Hello, 60!
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SUZYBFIT's Photo SUZYBFIT SparkPoints: (0)
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10/14/15 8:22 P

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I received some news regarding my Needle Core biopsy on the nodule. Unfortunately it was returned as "Nondiagnostic" being that it was not an adequate thyroid specimen. ((Six needles were taken!!))

Benign-appearing cell groups were noted so doctors are saying it is benign. So this is good news athough I cannot help but feel I'd be more comfortable with a "for certain" benign reading! I understand that it is fairly common for the NC Biopsy to be unreadable.

I have an appt scheduled this coming Tuesday w/endocrinologists to discuss next move. I completely understand I will be having a thyroidectomy soon~~~~~I feel I want it right away!

Overall, I feel like I am in good hands. emoticon emoticon

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SUZYBFIT's Photo SUZYBFIT SparkPoints: (0)
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10/12/15 5:03 P

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Thank you MICH312 for your insight! I am very anxious over all this (gah!!!) & reading your post reminded me that I cannot let my imagination away w/me!

And Thank You MIZZCHIEF. So glad to find this group. I'm staying positive.......but I must admit that I'll be on pins and needles til I hear the news from my doctor.
I've a young family------my hubby and I have 2 young kiddos/9 yrs and 7 1/2. Must keep good thoughts in my head!

Thanks everyone! This group is like a god-send. emoticon emoticon

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10/12/15 4:54 P

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sprite71 ~~~~Wow! I am completely thrilled to hear your surgery went so well. Very encouraging words for me & it was just what I needed to hear! I thank you for that.




Edited by: SUZYBFIT at: 10/12/2015 (16:55)
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CHIBIKARATE's Photo CHIBIKARATE Posts: 15,003
10/12/15 1:35 A

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So sorry sending love light and prayers higs

i also love einsteen and the way he got his ideas I love to travel on the spur of the moment and i love portland oregon, hawaii. I enjoy all forms of art and the galleries


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SPRITE71 Posts: 9
10/12/15 12:32 A

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I understand the whirlwind of thyroid disease, I went to an allergist for hives, When he did a lot of blood work he also found that my thyroid levels were way to low, I was sent to an Endo who did a nuclear scan on my neck and found 5 nodules on my thyroid with the biggest one being cold, Within a couple of weeks I was having a total thyroidectomy, My pathology report came back as papillary cancer, Because it showed I had clean margins, I did not have any treatments. Kind of makes you nervous to have no treatment for cancer.
I have been in supression for one year. I don't seem to have any problems other than my Endo changing my thyroid meds a couple of time to get my levels to zero. I just had my one year scans and xrays and nothing else has grown where it shouldn't have.
My only complaints have been my hair still falls out, and a few other minor things I think is associated with thyroid disease. My primary care doctor was explaining that sometimes it's better to have a few of these minor problems if it helps keep the cancer from growing back. Personally I think I might feel better some days if my levels were allowed to rise just a bit.
For those who may be facing the TT. I had my surgery on a Thursday, went home the next morning, back for a checkup on Monday because my calcium had fell, then back in the gym on Tuesday and each day since. Sadly, I have put on about 15 pounds since the surgery in spite of going to the gym 7 days a week!

MZZCHIEF's Photo MZZCHIEF Posts: 10,408
10/12/15 12:27 A

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HI Suzy!

I've not had a thyroidectomy... I've been lucky as far as nodules go and I hope my luck holds.
Just wanted to welcome you to our team and to let you know that the vast majority of thyroid nodules are NOT malignant.

Let us know how things go...

Mich~
What you eat can really influence how much thyroid hormone you absorb.
Also...are you taking your thyroid hormone with a full 8 oz glass of water and waiting the same amount of time (30 minutes, minimum)? before eating.
Taking other meds, vitamins, minerals, fiber will all influence how much medication is absorbed.

: )
Mzzchief

Edited by: MZZCHIEF at: 10/12/2015 (00:29)
New decade. Big world.
Hello, 60!
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MICH312's Photo MICH312 Posts: 17
10/11/15 9:39 P

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Hello,
I had a total thyroidectomy in August of 2012 for thyroid nodules. I had a 3.2 cm nodule on my left lobe and a 6.4 cm nodule on the right, along with smaller nodules. The one on my right side had doubled in size over the previous year, putting pressure on my esophagus and causing problems swallowing. I figured that at the rate it had been growing that it was time to have it removed. The surgery went well and it was not malignant, so I didn't have any other treatment. The only problem I have now is regulating my thyroid levels. I seem to swing from hypothyroid to hyperthyroid, so have to get them checked every 6 months or so. Others I know only have to have them checked once a year, so I'm not sure why mine fluctuate so much. I hope all goes well for you!

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SUZYBFIT's Photo SUZYBFIT SparkPoints: (0)
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10/11/15 9:06 P

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October 1-----large lump on my throat noticed by general practitioner.
October 2----ultrasound shows large hard nodule on right side of thyroid
October 9----biopsy done on large 4.2 cm nodule right side

Waiting for biopsy results is killing me! Hoping for results by Oct 14 Wed.

Anyone here have experience with having a thyroidectomy? I know for certain I will be having one; I'm just waiting for test results to inform me if the 4.2 cm is benign or malignant.

This chain of events have happened so quickly my head is spinning.....lol! But, on the other hand, it certainly explains So Much concerning the symptoms I've been having for the past year.


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